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  1. M

    Open Medicine Foundation (OMF)

    From what I remember, the blood that was drawn and samples that were obtained have been preserved (frozen) so they could all be batch processed using the best tests available, and because of that they were waiting for the right tests to be developed. The second reason that could explain the...
  2. M

    Dr Byron Hyde - Canada

    I can’t believe he is getting air time as he has lost his license to practice medicine. https://doctors.cpso.on.ca/DoctorDetails/Byron-Marshall-Hyde/0016579-21364
  3. M

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    We must not lose hope @Peter . i am 12 years in.
  4. M

    A Qualitative Study of the Views of Patients With [MUS] on The BodyMind Approach®: Employing Embodied Methods and Arts.., 2020, Payne and Brooks

    If i get sick, i want to see a doctor. I do not want to be in a circle talking about my emotion and psycho-babble stuff. I do not want to have to meditate each and every time there is a meeting and i do not want to hear about how someone felt liberated after dancing in last week’s session. I do...
  5. M

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    What is different though is that it is happening to health care professionals. Physicians, researchers, nurses and first responders. It has also happened to newscasters (Cuomo) and journalists. They have already demanded research for Long Covid. These people will continue speaking up. They are...
  6. M

    Risks for Developing ME/CFS in College Students Following Infectious Mononucleosis: A Prospective Cohort Study, 2020, Jason et al

    Perhaps, but for a young adult, anxiety and depression would be totally appropriate if you had an infection and did not recover, could not possibly go dancing and socializing at night, and had trouble studying- the prolonged illness state is unexpected especially at this stage of their lives...
  7. M

    A Qualitative Study of the Views of Patients With [MUS] on The BodyMind Approach®: Employing Embodied Methods and Arts.., 2020, Payne and Brooks

    Ok I have more to say. This part is particularly cruel and insensitive: and then this indicates where they are going with this...
  8. M

    A Qualitative Study of the Views of Patients With [MUS] on The BodyMind Approach®: Employing Embodied Methods and Arts.., 2020, Payne and Brooks

    I have no words. Edit to add: 1) interestingly her editors and reviewers are located in Israel. Does that mean anything? 2)Helen Payne published this last year: Medically Unexplained Symptoms and Attachment Theory: The BodyMind Approach This article discusses how The BodyMind...
  9. M

    Food Implications in Central Sensitization Syndromes, 2020, Aguilar-Aguilar

    “Central sensitization syndromes (CSSs) or functional somatic syndromes include different chronic and acquired disorders related to an unknown etiology, such as fibromyalgia (FM), chronic fatigue syndrome (CFS), multiple chemical sensitivity (MCS) and irritable bowel syndrome (IBS).” Cannot get...
  10. M

    Aripiprazole - Abilify

    it is difficult @Andy i am not sure i can give much detail here, but i agree with you. My response to Jonathan above explains a bit but it’s complicated.
  11. M

    Aripiprazole - Abilify

    I am not one who accept this, however i am being perceived as trouble maker by suggesting it is time we get clinical trials. Of course it will take time to set trials, and of course it will need funding. Bureaucracy and push back from the supplier of service (admin) will make this difficult. And...
  12. M

    Aripiprazole - Abilify

    Agreed.
  13. M

    Aripiprazole - Abilify

    Here’s the answer you’d get: “we don’t have the money for that. No funding. Clinical trials are very complicated. It would take too long.” Chances are, these physicians do not have the relevant training and support to conduct clinical trials, for many reasons, including the fact that they never...
  14. M

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Totally agree with you, and in my view it also means that everybody (the counsellor, the nurse, the naturopath, the physio and sometimes the doctor) decide what needs to be done, and it's devastating. It’s basically a relinquishment of responsibilities, either conscious or not. This model of...
  15. M

    Research news from Bhupesh Prusty

    Can i feel concerned about this tweet?
  16. M

    Research news from Bhupesh Prusty

    Well, for the end of 2020 i will take the optimism and (metaphorically) run with it. It’s been a bad year and we need very good news soon...
  17. M

    Measuring improvement and deterioration in ME/CFS (2020) Kirke

    It’s on Sci-Hub, well done @Karen Kirke and thank you!
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