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    UK: BMJ article: Severe mental illness: 120 people die in England every day from preventable conditions, psychiatrists warn

    Is this the good ones treating real mental illness or the psychosomatic ones who made a career out of the very point being to label then drive mad the physically ill based on propaganda and purely to sell building kingdoms? I think there needs to be proper investigation and more data on this...
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    UK: BMJ article: Severe mental illness: 120 people die in England every day from preventable conditions, psychiatrists warn

    And those diagnoses given to avoid considering the physical illness she did have sorry but I’m suss too, particularly knowing what I know about the personality type of those involved here they definitely do these things and always trust the story to their advantage I suspect a lot of these...
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    I think this is an area where we somehow need to work out how to get the stats and surveillance on it so we know the real numbers of pwme who get killed via a route that manages to relabel them so they get no peace or justice in death either This is the most egregious part of the brutal...
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    UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024

    I just watched the David Tuller video with Wust and it was very interesting (but might need to do it a few times as I miss bits). My ears pricked up around 34mins in he started mentioning this, and NASA. I think this pyjama paralysis mandate has become so ingrained (with simplistic...
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    Needing to lie flat

    to state the obvious it probably needs to be part of the objective measures (although cue 'lying in bed all day causes it' nonsense)
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    London resilience clinic : Holistic Chronic Fatigue Treatment

    That’s used as a pseudonym for the broader meaning they have for mental health now (which twists meaning mental illness with people being happy into a bundle so people who are fine can use it to excuse indulgences whilst when ill people need something not awful it’s suggested they have...
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    London resilience clinic : Holistic Chronic Fatigue Treatment

    World-leading … I mean isn’t the idea when you are doing a big oversell that you keep it feasible whilst bigging it up ?
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    Review Functional neurological disorder in pregnancy, labour and the postpartum period: systematic review 2024 Cabreira, Carson, Stone et al

    Well of course they would wouldn’t they .. what a time to suggest maybe its the emotions (and hormones)
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    Miranda Hart - British comedian

    Yes and whilst I like both Jennie and Miranda for the people they are I don’t think it’s just on ME that they are both different in that way. It’s a shame with miranda but she’s known for being quirky annd ‘ooh I’ll give it an go, oops’ isn’t she ? In her programmes at least Do you think she...
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    'I'm a GP and I'm doing 7 things to avoid catching new Covid XEC variant, you should too'

    Someone needs to start parodying people like this. Or lists like this. I mean look how much ME rates reduced when mindfulness became more commonly done by us all in certain times when it came into fashion? Or Did they get this one from comparing the stats for communes with less mindful city...
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    UK: George Eliot Hospital NHS CFS clinic

    I'm quite curious as to whether there is some sort of 'split'/different voices between the medical side and the 'clinic/therapy' side being in charge on the 'treatment' ie once diagnosed then the biomed side doesn't get much of a say or contact - as we'd be looking for from a scientific...
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    UK: George Eliot Hospital NHS CFS clinic

    OK this job description (at the bottom) is ominous and explains some of the downhill slide in knowledge/increase in tropes that can be found in their documents. Chronic_Fatigue_Syndrome_Care_Plan_2014_B.docx (live.com) CFS_Self_help_A3_Booklet.pdf (geh.nhs.uk) - this one could be used by one...
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    UK Government ME/CFS Delivery Plan consultation

    So if real knowledge manages to sneak in through them accidentally letting a qualified patient into the process who is heard then it is quietly getting removed at a later stage?
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    UK: George Eliot Hospital NHS CFS clinic

    It looks like a complete website update has happened: Chronic Fatigue Syndrome :: George Eliot Hospital (geh.nhs.uk) renamed to Chronic Fatigue Syndrome Still the same consultant listed on the main website pages. But strangely google AI seems to want to associate Dr Edmond Sung...
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    What do people want me to ask Sonya Chowdhury on Friday

    We've got a lot of things that are based on ... is the word politics? where things end up being based on compromise and committees because even if there is somewhat 'one truth' (I know there never is) and for anything to work there just needs to be simplicity in some of the basic foundation...
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    What do people want me to ask Sonya Chowdhury on Friday

    Well said it’s that weaponising of mental health insinuations that’s got to be driven out as unacceptable behaviour in the community - I don’t care if it’s utter ignorance and/or delusion /wishful thinking (I’m a hero with the secret to life rather than lucky for having recovered from long...
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    What do people want me to ask Sonya Chowdhury on Friday

    edited as I'd mulched in another post I'd half done when I hit reply thanks for sharing. it just flags to me the clash of old with new. this is an aside (not for meeting) but there is the awkward internal community bit that the changes to new guideline, CDC and Workwell type stuff coming...
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    Oxaloacetate

    Oh goodness please don't tell me I've lost these decades and it could have all been so different if only I'd loved spinach?
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    2005 Scottish Parliament debate on 'a cure for ME'

    Myalgic Encephalomyelitis: 9 Jun 2005: Scottish Parliament debates - TheyWorkForYou I've just come across this and whilst I'm sure the existence of this project is old news to some, I couldn't be sure this was on here. And whilst it sounds faintly familiar it is always worth reminding myself of...
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