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My husband had a post viral fatigue syndrome after a bad flu when he was forced back to work 3 days after being bedridden with a high fever because we had an arrogant GP who would not give him a sick line. He got thin, pale, exhausted for almost a year but we never ever considered it was the...

I think I see what you mean. We will never persuade the likes of Wessely but persuasive, conclusive evidence may let us go round them. It might be worthwhile doing a well publicised large scale trial as what we have is things like the CPET trials where the results do not match deconditioning...

Sadly, Barry, we have already proved that ME is not deconditioning. The PACE trial showed it was not deconditioning because there was no improvement on the objective measures. Right at the beginning when they first suggested deconditioning was the problem all they had to do was look at patients...

Aaah Candida overgrowth, a favourite theory when I was first diagnosed. It brings a nostalgic tear to the eye.

It bugs me that the BBC says UK when it was only going to be used in England. On a par with their ME work.

TATT was distinguished from CFS to begin with it has only gradually merged with it as CFS has become chronic fatigue then simply the symptom of fatigue.

My husband fears my shakes more than I do as I have given him a black eye on occasion!

In the UK there was a group of doctors and researchers who had specialised in ME for many years, there was a broad concensus of what the disease was, epidemic and sporadic cases with enteroviral onset (and possibly EBV) with an abnormal response to exercise in that all symptoms became worse with...

They should have had a control group with a demonstrable disease such as type 1 diabetes or cancer. I know that in type 1 diabetes you are automatically aware of your bodily sensations so you get an early warning of hypo or hyperglycaemia. Idiotic research where lack of the proper controls make...

:banghead::banghead::banghead:

Some thoughts. When you stand up, blood can only reach the brain against gravity by using active processes. If we have low levels of ATP this might not be very efficient in us. The blood is squeezed by the leg muscles and our muscles are not very efficient so they won't work so well...

Basic biology is very conserved in mammals (and all eukaryotes) so research which tells us how normal biological functions work could lead to benefits finding what is wrong in ME, but animal models of disease are not very useful nowadays. They worked out what hormones are and how they function...

ME was described by Dr Melvin Ramsay as a disease where exercise made symptoms worse. He said there was "an abnormal response to exercise". When the BPS faction came from nowhere, redefined it as Chronic fatigue Syndrome and declared that the best treatment was exercise, he said that if someone...

The poor guy who died from fatal familial insomnia was thought to have MS at first. He had neurological degeneration. Not sure how that goes with this.

The definitions are interesting. My muscles hurt when I have overused them, usually the next day. It is a deep burning pain that is usually affecting some part of my body but which part and how severe depends on what I have been doing. So I do not have chronic pain in my arms, just severe pain...

I am not completely against CBT. I have an autistic grandson with severe social anxiety, he can't interact with anyone except 3 of us. He was given CBT as he worsened as a teenager. They were very kind and he was given reassurance so he accepted his condition instead of feeling a failure...

from the German article. It has been known since 1934 :banghead::banghead::banghead:

They treat MUS as phobias, but if someone is being treated for a spider phobia is it sufficient for them to say thye aren't frightened any more or does the therapist want them to be able to look at a picture without panicking? The endpoint must surely be to not panic when they see a spider not...

Who sees a doctor for neurological symptoms in less than 30 days?

Many years ago now, some MS patients I knew started taking raspberry extract as it was meant to strengthen the blood brain barrier. It was explained to me that the immune cells should not be able to breach the barrier to damage the myelin. It seemed to me then and now that the fact the barrier...