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I suspect the motivation, at least in part, is the sense of services being overwhelmed by the obesity/heart disease/type 2 diabetes epidemic. The pressure is to remove, at least to some extent, the cautionary principle and avoid a default of sedentary behaviour by a population of symptomatic...

MEA email Newsletter includes the following:

Within the UK/NHS context - I don't know enough about other countries/cultures systems - the divorce between on the one side what politicians and senior management promise and what the media demands, and on the other what a healthy, well rewarded, well supported workforce can deliver, is stark...

I suspect that there is always some level of compromise in every NICE Guidance between the provider and patient interest. What's notable about the ME/CFS situation is the intransigence of the providers. It would probably be better all round if public discourse could cope with provider interest...

Not a complaint but it seemed more like a recruitment and funding campaign than a genuine inquiry about what is important. It's not exceptional in those terms but it is sort of thing that puts me off, though I'd guess the psychology is based on tried and tested methodology.

Absolutely agree about templates. Doing things informally is difficult for a legally constituted body - every time you encourage someone to do something you have to consider what the ramifications are - a risk assessment ! This may seem mad but if you don't do that then insurance may be void...

I think there may be reluctance to do this. The legal and financial and administrative issues present a lot of potential problems. Even just offering a 'how to' guide could land an organisation with liability if something were to go wrong where a group was set up following the advice. There...

Yes, it needs to have a common presentation that is adaptable (within strict limits) to the local commissioning area but the commissioners also need to have some expression of local patient demand rather a National statement, to respond to. They all, in one context or another, have a legal duty...

Yes it means that things are heavily weighted towards continuing with the status quo, so keeping nothing where there is currently no service, and merely making paper alterations that require no significant re-negotiation of contracts where there is a current service. It needs external influence...

Well you certainly seem ahead of the game ! It was the co-ordination across the UK I was thinking of, unfortunately there doesn't seem anything like the level activity on the ground that you have going in many other places.

He's a pretty hyperactive character. Part of his life is spent as a comedian who comments on health, he does the Edinburgh fringe most years, and who uses comedy to promote good health and health education, he was the presenter of Trust Me I'm a Doctor, he also writes quite a lot, a number of...

This really is a time for co-ordinated action, at the very least many hundreds of letters need to be written, and ideally those letters need to reflect 'local stakeholding' (yes I know "yuk", but we need think in terms of bureaucratic audience we have to address). Even in NI, Scotland and Wales...

My thoughts are that the whole process of the MRI -preparing for the day, getting to the facility, answering all the protocol questions, being in the machine, would place far higher physical and cognitive demand on the ME subjects and that any difference in perfusion would involve at least some...

IS FND not undergoing a reappraisal ? This page from a respected institution https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Functional-Neurologic-Disorder is specific in saying FND is an organic condition, acknowledges that the name came from Freud but explains it is...

Just to reiterate the points that: (1) Scotland is outside the NICE Guideline but what goes on in Scotland is a) important to Scots PwME ! and b) may influence what happens elsewhere in the UK. (2) that there are currently no clinics in NI. (3) that the 3 clinics that did operate in Wales...

And I hadn't even thought about that. My thinking was: if GPs have no specialist service to refer a patient for diagnosis, then the GP has to have the knowledge, means and funds to ensure all the relevant exclusionary tests are done to ensure the patient doesn't have something that is treatable...

I meant to include this in the post above: https://transformationunitgm.nhs.uk/services/nhs-change-management-strategic-transformation-and-strategic-planning-implementation/

Essential that this is done through co-operation between the patient groups, and good to hear that is in hand. Commissioning on the basis of the new Guideline concerns not just improving the existing clinics but also the funding and provision of services where none are currently provided...

All the usual caveats about needing expert legal advice on a case by case basis apply ! But - yes the Guideline does not trump clinical freedom. However if harm is demonstrable (which of course it may not be to a legal standard) then the Guideline would serve as a sort of negative indicator of...

Some previous comments made here: https://www.s4me.info/threads/how-can-we-stop-research-funding-being-wasted-on-more-low-quality-studies.22862/page-2#post-383652 Professional jealousies have been known to involve attempting to block an 'enemies' grant applications across academia. It's a two...