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I wonder what the other co-authors feel about this spin.

I appreciate everyone’s comments. Consider the following: HIV is an infectious disease Rheumatoid arthritis is a rheumatologic disease COPD is a pulmonary disease Diabetes in an endocrine (or metabolic)disease Parkinson’s disease is a neurological illness Tuberculosis is an infectious disease...

i have remained broad because the proponents of this terminology are not being so precise about what environmental illness constitutes other than the strong desire to call me, fm and mcs as being environmental illness or environmentally-linked illness. The same group is not willing to actually...

There is a report in the making in Ontario about ‘environmentally-linked’ diseases for which they only include ME, Fibromyalgia and environmental sensitivity and multiple-chemical sensitivities. So I am polling the members here as of whether you believe ME is primarily an environmental illness...

Government, particularly the uk government has targeted the chronically ill especially in the last few years.

Why is it so difficult? :banghead:

Congratulations @Gary Burgess, best wishes to both of you!

We are at 71% rigt now... can we reach 75% by the end of the day? :hug:

I donated once more to Dr Tuller’s fund following this story. I encourage everyone to donate, however small amount you can afford.

It starts like this: Read more here: http://www.virology.ws/2018/04/16/trial-by-error-guest-post-crowdfunding-david-tuller-is-not-a-conflict-of-interest/

But it is important to publish negative studies. This is part of the scientific process. They tested a theory, and it’s been disproven. Now can all move on. It reminds me of the XMRV saga. Retrovirologists were curious. They tested that hypothesis and it didn’t work out. (I will leave the dirty...

Look, there will always be volunteers to try out things. There is value in performing a double blinded clinical trial, the value being knowing whether it is effective and treatment is safe, or whether it is ineffective. Now we know. And for the zealous doctors actually suggesting Ritalin, you...

The placebo response is a powerful thing... especially when there are no biomarkers to begin with. Uh huh. Herb and spices. Hasn’t cured anybody with any kind of diseases. That is why medicine and naturopathy don’t mix. And we already know that meditation, yoga and even ‘the good kind of CBT’...

Nutrition IS taught in grade school and high school. Good nutrition is definitely affected if you have no money to buy nutritious food, or if you are physically unable to prepare food for various reasons. You need also to note that people eating burgers and fries can be healthy and thriving...

Thank you @Marky. These things take so much time. Nothing moves fast.

Personally dietary changes has done nothing for my ME and I am still sick, but it’s just not me there are others too. People who have attempted dietary approaches and claim they have improved still frequent the forums and for the most part still experience symptoms and are still sick. So are the...

I have read the article. And this made me think. Ever wonder why the psychiatrists (and the insurance companies) (and the NHS) so desperately want to keep ME in the psych department?

In a past life i was registered nurse in a past life, working in autologous stem cell transplants for patients with lymphoma and multiple myeloma. This is not the same procedure as Cheney by the way. stem cell transplants involves stimulating the bone marrow followed by harvest of the stem...

Quick question, when is the Cyclophosphamide paper due? It was my understanding it was due early 2018... Thank you. Looking forward to the paper.

Tinnitus is almost constant but definitely more pronounced as soon as i exert myself. In fact this is an indicator for me to ‘thread carefully’ or to retreat back to bed. It is one of the symptoms i never mention to my doctor or any doctor at all because i worry they will all say ‘all in your...