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Hitting the wall is when runners suddenly and without warning can no longer move, though the term may have been loosened in speech over the years. Some runners never experience it. It has always sounded very like the sudden stops I have which feel as if I have run out of battery. A few minutes...

The risk from diabetes is that blood sugars go wonky when you are ill. The liver releases stuff so you have plenty of sugar to fight infection. Then there is the problem of not feeling like eating and so on. All this can lead to an accumulation of ketones which is a medical emergency. So the...

When I was first learning about ME, about 1984 after becoming ill in 1968, one of the symptoms they spoke about was feeling bad when standing still. This had always been a problem for me and I often walked rather than stand waiting for a bus. Both had payback but the latter gave less. In recent...

It is so frustrating. I would like the information in those 2 videos but one is 33 minutes and the other is 24 and there is no way I can manage that. I don't know if I am in the minority, but if I read something I can take my time and go back over bits to increase how much I understand with an...

They assume a direction of causality, but it is just as possible that people diagnosed with FSS are unhappy with life because they have an idiot for a doctor.

:banghead::banghead::banghead: Here maybe all this banging my head against walls is causing my neurological problems and I do need some behavioural therapy!!!

At least it is an acknowledgement that all the ethical protections are ignored when dealing with ME patients.

For many years ME was associated with enteroviruses but no one seems to acknowledge that nowadays. They may not be the only cause but neglecting that aspect could be why we don't make much progress. It is like residents complaining about a road junction and the authorities looking at the wrong...

I can't describe how I feel at maximum fatigue for the simple reason that I know it is passing when I start to think again. I don't think I am unconscious, but I am not consciously aware of my surroundings. It is not particularly unpleasant for the same reason. Of course, times of maximum pain...

I think it is just as likely, if not more, that children who have a lot of infections are more likely to go on to develop ME. Having lots of infections may indicate that they are harder hit by viruses.

ADD is caused by the "brake" part of the brain being underactive. Stimulating that part slows things down enough that attention can be better controlled. There is no doubt that that ADHD is overdiagnosed. There is too much attention paid to the hyperactivity component; like us and fatigue...

It is not conspiracy theory to believe that a lot of things go on behind the scenes and are never publicised. Before my eyes went wonky I read the BBC History Magazine. It was amazing how many things that were headlined in the papers of the time as lies and malicious rumour turned out to be...

There has never been any research that indicates long term antibiotic use reduces fatigue. So one useless treatment has side effects so another useless treatment is the best option :banghead::banghead::banghead:

Beautifully succinct. It describes our predicament in a nice soundbite which is what we need. I will keep a copy of that if it is OK.

Patients go to a neurology clinic because they are experiencing neurological symptoms. The doctor finds that objective signs do not fit disease categories so they are given a diagnosis of FND The only outcome measure for any treatments offered is that the original presenting symptoms (all the...

This is Fink proving that he is cleverer and his ideas on medicine are superior to the other BPSers. It has nothing to do with what is best for patients or scientific research or the search for truth.

I do not find that my emotions have any bearing on my ME symptoms. In 52 year of illness there have been lots of emotions but troubled times only affect my ME if they involve lots of movement. The adrenalin of a crisis actually lessens ME symptoms though I pay for it later.

I may be misunderstanding what you mean. I fully agree that our behaviour is a valid response to being sick. If sickness behaviour is valid and a good thing for acute illness I do not see at what point it stops being a good thing if the disease continues for a long time. It must remain...

I can't remember if I read it or imagined it, but I thought that lax and deconditioned muscles could give hypermobility. Despite being unable to do very much I was able to touch the floor with my hands with ease. I stopped doing it because I decided it was more a sign of damaged muscle than...

It makes sense to me. One of the big questions with ME over the years is how can we be so sick yet no one can find anything wrong when they do standard tests. When someone has cancer whole swathes of biochemistry go out of kilter for instance. This and other work seems to show that our...