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  1. Mithriel

    Huff Post: 'I Sometimes Feel Defeated By My Disability – And That's Okay', 2019, Pippa Stacey

    I can't stand this "positive outlook" push for the chronically ill. I go to an MS therapy centre and about a month ago they got in lots of stuff about a (commercial) programme called "Overcoming MS". The title alone makes me want tp scream. You can't overcome MS!!! It is just a short step from...
  2. Mithriel

    Treating or preventing Multiple Sclerosis with lifestyle changes

    Initial post and some subsequent posts copied or moved from this thread. I can't stand this "positive outlook" push for the chronically ill. I go to an MS therapy centre and about a month ago they got in lots of stuff about a (commercial) programme called "Overcoming MS". The title alone makes...
  3. Mithriel

    Comments Simon Wessely revisits some of his early work on chronic fatigue syndrome, journal article (2012) Wessely

    I do know that neurologists are looked on as doctors who couldn't quite cut it as neurosurgeons. Years ago I read about an activist who was sitting next to SW at a conference. He asked her "Why do they hate me?" and she answered "Simon, do you ever listen to yourself?"
  4. Mithriel

    SMILE trial data to be released

    Thank you for your kind words. I wasn't really ill just not right with strange neurological symptoms like not being able to talk sometimes that I hid because I could not explain them. Lots of bits I recognize as ME now, PEM and fatiguability. They wanted to think I was well because they worried...
  5. Mithriel

    United Kingdom: Science Media Centre (including Fiona Fox)

    The thing I read said it was about destroying society to build it again better but it was all too complicated for me to follow. Just mentioned it because we often try to understand the things they do but we are not in possession of all the facts. The one thing we do know is common sense has...
  6. Mithriel

    United Kingdom: Science Media Centre (including Fiona Fox)

    I am not well enough to go into it just now but she was part of a group of I think marxists, who went on to have the journal "spiked" Their goal was to get themselves into positions of influence. It is not about truth, it is about agenda.
  7. Mithriel

    SMILE trial data to be released

    I may have said it before on this thread but Dr Bell said that his teenage patients would downplay their symptoms to please their parents. At 14 if I said I felt ill there were consequences Sometimes I was not believed. Five minutes of weeding in a hot sun and wanting to go inside and lie...
  8. Mithriel

    Personality and social attitudes in Chronic Fatigue Syndrome (1999) Wood and Wessely.

    Oh the good old days when they still used controls with other illnesses. They soon dropped that when they discovered that people with ME were not different from other illnesses. I can't remember the paper and am to tired to look for it, sorry, but in it they asked whether symptoms could be...
  9. Mithriel

    Dysbiotic microbiota in autistic children and their mothers: persistence of fungal & bacterial wall-deficient L-form variants in blood, 2019, Markova

    I have seen it go mother - son - grandchild too. I have always though autism was due to the structure of the brain something genetic and built in like blue eyes/ brown eyes. The expression of it, though, may have environmental factors I suppose. Many women are realising they are autistic and...
  10. Mithriel

    Forward-ME Group Minutes - 10th July 2019

    It is very strange that doctors and carers think like this. Many people with MS work, it doesn't mean that the ones who are helpless are pretending. It is the same with cancer, heart disease, rheumatoid arthritis, diabetes, autism, on and on. Most, if not all diseases have mild cases and severe...
  11. Mithriel

    SMILE patient cohorts

    Why Dreampop, you are almost as suspicious as me :)
  12. Mithriel

    Tom Ingman (Research Student) - Chalders protege? bPS Nextgen

    Well, when I said something like this to a psychiatrist he told me my subconscious did not want to work :) Things are much more hopeful now with a new generation investigating the biology of ME and advances in biochemistry and medical physics. I hope your son will benefit from that.
  13. Mithriel

    Podcast: Sam Harris - The Plague Years (with Matt McCarthy)

    I studied microbiology at university in 1972 and it was obvious that antibiotics were only a short term solution because of resistance but they worked so well (along with vaccination) that people forgot how bad infections could be so there was no sense of urgency. People were already forgetting...
  14. Mithriel

    Comment: Psychiatry’s stance towards scientifically implausible therapies: are we losing ground?, 2019, Rosen et al

    I am not good at getting my head round statistics so find it difficult to explain what I mean but significance is just a consensus figure which means the result is not likely to be random but if you look at a lot of outcomes you could get a figure that looks significant just by chance! That is...
  15. Mithriel

    Adrenergic Autoantibody‐Induced Postural Tachycardia Syndrome in Rabbits, 2019, Li et al

    My husband developed a thyroid storm after a bad flu. It looked as if the flu caused it but when we thought about it he had had symptoms for a good while before but they were not severe enough to recognize at the time. There are a few people in his family with overactive thyroid so we should...
  16. Mithriel

    Article in Bella magazine - 'Please Believe ME' 26 Sep 2019

    The BPS people who declared ME was now CFS last century and brought in the idea of deconditioning, CBT and GET also declared that there was one spectrum of illness which went from being more tired than you wanted to be to bedbound and tube fed in a darkened room. There was only one illness whose...
  17. Mithriel

    Multi-omics analysis identifies mitochondrial pathways associated with anxiety-related behavior, 2019, Hovatta et al

    Basic biology is highly conserved so most of what we know about the behaviour of genes has come from animal studies, including fruit flies and planarian worms so it may have relevance to humans. As it stands, psychology treats anxiety as an emotional problem - healthy stress system not working...
  18. Mithriel

    RoB 2: a revised tool for assessing risk of bias in randomised trials (2019) Sterne et al.

    They struggles to get patients to enter the trial which is why they changed the entry score from 60 to 65 and put out word to doctors that people with fibro could be referred. So people who did not want to do GET never went near the trial in the first place.
  19. Mithriel

    Childhood traumatization is associated with differences in TRPA1 promoter methylation in [..] multisomatoform disorder [..], 2019, Achenbach et al

    So childhood trauma does not lead to more pain sensitivity but being ill does. Yet they have manage to bend these results to say that childhood trauma leads to functional somatic syndromes! :banghead::banghead::banghead:
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