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There's Orwellian renaming where the objective involves various forms of deception, I guess one might argue here that deception is being achieved by appropriation of a name that has validity, while maintaining an invalid service. However I think the speed with which this has been done probably...

Put that man in a room with a few pregnant persons so he can persuade them of the error of their beliefs. And they of his.

Maybe, just maybe, this is one of those papers where in 10 or more years time it will be possible to look back and say, at least for neurology, that is where it all began to change.

Judgement is here: http://www.bailii.org/ew/cases/EWHC/Admin/2009/452.html I think item 34 answers your questions but I've only skim read today for the first time in years. The whole approach of the claimants was pretty much a 'how not to' example of seeking JR. As a wholly off topic aside -...

By strange coincidence the Sunday Telegraph pre pandemic circulation numbers were exactly the same as the top figure for UK ME/CFS prevalence. We don't know how many STel's are actually sold now because its owners pulled out of the scheme that has measured newspaper sales for the last half...

Are they just using JH as a proxy for EDS ? It would be unsurprising if some EDS cases were swept up by ME/CFS diagnostic criteria but they aren't going to find statistical evidence in small studies.

Maybe partisan but the critique seems sound - just posting for info: https://www.crowdfunder.co.uk/scrap-nhs-bill - also unsure where else to post this so putting it here: https://www.openrightsgroup.org/blog/why-on-earth-is-the-government-mucking-about-with-our-privacy-laws/

There's very large variation across the 3rd Sector (the term 'Charity' has so much historical and moral baggage). Some 3rd sector pay is abysmal, especially where the comparator jobs are in the private sector (care etc). Trade Unions were once very slow to recruit in 3rd Sector work places but...

One would hope it doesn't matter, though I'm not sure such an imbalance in any workforce that has interaction with a membership or the public would be healthy as a sustained feature. Third sector employment is heavily weighted toward women - about a 3:1 imbalance, UK public sector (including...

Only just catching up with this. An object lesson in how not to make a complaint to the Charity Commission.

For me it's always been about bringing on 'the worst of the worst'.

It's also confusing because it suggests exacerbation of symptoms that were present pre exertion but doesn't allow that the exertion may produce symptoms that are specific to the post exertion state, i.e symptoms weren't there before the exertion and only occurred following the exertion. PEM at...

So - as per the links, how does that happen in the UK contrary to Gillick competence ? I'm not saying there aren't problems I'm just trying to understand how it can be so absolute given that there are independent points of support e.g https://www.pohwer.net/childrens-and-young-peoples-advocacy

Not sure I understand the question but a couple of links from another thread may help: : https://www.nhs.uk/conditions/consent-to-treatment/children/ and https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4962726/

Fungal infection is a good bet. As a persistent symptom for anyone with ME/CFS it is certainly worth checking with the GP to rule out potential co-morbidities such as diabetes or hypothyroid which can be implicated in odd skin afflictions.

I guess they've agreed some set of protocols about how each uses data, very likely based on what has already been happening without a formal agreement, and this will mean that whenever Cochrane produces a review this can translate into a NICE update without NICE having to go through the full...

New jargon same as the old jargon. Persistent Physical Symptoms is the the new name for MUS...

Yes that was my thought. There's also this: https://wmmeg.weebly.com/uploads/4/8/6/8/4868611/0710_-_collaborative_conference_programme_oct_2007.pdf

Whether it can be reformed or not I don't know. What I see is a group NHS professionals organising in a way that's appropriate to the development of a service that was being sought by their employer., career development is key part of that - why should to workers not organise to have (from their...

I think this was in the first flush of enthusiasm - right before "austerity" came in with the new Government in 2010 and before everything in the NHS, that wasn't so before, was fractured into separate competing cantons by the 2012 Health & Social Care Act. In 2009 I think it was envisaged that...