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    Mini-crashes in late afternoon / early evening?

    please don't give more information than you feel.comfortable with but I wondered if you notice if it matters what and how much you eat? I find a meal with refined carbs will definitely do this, unless it's a really tiny portion. So I wondered if maybe adding a small amount of fats to the...
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    Advice from 'experts' on post-viral fatigue following Covid-19 (NHS Oxford Health, Science Media Centre, ...)

    It's like the b*****ds don't want [them] to get better.:whistle:
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    UK - Resources for help getting food during quarantine and other supermarket related problems

    Could you Mam phone this covid group on your behalf @Hell..hath..no..fury... ? Or your ex? Maybe someone else phoning on your behalf explaining to them that if they do need to get in touch then email or a text is more appropriate for you. That you are too ill to explain this to them on the...
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    COVID and its consequences on disabled/sick people's care

    No worries. I'm struggling with communication at the minute so I am sure I could have been clearer. Another consequence for me is that old friends who are busy with travelling, careers, kids and so now have more time on their hands and are getting in touch. Lovely, but the more I communicate...
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    COVID and its consequences on disabled/sick people's care

    Absolutely. That's the whole point to keep them free of the virus. Unfortunately, the lack of contact with loved ones, the little outings and some of their organised activities has meant a sudden marked deterioration in their dementia. Then for those who do still have some days or times when...
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    COVID and its consequences on disabled/sick people's care

    A relative of my husband is in a care home in the Republic of Ireland. The care home is covid free but no visitors have been allowed for weeks. Most of the inhabitants have dementia and apparently all of them have become markedly worse since the lockdown.
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    Mini-crashes in late afternoon / early evening?

    We have a few diabetics (insulin dependent) in the family and, in a previous life when I regularly had people coming to stay, I always had choccie digestives or kitkats around for them. The diabetic nurses used to recommend them as good snacks for when they were exercising. Coke or a bananas...
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    Mini-crashes in late afternoon / early evening?

    Yes. I get this. The only things I can suggest that sometimes help is - - Rest earlier. Whatever your routine is if you feel the slump at approx 4 and that's when you rest - try resting at 3 instead. Even if you don't sleep. - Take a couple more mini breaks. Sit quietly with your feet up...
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    Advice from 'experts' on post-viral fatigue following Covid-19 (NHS Oxford Health, Science Media Centre, ...)

    :thumbup: brilliant. Thank you so much @PhysiosforME & everyone involved! I checked & discovered it's still available via the link from Worcestershire - https://www.hacw.nhs.uk/covid19/ Any ideas how to get it removed from here too?
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    UK - Resources for help getting food during quarantine and other supermarket related problems

    According to this site you can! You remove them from the shells first though https://www.incredibleegg.org/eggcyclopedia/f/freezing-eggs/ Actually, I do have some frozen egg whites....
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    UK - Resources for help getting food during quarantine and other supermarket related problems

    Me neither! You could certainly freeze them once cooked. Make an omelette & freeze that or a quiche or something. Never froze a fresh egg though. Intrigued.
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    UK: Priority Setting Partnership for ME/CFS

    Yep I agree with you @Cinders66. I think it.may be a case of d***ed if you do and d***ed if you don't. Without any input from the likes of patients like us or people who would represent us properly then it will just be yet another round of the same old, same old. AfMEs involvement counting as...
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    Three months of bed rest induce a residual transcriptomic signature resilient to resistance exercise countermeasures, 2020, Fernandez-Gonzalo et al

    Difficulty with sleep, or waking feeling worse than I did when I went to bed was part of the initial noticeable symptoms for me. I was still active and exercising. I did become bedbound but it was a long slide with me fighting it every inch of the way - if I knew then what I know now. :(...
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    UK: REGISTER AS A VULNERABLE PERSON TO GET CORONAVIRUS SUPPORT

    I don't know if this is the right place for this so please let me know if you want me to move it. Yesterday evening I phoned an elderly neighbour to see if she needed shopping as IM was going today. She's fine but a bit lonely so I stayed on the phone for a bit - no hardship, beyond the ME...
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    UK - Resources for help getting food during quarantine and other supermarket related problems

    We're still able to get eggs here, for now at any rate. I'm guessing that a lot of people who don't usually homebake are now having a go and possibly buying far more than they need. Despite not having any problem getting bread, you can't find flour or caster sugar in the shops round here at...
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    UK: Priority Setting Partnership for ME/CFS

    Perhaps I am being unfair and I look forward to the day they prove me wrong, but they have a history of doing things that actively harm. The Work Toolkit, their updated pacing and management document (including up-pacing) and let's not forget their support of the PACE trial though they seem to...
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    Trial By Error: CBT and Irritable Bowel Syndrome

    Team details for the IBS network - one of the other leading UK charities https://www.theibsnetwork.org/about-us/
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    Trial By Error: CBT and Irritable Bowel Syndrome

    Team details from about us page for the charity Guts UK (previously known as Core - https://gutscharity.org.uk/about-us/our-team/ Edit changed wording from.contact list to team details
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    Survey: Chronic illness and the impact of the coronavirus pandemic, closes 22nd April 2020

    Yep. I thought I couldn't go back and check as they questions are greyed out once complete, but you can scroll back.
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    Advice from 'experts' on post-viral fatigue following Covid-19 (NHS Oxford Health, Science Media Centre, ...)

    Don't know why they don't just come straight out with it - in their eyes, if you don't recover fully and promptly it's something you have or have not done. They reserve the right to change which action is positive or negative depending on the patient involved and, possibly, wind direction...
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