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I don't know the details of your migraines @Squeezy. In my own case, even after the migraine is over the effects still linger for a day or so. I will feel drained, washed out. That was true even before ME struck. According to the neurologist I saw, that was fairly typical. Basically...

I'm sorry @Wonko :hug:. Reading this kind of stuff is like being kicked in the teeth all over again.

I think the practicalities of such a restricted life can only have a negative impact on digestion. As @Trish says there's the difficulties in preparing fresh, healthy meals, the difficulties some have actually eating, the difficulties many of us have with digestion (which may, or may not be part...

I wish that I could go back in time and gather up all that money I wasted and give it to someone like the ME Biobank.

I believe this refers to or is connected with the letter dispensing with Suzy Chapman 's services to the Forward ME Group. If I am right then post#21 in this thread: https://s4me.info/threads/forward-me-group-minutes-1st-may-2018.4384/page-2#post-78660

I have asked, a couple of times I think, for feedback and opinion from people who tried, or considered something. It's been very useful. As long as the question isn't seeking medical advice and the responses are clearly anecdotal and avoid giving specific medical advice, it is fine. As far as...

Is it worth reiterating that some lecturers or universities in the US are now using a famous piece of British research to demonstrate how such research should not be done?

Right. Because the conflicts of interest & paychecks that came from DWP and insurers makes no difference? The research culture where it's okay to mark your own homework, yet still claim to be independent makes no difference? The culture where people are afraid to speak out, or even simply...

I am certainly not dismissing other people's choices in how they treat their ME. If they choose and have the time, energy, funds to try supplements that's their decision. If they want to discuss how supplements help them,personally, also fine. However, I would also say that over the years I...

I agree with much of what you say Trish. However In my experience female doctors can be just as bad, if not worse than some of the guys. As you say - But it's also true to say that in history women have upheld the stereotype /discrimination as much as men. Just because they're women...

I agree. However, I got caught in a logic loop. I developed ME and then, more or less accidentally, discovered I am actually deficient in and struggle to absorb certain things. When these deficiencies are addressed weird symptoms that pre date the ME disappear. When I stop supplementing the...

I agree the whole supplement thing is a fine line that's hard to judge @Jenny TipsforME. I know that I do have some specific deficiencies, because I got very lucky and managed to see someone who was qualified and experienced. They worked mainly for the NHS though the NHS wouldn't pay for my...

From my experience as an ME patient, many of the patients I know do take a hit and miss approach to supplements. I'd bet good money that many of the "experts" they have seen prescribe pretty much the same supplements to everyone who comes in with a specific diagnosis. One of the problems we...

Sorry to hear you're struggling @Squeezy :hug:. Nope, I didn't try the NAC in the end - contraindicated for hypothyroidism. Even though I take my replacement T4, it's just not worth b*ggering up my thyroid hormone balance. I have added in BCAA. I have found they take the sharpest edge of PEM...

I also believe that schools these days use psychologists. So a child may end up being seen by the school psych on a teachers say so. Now, I am sure for many that's a good thing, but I'm equally sure that it's a bad thing for others. Think of a kid in the early stages of ME for example. The...

I am sure there are a great many people who have undergone what you refer to as "normal" psychology @Hip . However, there are people who are harmed by it too. Instances of people I know for example - A lady whose relationship with a close family member and a (non abusive) childhood event...

Yep..and I haven't even had the fun of a few glasses of wine beforehand to explain it! I've also discovered that missing your mouth with a fork hurts too. Ouch! Luckily, the only real damage was to my pride.

I did actually fall during my Romberg test, but I was all over the place apparently. Apart from that you could be describing me. For ages I couldn't figure out why I kept breaking the edges of my finger nails- it was because I kept bashing them into the front edges of shelves and tables when...

I have little to no experience of normal psychology and how that might aid the human race. However, time and again, I have seen people who should know,or have been taught better, attribute incorrect meaning to someone's behaviour. So, because they "know" , or have read about people, they...

About 5 years ago into my illness, I would have said very gentle yoga helped me. However, my illness progressed. It may even be that as my flexibility improved, I routinely did a little too much and, although it was initially helpful, it likely contributed to an overall decline. When...