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Thanks for clarifying that. Though it seems worse that the people pushing FND actually want it to be considered primarily neurological (which it should be because the primary symptoms and signs are neurological) but the ICD 11 want it called dissociative for strange reasons but then insist...

I can just about believe that CBT could help manage lifestyles so reduce the impact on someone's life. My eye problems are not curable but I have reduced the distress of living with them by wearing special glasses and things but also by keeping a record of attacks so that I could see how often...

Yes, I did find it strange that they talk about perceptions and then continually use the term VD. Has it been long enough that the public don't think VD means venereal disease any more after decades when it did? It makes me think they don't know much.

Wait a minute, am I reading this right? They treated acute FND with thrombolysis and got a good result? Then they speculate that demographic differences may be why these patients have a good outcome when chronic FND patients don't have a good outcome. :banghead::banghead::banghead:

Wow!

They keep ignoring the epidemics because it is difficult to call them psychological! They tried mass hysteria but one of the reasons they gave that it was mass hysteria was that many of the victims were women and women are likely to get hysteria. Let them try that nowadays!

Did one clinic not say that there was no point looking for harms because they would not be doing the treatment if it could harm anyone :banghead::banghead::banghead:

I'm not sure. It was done by measuring the width of blood vessels with a laser. They dropped some acetylcholine on my arm and it made the blood vessels dilate. In healthy controls the acetylcholine is mopped up in some way (like the usual feedback mechanisms that work in biology) but mine...

I was part of a study that found that acetylcholine was cleared more slowly by people with ME. Because the test could not be influenced, the technician was happy to talk about my results. It is the only positive test I have had for ME :)

When I read about children with ME they are all very sick and I wonder about the ones like me. I was 14 and never missed a day of school until my last year, I worked in Woolworth's on a Saturday, went out Saturday night, walked for miles as I couldn't afford transport, not to mention scrubbing...

Snowdrop, I meant the people doing the ICD-11 who are refusing to connect FND to the neurology section So they are saying that if there is no positive evidence now there never will be. It is a very definite statement about something that is still nebulous. The neurological mechanism or...

Pushing FND from a neurological category into mental health is a ridiculous thing to do when you are dealing with neurological signs and symptoms. Without saying it specifically they are assuming that medically unexplained means it can never be explained within an organic framework. So what we...

That is interesting, Cheshire and highlights another problem with their theories" I did not interpret the phrase the way you have. Like you I hate false certitudes. Over and over, in all aspects of science, I have seen things that were said to be definitely true turn out to be wrong. I took it...

I have been thinking about how to describe my PEM or give a description of what happens when I exert myself. We just do not have the right vocabulary; every time you try to put it into words it sounds like something different that people with other diseases might get. I have decided that anyone...

I don't think it is worth having a poll. My GP is happy enough for me to call what I have ME and I was diagnosed with that in 1984 by a neurologist but the computer code in their system brings up Chronic Fatigue Syndrome as the name. The average GPs probably doesn't care much about the name and...

I have been ill for many, many years so I have followed the life of a lot of people. ME is obviously a disease where energy production is broken for whatever reason and I don't that ever goes away. With all the unknown factors involved how much free energy you have changes so if you have more...

Research into microbes dropped after the 70s once antibiotics became commonplace. We have lost all sense of living in a cloud of infections. Hygiene ideas are abysmal compared to when I was a child. We are much cleaner in a lot of ways but it doesn't get treated as life or death anymore. PCR...

:banghead::banghead::banghead: not enough energy to point out the many flaws in this. It didn't highlight the effectiveness, it only suggested that it may have an effect that someone may like to study.

I am not convinced that placebos help with pain. I am friends with quite a few people who have done trials and they match what I felt answering questions. When they are asked if the treatment worked they say "a little bit" because no one wants to squash some thing that might be useful. This is...

I think this is a terminology problem, not that the bpsers have got it right, they see depression everywhere. Major depression with apathy, lack of emotion, all that suite of horrible symptoms is not a natural response to pain and disabilty. Most people get angry, upset, grieving, frightened...