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Who knows what she meant? If she does not validate her observations through scientific publications, her experience from seeing patients remains hear say. We now know patients deal with tremendous amount of neuroinfoammation. Depending on the state they’re on (rested, crashed, over-stimulated...

Biomarkers. We need biomarkers. :banghead::nerd::ill:

Yep. Everything. Just like us.

Moving from the present to the future of Postural Tachycardia Syndrome – What we need This is sort of related to ME as many, many of us have POTS as comorbidity. This article discusses the needs of the disease and as simple as this artile is, it is also very relevant for ME. In fact you could...

Thank you for coming and hanging out with us @Amy Proal and thank you so very much for your work. Your paper was dense and referring to good papers which showed that you did your homework! My brain is totally out of it tonight but i noted from your past work made comments about Vitamin D that...

I notice with amusement that this thread has been placed in ‘alternative therapies’ forum. But countries with socialized medicine want to mainstream this!

Holistic models of treating chronic illness are used INSTEAD of care in the context of socialized health care system. The governments call this health care and shouldn’t we be happy? The mere action of driving to group therapy, being exposed to noise, having to sit and listen to coping...

@Dechi it does’t need to get complicated Report your symptoms. If you are afraid to forget or to misexplain, then write it down. Take a picture of the position you sleep in. Take note of your own level of pain from 0 to 10. Your dr’s job will be to do a physical exam, and determine whether the...

In my case i assume deconditioning plays a factor. It would be the main issue, as you cannot assume you keep your function if you do not maintain normal activities. However. I know of others who have abnormal weakness in their arms, and deconditioning cannot explain this. It is why it is so...

best thing to do, @Dechi best of luck and if you feel inclined to do so, by all means let us know what the verdict is.

It could be several things @Dechi, it might be best to have a dr taking a look at it. Tendonitis, thoracic outlet syndrome, pinched nerve, or circulatory problem. Are you left handed too? i find that my dominant hand/arm is quite sore from doing trivial things and the tendon insertions are quote...

Thank you so very much for your hard work @dave30th

Thank you @Russell Fleming

1CellBio and the Open Medicine Institute Join Forces to Demonstrate Power of Single-Cell RNA Sequencing in Precision Medicine Applications https://www.businesswire.com/news/home/20181113005156/en/1CellBio-Open-Medicine-Institute-Join-Forces-Demonstrate Exerpt

hi @BeautifulDay, could you please tell us who you are, a scientist, a patient or both, and whether you have a university degree in the field relevant to your book?

This is a very small study... personally my ESR has always been on the higher-normal side and even going around 38 (normal 0-20). My family dr has then decided it was best to stop testing ESR.... problem solved! (P.S. Documented EBV+ onset, diagnosis confirmed by 3 well known experts, still...

It is really sad that Canadian patients cannot be offered basic treatments. The majority of GP’s would only know to offer anti-depressants or stimulants. They have no clue at all. :( This has to change.

Ah, but you omitted to mention the multiple retractions on GC-Maf scientific papers. It is red flags after red flags. That article is not good news for the Gc-MAf proponents. There are no clinical trials results, and apart from the paper which you have submitted, here is nothing else showing on...

You did not specify in your original post, you said ‘drugs commonly used with ME’.

This thread is about the fact that David Noakes has plead guilty to manufacturing an unlicensed substance, and money laundering amongst others. I am not sure who manufactures MAF 878, but the fact that it costs 100$ per month in order to access a substance that has not as far as i am aware, been...