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  1. JemPD

    "Patient's Charter for ME/CFS/PVFS"

    Well i'm all for most of it, & great to use cognitive dysfunction instead of 'fog'.... but do we have proof of 'tissue hypoxia' or 'brain inflammation'? AFAIK they are just as unproven/poor quality studies as the CBT/GET dross. I do wish people would stop making these unproven biomedical...
  2. JemPD

    Functional neurological disorder: lighting the way to a new paradigm for medicine, 2021, Edwards

    In the final sentence of the abstract he says they must do better. Well... You'd do a great better by stopping the reinforcement of stigma & 'othering' that you are perpetuating in your opening statement, which sets the tone for the entire paper. precisely.
  3. JemPD

    Compression Garments

    Thanks @Trish & thanks @Keela Too thats helpful ive ordered some. i always wear thermal leggings under fleece trousers during winter because my legs get so ludicrously cold, so i'll try these & explore tighter ones. Interestingly (sorry to keep us OffTopic) I had to wear a back brace for a...
  4. JemPD

    Brain fog, cognitive dysfunction

    Sally I'd be most interested to know the brand/type of abdominal & leggings you use? If you wouldnt mind sharing? My fog is noticeably worse when I'm standing/sitting with feet on floor so i'm intrigued to try this on the off chance it might help me too.
  5. JemPD

    Central sensitisation in chronic fatigue syndrome and fibromyalgia; a case control study, 2021, Bourke, White et al

    I'd like them to explain the mechanism by which CS is able to fluctuate from day to day & throughout the day..... ie sometimes a certain stimulus will cause me pain, sometimes not.
  6. JemPD

    Brain fog, cognitive dysfunction

    Oh, another pillock whittering on as if he knows what he's taking about. They are like wasps at a picnic, except its not a picnic it's a car crash, and they are drones buzzing around, helping no one except themselves, just a thorn in the side of suffering people. I do wish they would all just...
  7. JemPD

    What are the best coronavirus masks?

    I think here we are discussing masks for wearer protection. Certainly i am anyway. @Kitty i & my carers have a similar system - but we use small cardboard boxes. The paper bags are a good idea as they will takeup a lot less space, i will look into that. Edited to add - not that i dont care...
  8. JemPD

    What are the best coronavirus masks?

    Stay well away from Amazon if i were you, you cant verify them. Just because it says N95/KN95?FFP2 or 3 on it, doesnt mean it actually is. I did some research on this last year & made a thread How to check if your N95/FFP3 mask is 'kosher' | Science for ME (s4me.info) You particularly have to...
  9. JemPD

    Article Independent IE: Doctors urged to look out for chronic fatigue syndrome in long Covid patients (#Physios4ME)

    How compeletly wonderful. I cannot put into words how much i would give to live in a detached place on a quiet lane. My life is not calm at all. And it makes it very difficult to pace, because all that adrenaline makes me feel better than i really am & i end up overdoing it a lot, so anything...
  10. JemPD

    Article Independent IE: Doctors urged to look out for chronic fatigue syndrome in long Covid patients (#Physios4ME)

    Hmmm i'm not sure about that. There isnt any strength to express it but that doesnt mean there isnt a great deal of internal distress at times. Indeed just being in a lot of pain can activate fight/flight. I'm mainly housebound often bedbound & my life is extremely stressful because of the...
  11. JemPD

    Article Independent IE: Doctors urged to look out for chronic fatigue syndrome in long Covid patients (#Physios4ME)

    my bolding Yeah i cant be doing with the kinds of breathing 'exercises' in the link. I didnt try them all, but in the past have tired Buteyko & alternate nostril breathing with yoga. They both made me feel anxious & worked up. I dont like things that make me try to 'change' my breathing. Its...
  12. JemPD

    Article Independent IE: Doctors urged to look out for chronic fatigue syndrome in long Covid patients (#Physios4ME)

    It depends what is meant by breathing "exercises". If they mean just focussing on allowing diaphragm to fully expand - belly breathing (rather than 'chest' breathing), and observing the breath in a non judgemental way (ie not trying to make it faster/slower etc, just letting it be what it is...)...
  13. JemPD

    Number of musculoskeletal pain sites leads to increased long-term healthcare contacts and healthcare related costs, 2021, Mose et al

    Really? I didnt read in that way, but i must admit i only skim read. It's possible i fell into the trap i criticise Drs of doing... :oops: and interpreting what i think is being said rather than whats actually being said. If thats what i've done then i apologise to the researchers unreservedly...
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