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If you put on a really good tv programme that has subtitles do you find that you then can’t keep your eyes open?

Yes I know now it says elevate. And realising that’s what I do anyway with the pillows and cushions and zero gravity chair But realising I might have been saying things wrong or not specifically enough for a while now :banghead:when I say put feet ‘up’ its ambiguous as I mean like on foot stool...

By elevate legs I assume many of us mean just having them level ie like “put your feet up” in Uk means on a footstool, sit on sofa sideways so feet aren’t on floor. I do however do a half way house as I have pillows in bed or cushions on sofa so my legs are slightly raised due to an injury but...

Agreed. Telling people to do less when they are in a different situation to you and you aren’t giving their boss or family a good talking to that things will only get worse if they don’t give way now so they stand a fighting chance is the horrific plight of most. I’ve always been sceptical of...

Only read the abstract and I’m intrigued by the why glad it isn’t done by subjective I prefer a cool fizzy drink too so there would be all sorts to question on any ‘how do you feel’ measures.

There are parts in mine where they are on the wall - even if they aren’t the major waiting room my old surgery it was a whole cabinet in that main waiting room and all round the receptionist area . There was a lot of queuing eg to talk to receptionist even so ones in the foyer even made sense...

I’m all for anything that focuses on debunking the fatigue misinformation and wonder whether the upside of these things is that I’ve realised healthy people go to the GP more than I realised . And everyone is a hostage in that waiting room. Not all of them have Wi-Fi phone reception etc...

Are there any areas or even sub areas in the country where the offering is anywhere near good enough that it could be made into a clinic that does cover all the spectrum just with follow ups and no silly courses or connections that would put people off? Might be worth a private thread if this...

With other conditions do charities eventually get funds from non-sufferers to support those who aren’t the can pay membership and interact demographic but are what I dread to imagine given enough might have GPs who are hostile and not be believed by anyone close to them. the load with taking...

And if noone is doing a rotation that involves ME/CFS patients (and that needs to include mainly those severe, very severe and definitely not just the mild) being properly understood and studied and 'treated' there never will. So not only is there no teaching on it, there is no colleague (eg in...

I agree that I think we need to try and get the experts thinking on this one. Particularly if anything being gotten hold of is only measuring those who are 'accessing care' for a condition where coercion has been used to prevent/discourage people from doing so. But also what other illness...

I agree but with a however - which then starts to make me think something more nuanced is needed here. Specialist provision is an ambiguous term. I definitely agree in as far as the starting point needs to be that care offered needs to begin with the illest, as it would for any other medical...

This isn't specific to this article thread but I've thought of it having seen that word 'insight' again. And I think it's a point that needs to be threaded through when trying to articulate issues going on to cause what we are all trapped in. To good scientists, such as eg Oliver Sacks is one...

The thing is that now is the time the literature needs to be filled with more papers about methodology then so the ‘learning’ the AI does at least has those heuristics as part of them underlining how poor most of certain research is in I’m imagining an ‘if x,y, z missing then not...

There is obviously something about the culture that ‘stopping deterioration’ can’t be ‘the promise’ However sensible the offer re ‘reduce to preserve health’ and however much we are going feel more hellish if someone stands in our way and stops us from staying in our limits directly or...

The only solution I can see to this issue and I think it’s probably significantly behind why cfs got played is fir all charities to band together and write to all institutions doing research and all clinics insisting questions of this type are removed and telling all patients to skip any...

The mind boggles as to what KPIs ie accounting type ‘play the game focus’ these things have to have that you wouldn’t want to fish out those individuals for whom there was real and ‘big’ benefit and prove them more on how and why and who surely it’s better to have a service with a defined and...

So fascinating that on the ‘helpful’ question - which could be prone to social pressure ie politeness - there was such a massive difference between genders If many of the older males I know had been through the crud cfs patients got as ‘care’ and weren’t being coerced with perceived threats...

@“Hell I gave up that way when I got bigger duvets and my arms got weaker. So anyone trying first time might want to be aware a heavy super king duvet might need to be tried only with great caution even if milder. When I was more well and did my own I realised with the bigger quilt just...

Which type of robot vacuum? because I’ve eyed up ones on offer but have been warned there are lots that are a bit useless - I’d be interested in any recommendations