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If these patients did not have a history of a positive infection in the recent past would it now be trumpeted that there was no evidence longcovid was caused by a virus so it must be mass hysteria? Because everyone knows there is no viral cause to ME because they did not manage to detect any...

Mental exertion makes the cognitive parts of my brain shut down. I can't think or process what I see, my speech goes and it is difficult to move immediately. It is different from physically doing too much but in my experience it is the same processes. If I use my legs too much, I get pain there...

Thank you, that is what I mean by saying that your experience is a resource for us. One of the reasons we are stuck with fatigue is that the "experts" said that most people agreed they experienced fatigue (can't remember where) but they did not ask anyone if it was the most serious or...

The problem is that in ME there are no physicians involved who have seen about 500 individual cases. There are some, but their experience is dismissed by the "experts" who talk about another disease entirely even if they call it ME. I have never recognised myself or my experience in any of the...

There was always a preponderance of health professionals who got ME. It was often repeated that healthcare workers and school staff were common victims because they were faced with infections so often. It made no difference to how ME was viewed. There may be a difference now in that it was...

Freud's theories are intertwined with neurology. If anything, it is slowly emerging from those rather than sinking into them. Just a few years ago there was a report in the New Scientist about a conference on sleep. The reporter was shocked that there was a lecture on the meaning of dreams, but...

I have no evidence to back up my ideas just the feeling I got as I grew up. The introduction of vaccines was literally life changing. There were over 3000 children killed by diphtheria in the years before the vaccine was introduced. Polio was devastating to a community and much feared. Measles...

Infections and epidemics were commonplace in those years and long term sequelae were too. When I took measles in about 1962 I was kept in a darkened room wearing eyeshades my father made to prevent eye problems. One of my friends was deaf in one ear due to measles and, of course, polio was a...

I don't think it is the behaviour of people that has changed, it is the type of person who is pushing false information. Released documents from the CIA show that in the 60s/70s they developed policies to pay people in the media to be available to place the news they wanted with the slant they...

Reading Feynman and others in physics, they designed experiments to try to disprove their hypothesis, then if they could not it was a good indication the hypothesis was correct. They also seemed happy with the idea that many years later someone could the hypothesis was wrong and it would be...

There is nothing scientific, but when ME kept being said to be just depression we would not acknowledge a fact against it was that people with ME did not fit the cliched TV character you knew had depression or PTSD because they drank too much and smoked too much. Never heard of anyone becoming...

I had problems with hypoglycaemia, but from my experience it was due to dysautonomia. In the same way I could not heat up if my temperature dropped because my brain did not send a signal properly, my liver did not get a signal to release sugars when my blood became depleted. My grandson has...

I may have missed research debunking the theory, but using nerve blockers and machines that people could use to self administer opiods were meant to prevent the pain gates in the nerves opening so that there was less long term pain. Letting patients decide how much pain relief they need can lead...

Patients with lower physical activity and greater MS related disability have more fatigue because it is so hard for them to do anything. They expend a lot of effort doing things that are easy for a healthy person. Think climbing a flight of stairs with one hand and a plaster cast on your leg.

I stand by what I said. It honestly baffles me that people cannot see what I am saying. If you are told you have CFS, you may have ME but you may not. I have never met the definition for CFS never having had fatigue. I do have myalgic encephlomyelitis with myalgia, neurological sequelae from...

Malingering is usually associated with things like back pain where it is easy to fake symptoms. They really think we are stupid if they believe we would chose to lie by inventing symptoms that are not visible and which vary all the time. I also think they are confusing cause and effect again...

Medical staff were in the majority for epidemic ME but it didn't help. It is possible that it will work against them because if anyone experienced stress and anxiety during the epidemic it was frontline staff.

The definition used by Reeves was so loose as to be barely there. He "operationalised" it until it made the Oxford one look strict. Nothing from his work tells us anything about ME. We need to find a way to get a homogenous group for experiments. Definitions are so unspecific especially in...

The problem with received wisdom is that it is what the most dominant voices say. Trainee doctors are presented with the idea that women are at risk for mass hysteria and that functional disorders are common because the people who hold those views teach them. They become givens that are not...

What he does not realise is that the anecdote about the African men actually illustrates the main problem with BPS practitioners. They prefer to come up with long complicated theories about disease being caused by stress and faulty cognition without doing any basic physical examinations.