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    United Kingdom 2022: Action for ME (AfME) Consultation on media guidelines

    Probably not a popular opinion but I think the current doc is pretty good in terms of what is - which is a first text intro for journos who are not going to invest more than 120 seconds on a précis. Clearly this isn't for health journos working up a long article about ME/CFS but then they...
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    GP chief warns WFH (working from home) could have a profound impact on Britain's mental health: Clare Gerada

    I think it's worth deconstructing the context rather than the words. Gerada of course has to be responsible for her words and her part in this particular performance but the quote from Gerada is actually quite anodyne in contrast to what the Headline claims. This kind of manipulation (headline...
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    Esther Crawley

    I think it might be fair comment as immediately it would include colleagues listed here: https://www.bristol.ac.uk/academic-child-health/staff-directory/ not to mention the 1000+ other academics associated with Bristol Uni's Medical School. Thankfully academia exists beyond the BPS Universe even...
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    Scientists face hard choices as UK prepares to abandon EU projects for years to come

    The potential is for all of UK science to be impacted in the long term - however it has no effect on current funding, so DecodeME for example is not affected. The UK Government is not itself talking about reducing research funding, but as @cjlush points out above, the UK has been a net gainer on...
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    Placebo Wikipedia Article and Reference Fraud

    Looking through the history I think that's just an editing error. I passed on the info to someone who might know someone who'll be interested in correcting the article. With Wiki I reckon genuine error outruns intentional malice at least a 100:1
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    International: World Health Organization News (news relevant to ME/CFS, Long Covid and related conditions)

    More recent paper: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8906524/ https://www.s4me.info/threads/long-term-covid-19-sequelae-in-adolescents-the-overlap-with-orthostatic-intolerance-and-me-cfs-2022-morrow-rowe-et-al.25013/ Long section on Management includes: PEM and Managing Activity...
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    Scientists face hard choices as UK prepares to abandon EU projects for years to come

    POLITICO By Cristina Gallardo August 17, 2022 11:36 pm "LONDON — British-based scientists face agonizing decisions over the future of their world-leading research projects as the U.K. moves closer to quitting the EU’s massive R&D funding scheme this fall. The British government’s decision to...
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    Esther Crawley

    I wouldn't read too much into Crawley's connection to this post, a major part of the job is teaching and Bristol's Intercalated BSc in Child Health Research is specified for which Crawley is the course organiser. As a researcher the post holder will have their own priorities and while they may...
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    In Schizophrenia, Chronic Fatigue Syndrome- and Fibromyalgia-Like Symptoms are Driven by Breakdown of the Paracellular Pathway..., 2022, Maes et al

    Physio-somatic symptoms in schizophrenia: association with depression, anxiety, neurocognitive deficits and the tryptophan catabolite pathway Buranee Kanchanatawan & Sunee Sirivichayakul & Supaksorn Thika & Kiat Ruxrungtham & André F. Carvalho & Michel Geffard & George Anderson & Cristiano...
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    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Putting this here because it's relevant to how familiar/unfamiliar NHS clinicians are with the NICE Guideline: "Growth in NHS recruits from abroad prompts concern about over-reliance The NHS in England is increasingly reliant on doctors and nurses recruited from outside the UK and EU, analysis...
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    US lawmakers turn attention to plague of fake journal papers

    26 Jul 2022 | News AI tools are now allowing so-called paper mills to trick journals with fake articles on an industrial scale. The issue risks scientific integrity and is beginning to get high level political attention. ut without the time, resources, or English language skills to do so...
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    United Kingdom: Sussex & Kent ME/CFS Society News

    bottom of NHS page = "This information was supplied by Serco Global Services on 27 July 2022" below which is a Report an issue with the information on this page hyperlink. Not sure what basis for a report would be but it's not clear how this 'service' could fit within the 2021 NICE Guideline.
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    Nature article: Why autoimmunity is most common in women (2021)

    Me being a pedant - Oldest Known Homo Sapiens Fossils Found I think it's not so much pregnancy itself being the inhibition, rather the care of multiple infants, or otherwise the cost of multiple failed pregnancies. There really isn't the data to deal with this with any certainty but life...
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    Burning muscles — is it myalgia / pain?

    If it's a muscle and it is hurting - that is myalgia. There's no limitation on the type of pain, nor on the cause. What may be interesting is to tease out if possible, whether it is simply muscle or if other types of connective tissue (tendon, ligament, cartilage, skin etc) that are involved...
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    Nature article: Why autoimmunity is most common in women (2021)

    This is a really interesting article. There is one item I'm not so sure about: "However, the female system evolved over hundreds of millennia during which people were pregnant for much of their reproductive years. Because people have fewer children now than their ancestors typically did, their...
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    Nature article: Why autoimmunity is most common in women (2021)

    It depends how the uterus is conceived - as a self contained bucket in which an embryo develops, a female body is just a male body + expandable baby bucket. It's taken a lot of time to actually get away from that perspective, especially toward the understanding that the primate uterus is at the...
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    Joseph Roundtree Foundation, From disability to destitution, 2022, Clark & Matejic

    Joseph Roundtree Foundation, "From disability to destitution", 2022, Tom Clark and Peter Matejic "The official story on poverty among disabled people is bad enough. But new JRF analysis reveals that when it comes to the real essentials of life, like heating and food, the problem is far worse...
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    Long Covid in the media and social media 2022

    Twitter thread "The idea that large proportions of people will eventually get long COVID to me seems poorly thought-through for two main reasons"
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    Study protocol for POSITIF, ... feasibility trial of a brief cognitive-behavioural intervention ... for post-stroke fatigue, 2020, Gillespie, Chalder

    Chest Heart & Stroke Scotland and NHMRC "Funding Chest Heart and Stroke Scotland (CHSS) provided funding for this study (Grant reference: Res16/A168). During the completion of this work, Maree Hackett was supported by a National Health and Medical Research Council Career Development Fellowship...
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    Study protocol for POSITIF, ... feasibility trial of a brief cognitive-behavioural intervention ... for post-stroke fatigue, 2020, Gillespie, Chalder

    886 > 188 > 76 > 64 > 39 > 23 ! Yes you can get 2.6% of a patient population to partially participate in a trial - but exactly what does that self selecting 2.6% represent ? The most well ? The most desperate ? The most bored ? 886 people and only 23 thought this was worth pursuing should be...
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