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    EEG source analysis of chronic fatigue syndrome, 2010, Flor-Henry et al

    EEG source analysis of chronic fatigue syndrome. Psychiatry Research Flor-Henry, P., Lind, J. C., and Koles, Z. J. Abstract Sixty-one dextral, unmedicated women with chronic fatigue syndrome (CFS) diagnosed according to the Fukuda criteria (1994) and referred for investigation by...
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    GERD, acid reflux, heartburn and hiatus hernia

    Just to add another N =1 in case it's helpful. Age and health status ensured I got the full x ray, barium meal & back of the nose camera investigations (symptoms included persistent cough). Diagnosis was "some reduced esophagus motility" and "a small HH". Advice from the Gastro-pods was on...
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I'm not sure how that follows from what I wrote. The point I was making is that language is challenging and most of the time language only has to be 'good enough'. It's not a matter of who is responsible rather it's about recognising that if communication between people is part of a process then...
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    Personality, Defense Mechanisms and Psychological Distress in Women with Fibromyalgia, 2022, Romeo et al

    Any members here have contact with: https://www.cfsme.it/chi-siamo/ ?
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    Personality, Defense Mechanisms and Psychological Distress in Women with Fibromyalgia, 2022, Romeo et al

    From two of the above authors: Attachment style and parental bonding: Relationships with fibromyalgia and alexithymia https://pubmed.ncbi.nlm.nih.gov/32287311/ Their sinecure: Psicologia clinica https://www.clinicacomunita.unito.it/do/corsi.pl/Show?_id=g9v7 "The main aim of the laboratory...
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The semantics (in the non dismissive sense) of illness is challenging and certainly researchers should be conscious of how their questions are structured, but part of that means that when seeking responses from the general population common terminology is used. Even if we consider the patient to...
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    Functional Neurological Disorders - discussion thread

    The Tweet doesn't reflect the nuance of the quoted source, in a way that I'd say is unhelpful. Hysteria is both a 'hot button' and a 'dog whistle' subject, you can't put it in the forefront of a comment and reasonably expect it to promote understanding. The reference: The Emergence of Multiple...
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Study: Rapid vigilance and episodic memory decrements in COVID-19 survivors https://academic.oup.com/braincomms/article/4/1/fcab295/6511053
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I didn't read it that way at all - rather that the authors are identifying a methodological problem, rather than attributing health status to any group or individual. If people who suffered mild/moderate acute COVID subsequently report ongoing symptoms which are indistinguishable from their...
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    Long COVID risk - a signal to address sex hormones and women's health, 2021, Stuart Stewart et al

    Making a judgement on a paper like this really needs close reading of the references - in this case I'd say especially ref [2] https://www.thelancet.com/journals/lanepe/article/PIIS2666-7762(21)00163-0/fulltext To my non expert eye both papers read as non problematic. The conclusion that a)...
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This seems a reasonably sound paper to me - I've no idea if the stats are all OK or whether the design choices are open to criticism but the authors carried out a review of what are essentially data collection studies, applied some analysis to those studies and came up with conclusions which...
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    Multi-ancestry fine mapping implicates OAS1 splicing in risk of severe COVID-19, 2022, Huffman et al.

    https://sci-hub.se/10.1089/jir.1997.17.377 JOURNAL OF INTERFERON AND CYTOKINE RESEARCH 17:377-385 (1997) Suhadolnik et al Just 10 patients/10 controls. Lots of chemistry, it was 25 years ago, probably seemed quite exciting at the time. This is probably the most revealing part of the text. My...
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    Multi-ancestry fine mapping implicates OAS1 splicing in risk of severe COVID-19, 2022, Huffman et al.

    Diagnostic evaluation of 2’, 5’-oligoadenylate synthetase activities and antibodies against Epstein–Barr virus and Coxiella burnetii in patients with chronic fatigue syndrome in Japan https://sci-hub.se/10.1016/j.micinf.2003.07.002 which uses Holmes 1988 definition. See: Chronic fatigue...
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    NICE and Cochrane sign collaborative agreement to deliver ‘living’ guideline recommendations

    I'm unclear as to the full time scale, but the NIHR states: "Grants are awarded to support a substantial and coherent programme of work that includes up to 40 reviews - both new Cochrane reviews and updates to existing Cochrane reviews." and lists 22 that have been published: see Cochrane...
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    Online survey of the use of Transcutaneous Nerve Stimulation for ME/CFS, 2022, Physios for ME

    Yes it's one of those where if you get a lot of 'this was dreadful, didn't help etc' replies we can all feel "glad I didn't waste time/energy/money on that", but if it you have a lot people say it changed my life' it leaves most patients frustrated that it's option that will not be a viable...
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    Repurposing Drugs for Post–COVID-19 Fatigue Syndrome Methylphenidate, Duloxetine, and Brexpiprazole, 2022, Manu

    Thankfully the suck it and see approach to pharmaceuticals is (mostly) not how science operates although open label prescribing remains an area open to abuse. Companies lacking the resources for full Phase 1- 3 trials, owning the rights to an orphan drug or some novel chemical of putative...
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    UK: Disability benefits (ESA and PIP) - news and updates 2021 - 2022

    Merged thread Over 118,000 people denied compensation from DWP after benefits error cut payments https://www.ombudsman.org.uk/dwp-esa 13 January 2022 Over 118,000 people with disabilities and health problems are facing injustice by the Department of Work and Pensions after being denied the...
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    Repurposing Drugs for Post–COVID-19 Fatigue Syndrome Methylphenidate, Duloxetine, and Brexpiprazole, 2022, Manu

    Google Scholar gives just a single retrospective study of off label prescribing i.e no controls - https://link.springer.com/article/10.1186/s12967-021-02721-9 ME/CFS may or may not be wholly or in part, in all patients or in some, a neurological condition but giving people medications merely...
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Times journalism - Health 1. Health = Lifestyle 2. Times readers, Health = Lifestyle challenges 3. People poorer than Times readers, Health = Lifestyle choices 4. Times journalist qualification to write on Health = knowing someone who is a) facing a lifestyle 'challenge', b) knowing someone...
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