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I think it’s just a misogyny trope (and don’t get confused that women can’t be the worst misogynists to other women) that goes with certain people getting into certain positions always try and throw. I don’t think they even try to explain why it’s not nonsensical because they are bigots...

im aware that they are pretty straightforwardly on it with air traffic control that if for whatever reason your competence will be affected eg bad nights sleep it is air traffic controllers responsibility to call in and report it because it is such a responsibility Brings up the perfect...

Given how schools work re: progrsss monitoring there should be predicted grades or attainment almost for each person who gets NE/CFS because they use this to measure ‘value added’ for schools by seeing whether a pupil who was eg really clever at start of year attained what they’d be reasonably...

Plus there seems to be the added thing of paywall ing and saying a different result in the abstract (only but available to most without paying) to what you had to admit in the results/conclusion?

That's a slimy response. But the test in those trials isn't whether the drug was in their system... ? it was whether it objectively worked based on proper measures and regulated research design, as well as yellow-card for harms over long-term follow up. Only in their magical world do they try...

good video. Interesting (and heartening) to hear that the publishers approached them given all the Fiona Fox stuff etc published over the years you could be kidded for thinking the demand was ideology-based nonsense. Their last message about how it is important for physios doing any type of...

I'm writing something here for now just to bring this one back up. I haven't had the chance to read it through and think in detail but know when it was first up I did think that these three terms are pretty fundamental in the issue of how we are treated and the paternalism and lack of respect...

Given they apparently keep the ‘what happens on camp stays on camp’ secret they could easily come up with an alternative fake version to account for disappointment effect in the control group of believers too. I don’t know about the prospect of them being led to believe they’ll end with a...

It used to be called parapsychology I think back when that area of things like this and spoon bending and so on were used to test peoples ability to learn research design (and ergo when you wanted to remove bias or ‘coercion’ bring possible fir results) so the first part of the ‘treatment’once...

Indeed and then there is the issue of overlap/comorbidities and diagnostic certainty making it hard to be sure quite what they are looking at other than ‘people diagnosed with x or y’ (but you can’t be sure they don’t also have x,y,z or anything else I assume)?

Surely this is another area where the biggie is about longer-term follow-up not whether someone's fitness short-term changes? POtentially it is a good way to increase likelihood of long-term side effects from cancer treatment by having people 'pushing through' when undergoing something gruelling...

Agree on the tiredness one, hard to do. And of course on well done for this protest - not easy to do at all with ME, so massive admiration to them. One other awful side-effect of the usage of tiredness inaccurately instead of ill is that we do get tired, but it is tired in 'our illness state'...

Realised as I used the phrase 'Krypton Factor filter' a bit these days and it was a TV programme in the UK back in the previous century I should post a link: https://en.wikipedia.org/wiki/The_Krypton_Factor Basically it would involve 4 contestants being put through round testing different...

I'm struggling to read through the plan and know the right places that you'd even start to cover some of these issues. 1. I've seen others on social media mention the need for education to cover other services e.g. dentists, opticians and so on. I agree here. There is a major issue with the old...

Indeed, it is also conflation/distraction - is there anything about a review doing whatever that means something historic and inaccurate can't be withdrawn? If there isn't then it just seems to example an attitude issue to hide behind that

First, without seeing the details I can't confirm its effectivenes on being more than 'a nod' to inclusion, but good to see this type of step maybe inferring things heading in the right direction in considering method: But who were these experts and what actual physical health condition did...

I feel like we need an open/repeatedly findable thread (as it will take a while to build up thoughts) to focus on working up how to tackle and unbundle the switch and bait issues of the 'biopsychosocial' or psychosomatic or 'behavioural psychology' (which is what I think is really what it is...

Geez it's specific I guess when it comes to articles of company but also complicated because of the rather ambiguous umbrella of LC including those who have the ME/CFS type, and perhaps indeed other 'forms' but also those who mightn't have the 'ME/CFS type/types'. And agree that because those...

I'm not sure it is for us to sign rather a requests for psychologists or psychiatrists to sign it. I don't think that this is the 'official BPS (British Psychological Society) one' though - I imagine there are probably a few different ones about (?) with people from different angles etc even...

Yes they seem to have a very specific way of looking at and seeing certain things vs others might on 'the framing'. And it is about time the field was made to define at least the broad different component 'fatigues' that the ambiguous term umbrellas for and leaves apples and oranges and...