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It got so common it became a cliche. I was very sick with X. My family and friends suggested I tried Y but I did not think it would do any good. After a while I became so I bad I decided to try it. It worked so well I am now completely recovered so I now sell Y so that everyone with severe X can...

Abdominal migraine is only functional if you have already decided that migraine is a functional disorder. This paper is meaningless. It seems to be saying we sorted these kids according to our criteria and discovered that our criteria fit the way they were sorted. If there is anything else it...

Heart problems and so on happen in diabetes as a result of nerve damage caused by years of disease. It makes sense that it is the same in MS. The same thing may happen in ME.

FND proponents are taking Freudian theory and by cloaking it in a mask of scientific detail they make them sound erudite and grounded in proven biology. When you try to work out what they are saying to refute it there is nothing there beyond "the emotions did it" It is like talking about...

I've often thought that people with ME would make good test subjects for how the brain functions the same way they use stroke victims. My memory is dreadful but the way it has deficits gives an insight into how memories are stored. Say I have decide to buy something from a catalogue. I will...

That will be people with functional covid :)

Another "expert" who has got on in life by squashing helpless people. He helped mould the DWP into the threat to sick people that it is today and disseminated BPS thinking to politicians. Ideology over knowledge and compassion but now it has happened to him it is a different story. All the...

B12 injections are prescribed by neurologists to help fatigue in MS. A lot of them feel it helps but it involves going to the doctor's once a week so the MS magazines had an article about sublingual being just as good and easier to use. Years ago, one of the US ME doctors taught his patients to...

The UK doesn't use aluminium adjuvants, at least it didn't.

No, that was not what happened. The labs were able to find XMRV in their control samples when they used a relatively large sample and one where they knew the exact genome. This is not relevant to real life as retroviruses are rarely an exact genetic match. HIV for instance comes in many...

I can't remember the exact details, but a retired doctor contacted Dr Bell and said that he had worked years before with patients who had low blood volume and their symptoms were very similar to how he described ME. They did some work together and found that people with ME did indeed have low...

This lays out the problem exactly. What message will his readers take from the article of they know nothing of the background. They will conclude that people with ME are still sick because they are not willing to do what they need to get better. This is the idea that has been spread about us and...

ME may be caused by other viruses and bacteria, but enterovirus is one of them and that aspect is dreadfully under researched compared with herpesviruses.

What we call air hunger is one of those symptoms which is not discussed often enough. It does not happen all the time so it would be hard to research which is a problem for a lot of the distressing things which happen. I don't even know if what I experience is the same as other people call air...

Quite simply, a lot of the current problems in medicine could be avoided if psychological treatments had to meet the same standards as physical ones. In cases where it is not possible to have objective outcomes it must be acknowledged that this means the evidence is of lower quality so use of...

On an afternoon magazine show in the 90s, one BPS proponent, Sittaford I think his name was, was being dreadful to phone in callers. When it was his turn to talk he sad that another guest, an airline pilot, has been chatting to him in the green room and said that in his country, Czechoslovakia...

Oh, I like the name Post Infectious Disease States, especially as it sounds nice and biomedical with no moral judgement so it would definitely help our image problem. :) As usual, we have to be aware of how it can be used against us. I hate that we have to approach medicine the same way you...

After the 1990s ME had become CFS which had a much wider definition. It was also so unspecific that it was possible to cherry pick patients so the negative results found by the psychologists at the Nijmegen Group in the Netherlands is not surprising. The whole sociology, if that is the right...

It is possible that mothers with problems have babies with colic, though a baby with colic could just as easily be the cause of the mother's problems! But how on earth can they say that the babies have functional gastrointestinal disorders? It is the type of research that closes doors on...

I had really bad POTS and dysautonimia a few years back when the weather was really hot. I was surprised when it eased up as the weather became cooler. The next year's hot weather made it worse again but I went to great lengths to keep cool and that has kept it from being so bad again.