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Okay. BTW, I copied your patented S4ME logo from your signature, but altered it slightly. So I hope you don’t threaten to sue me for patent infringement :emoji_smile: :emoji_money_mouth:

You are free to hit me on the head with a foam bat if things don’t pan out. :rofl:

I disagree, and I said a subset of PwME. And yes, it’s a start and further refinements may take a few more years to be more precise.

Guess we will have to wait 12 months to see if my prediction is correct ;) Social media has its place, but may not be the vehicle used by everyone in the world that has ME knowledge.

I understand this. My views were not an attack on Jen or Omar, who are both incredible and amazing. It’s just that people who don’t have ME, or know much about it, may ignorantly assume that all PwME have support at home. They may assume we just need more research dollars, reduced stigma, while...

@Sly Saint Do we have a thread to post personal reviews of Unrest?

After watching Unrest, it was crystal clear to me that I experienced everything Jen did. This is what made it almost unbearable to watch, because it was too real, and a phase of my life I would rather forget. But I survived it all alone, I did not have an “Omar”, as Jen was fortunate to partner...

I vote that the first biomarker, to identify a subgroup, will originate from a simple genetic test. Over time, it will grow into more definitive testing, to better fine tune which appropriate treatments to prescribe. If I was to predict a timeline, then up to one year to identify the simple...

I don’t really care how something is labeled or perceived, if a treatment works, then Bravo! If it fails, it’s gets thrown in the garbage. Regarding people making stupid remarks, unless I lock myself in my home, and have no contact with humans, they will continue. My dog looks at me like I am...

I watched Dr Oz on television for a few years, and also heard him speak. Depending on who else he brings on his show, to offer an opposing viewpoint, this could be a big win for ME awareness in the US. Now I can tell my family and friends to watch Dr Oz in December so they can learn more about...

Please leave your posts as-is. No offense was taken. Thanks for clarifying :emoji_koala:

@Trish I am simply responding to the first post on this thread. Do you have an issue with that? “Anything else? Opinions on progress?? Bottom line is we want treatment.” I have no plans, at this time to talk about the details of the treatments, nor the details of my doctors research. As we...

Eli Lilly and Company https://www.lilly.com/ That’s a great suggestion.

There ARE treatments, but there is no peer reviewed research papers or FDA drug trials to adequately prove it. So I now basically shut it in silence, because when I posted on the “other forum”, no one believed me. I am a highly intelligent logical person, well educated, that had a stellar...

It’s a beautiful letter, bravo!!! :emoji_clap: Just one tiny comment for the next round; Dr Naviaux is from San Diego, CA, USA. Edited to add: And bluntly, it seems as though you are a salmon trying to leap and swim up a waterfall. And there are hungry bears sitting at the top of the waterfall...

I call it the ME Shuffle :emoji_wink:

Raeka is the communications director of the Stanford Genome Technology Center

I would much rather have something like this (that adults use). https://suitabletech.com/products/beam-pro That little white “toy” looks more like the pillsbury dough boy, and seems just as useless.

Huffington Post A Movie David Goes Against a Goliath of a Disease https://www.huffingtonpost.com/entry/a-movie-david-goes-against-a-goliath-of-a-disease_us_5a0f6030e4b023121e0e92a5

This is what Elon Musk learned about social media; he has 15M Twitter followers. (Maybe Coyne could take note that after mistakes are made, lessons can be learned). "I find one learns lessons in the course of life," he begins with a wry half-smile. "And one lesson I've learned is, don't tweet...