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Thank you @TiredSam for taking one for the team there & posting your synopsis. :thumbup: I was going to have a go at watching it....and decided to do something I would prefer & wouldn't annoy me instead.

I've put unclear because sometimes it is and at others it isn't. I think I was like that pre ME too. At times, especially the better times, I barely startle at all. I have had someone jump out at me late at night, outside when leaving a friend's house expecting me to scream. Gobsmacked when...

i agree. ME is a marathon rather than a sprint and sometimes, when we have enough wiggle room to make a choice, we have to balance our mental health needs with those of physical health. For some, pre covid lockdown, that might be a simple coffee out with a friend, or sitting outside our...

[Bolding mine] Agreed but as often as not it's not necessarily a choice. Lack of support be it financial or physical often means that if you do get a window when you are able to do something - shower, get in to a docs appointment, put a laundry load in, or simply brush your teeth, you have to...

Yep, says it all. As the video about Holgar highlights it's not just us patients caught up but our loved ones too. Holgar's brother did a great job describing the problems he faces but they are trapped in the nightmare alongside him. They have no choice but to struggle on unaided and the...

From the quote in @Kalliope 's post above Very creative techniques are the least of it, we know from PACE that they deliberately sought to avoid collecting meaningful data on harms. Then, because there was no data on harms, encouraged the assumption the treatments are safe and cannot harm. A...

I just cannot get my head around the logical inconsistencies, failure to acknowledge the possibility of harms and total disregard for patient wellbeing. Listen to and believe the patient - but only when they tell you what you want to hear. If they need to tell you there's a problem then they...

As an engineer who spent a lot of time on customer site I dispute this. Early on i wasn't really interested in the people & that machinery is so much more straightforward. I remember the day someone came to me reporting a fault that simply wasn't possible. I arrogantly told them so (I was...

Very small fry in the scheme of things but it makes a big difference to me. My GP surgery have changed the way they do things. No problem with getting a phone appointment, it's just you have to phone up at 8am as they are restricting appointments that can be booked ahead. So.you have to be...

No, I've searched for it before & tried to find the guy's name. I wish I'd made a note of it. :rolleyes::oops: It was the first time i realized the full financial implications of such a misdiagnosis. Once treated for MS all his symptoms, including the alleged psych ones, improved. He had...

Years ago I saw a documentary by a guy who worked as a documentary maker or producer about his experience with the healthcare system. He was having weird symptoms, ended up referred to psychiatry and staying as an inpatient at a psych unit. Each time he saw a different member of the "team"...

Yes. I believe both these statements can be true simultaneously. In the distant past, when working, I would be asked to visit clients sites where there was some fault or problem that couldn't be resolved locally for some reason. My job was entirely technical but I needed input from.the people...

I agree with everything you've said @strategist. I think the point made by Grete Lilledalen addresses a different issue though. 1) stop the antagonistic view of patients learning about it from each other. The patient's experience is credible and valid. You don't have any evidence that says...

I can see where you're coming from & agree. However, with poor diagnosis using outdated criteria there are people diagnosed with ME who are not exercise/exertion intolerant. The risk of misdiagnosis is quite high. I think it was found to be 40%+ of UK patients referred to specialist services...

I'd rather he didn't in a way. If he were to come out and apologise then it would back to the militant ME patient narrative all over again. I would rather see a change of attitude than hear a "sorry". I can't pretend to have watched the series other than a brief snippet I saw via Gogglebox...

i believe we have to allow room for people to change their minds and opinions about ME. While I found RG's first "joke" about ME offensive, if all he knew about it came from the lazy regurgitation of SMC offerings then his views weren't surprising, though I agree he could have looked into it a...

In a way, this is what has happened with IAPT. We were used as a testing ground - the fact PACE successfully demonstrated they were wrong was glossed over. Remember when GET worked, but only worked if it was done by a therapist trained by them (not too dissimilar to LP practitioners in that...

Ah, but if you can get public services to pay for some of this training you can expand your customer base in all directions. Imagine if the GP could refer someone for LP as easily as to a MUS clinic? Then they can claim to be recommended by the NHS & maybe use their logo. This would...

I can't copy/quote it for some reason but in @Dolphin 's post #375 I notice they've slipped Chronic Fatigue Syndrome in under Psychiatric Complications for probable long term complications Nothing like accuracy. Literally nothing like it.

I didn't see anything offensive about ME in the clip. There might be other reasons why others might find bits of it offensive. The person in question is portrayed as being......suggestible. They apparently saw a documentary about ME and then thought they had it, it was horrible, they felt...