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If they don’t count you, you don’t exist, no problem, right?

I don’t even want to watch it. Also, environmental approach- geez. If environmental doctors do not even touch the most ‘environmentally-related diseases’, why is it that ‘some’ doctors claim ME and FM are environmental illnesses? It simply stigmatizes these diseases further. When sick with ME...

You guys... she’s gonna get knighted soon :ill: (kidding, sarcastic tone)

I am not bothering to read the paper, but I have a comment on non-pharmacologic treatments of illnesses in general. What is considered non-pharmacologic? Physiotherapy, CBT, alternative medicines, supplements, coping, that sort of thing. Would these modalities be recommended as main treatment of...

Note: these are in vitro tests, and not tested in humans as of yet for the effect they have mentioned, autoimmune disease and oncology.

Significance Epstein–Barr virus (EBV)-associated diseases represent a major cause of morbidity worldwide, accounting for at least 1.5% of the global cancer burden, and contributing to autoimmunity. Viral reactivation from latency is associated with an increased risk of EBV-driven cancers, and...

From my understanding with ME is that for several years the immune system is hyper-activated and you don’t get colds and flus. Until it crashes and then you are susceptible to said cold and flus. i got a really bad flu last year,crhe second time i got such flu in my life. Fevers and rigors for...

CNN has a full segment on this. They have not named her by name, just showed pictures.

Man, that is bat sh*t crazy.

You make an important Point, what does ‘improvement’ mean? Also, what significance does it have research wise? What conclusions can we make? We still do not have an understanding of what ME is. We do not have a biomarker. We are not absolutely certain that the cohort is homogenous. From your...

Eeeek. That stinks. Unfortunately, quacks seems prolific in convincing desperate patients that they will get better, though their wallet will be lighter.

There is more serious adverse events involved with Cyclophosphamide, notably the neutropenia which makes patients vulnerable to all kinds of opportunistic infections, which can be deadly. It is not a casual drug and i know Jonathan that you know that, something that can be difficult to grasp for...

The website link from post 1 does not seem to work. Anybody has access to the correct link to the registry? thanks!

Correct, already on the market, but indicated for other diseases, most of it being cancer. You still have to test safety in the ME population, the ideal dosage, the regimen, the effectiveness, against a placebo, and insuring a representative patient population. Then you need to factor in that...

It take in average 17 years to put a drug on the market- this includes all trial phases, testing for efficacy and safety. These studies are necessary and should be done rigorously. It’s difficult (and expensive) in the best of example to put a drug on the market. Consider level of...

1) Agreed with extreme caution in not seeking this drug outside of clinical trial and without close supervision of a physician knowledgeable with this particular drug. 2) With all chemotherapies, there is a chance of contracting other cancers such as leukemia or lymphomas, not just bladder...

Interesting that such study has been done. My muscle biopsy performed within 3 years of onset showed slow-twitch fibre atrophy, which is type 1 and not type 2 as the quoted study found. Though muscle biopsy is invasive and not that pleasant, in my view we would gain knowledge by studying a...

fine with me :cool:

"Damn patients don't want to get better" (quote from Pace Trial worker) How horrible that all patients with symptoms that affect the quality of their lives are vilified and presumed to be malingering and exaggerating their symptoms.

How about playing music for all the folks getting cover? :rolleyes::rolleyes::rolleyes: Force em in rehab and impose group CBT to learn about unhelpful beliefs and definitely not listening to your body because the message you get from your brain are not always correct :banghead: and yes folks...