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Further details about David Noakes: https://en.m.wikipedia.org/wiki/David_Noakes Lastly, a Washington post article about Bradstreet and Noakes...

No I haven’t. i need a prescriber and i haven’t found anyone to do it. But i am not sure why you are bringing up LDN? Is that what you were planning to get?

Here we are dealing with one of the most neglected disease, the least funded, and no medical specialty wants to take us on. It means that there are just a few pockets of doctors around the world who are knowledgeable enough to offer certain treatments, but none ofthem have been tested in a large...

Nothing to say? This Gc-Maf has been the subject of hundreds of pages in other forums. Patients claim it helped themDid they know it was an unlicensed substance? I wonder whether Dr E and Dr D still recommends it these days? The charges are very serious and Noakes might well have to serve...

Save your money @Dechi. Not worth it. (Both options)

GcMAF: Unlicensed HIV drug 'nearly killed patient' https://www.bbc.com/news/world-europe-guernsey-46308221 Up to 75% of patients who reported taking an unlicensed drug marketed as a cure for autism, HIV and cancer, suffered side effects, a court heard. One of 17 customers wrote she "almost...

Great decision by the Norwegian ME Association. It’s so disconcerting when countries such as Norway wants to push the psycho agenda.it will make them look really bad when we have papers publishing about biomarkers and hopefully it is not far out in the future.

One soldier in 3 from the Gulf War is still afflicted with Gulf War Illness. Certainly the Department of Defense has been helpful in providing research funding.

Nova Southeastern University Receives $8.5 Million Grant from Department of Defense for Second Phase of Gulf War Illness Research...

In celcius normal body temperature is between 36.0 and 37.5 degrees. It is a wide range and it depends on many variables including where you measure from. https://en.m.wikipedia.org/wiki/Human_body_temperature

And then, NHS would prefer to fund alternative medicine/ therapies because they cost much less than real medicine and real research that develops evidence-based treatments. And then there is a demand for alternative treatments, from patients believing that natural treatments are better and...

Mistletoe therapy? Really? :rofl::laugh::rolleyes::D

I did a grip strength test early into my disease, when i had a functional assessement done. While i do not remember the numbers associated with my grip strength, i still remember the deep brain pain it gave me after every attempts to grip as hard as i could. This test may not be very specific...

Thank you for venting. As a ME expert, and she has been ‘it’ in NZ for a long time now, she had the responsibility to shield the patients from the BS. She did not do that today. She was part of the BS.

Someone should have reminded her of the type A personality as it relates to stomach ulcers. She is probably old enough to remember.

@Hutan ...speechless... this is a wtf moment.

and actually I cannot fake being right handed, it feels so wrong :rolleyes:

Not nevessarily, as long as you can make the appointments, in this case I believe they are 2different appointments, which might mean 2 different trips. (And they do not usually cover travel expenses)

Awww, I would have loved to cycle from Alaska to Terra del Fuego. ;) These days my only prospect of cycling would be in the form of a 2 days CPET for research, but i would need to seriously think about it. Congratulations Michael Strasser!

For me it’s quite simple. I need 2.5 tablets of 7.5 mg per tablet to sleep each night. It’s been like that for a few years now. Going back down to 2 tablets means that my sleep is not as long and not as effective. Thankfully my GP prescribe this for me. If for any reason I skip a dose)...