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  1. JemPD

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Oh... what a truly wonderful thought, the relief that would be makes me tear up just thinking about it.
  2. JemPD

    Covid-19 vaccination experiences

    I personally wouldn't want to have them both on the same day. Perhaps i'm wrong but the 'one in each arm' scenario, seems to me be to be driven by convenience for those administering it rather than what's best for patients. Not suggesting they would do something that's harmful, but we cant be...
  3. JemPD

    Covid-19 vaccination experiences

    Have any of you had your covid booster jab yet?
  4. JemPD

    On line ‘survey’ re UK CFS/ME specialist services

    All the questionairre shows is that people feel free to say what they like on social media because there is little chance of the people they're complaining about finding a way to punish them for saying so, directly. And that most people, if they do feel safe to say what they like, will tend to...
  5. JemPD

    Do adolescents w/CFS/ME & co-morbid anxiety &/or depressive symptoms think differently to those who do not have co-morbid psychopathology?,2020,Loades

    Some of those questions are absurd as a measure of depression/anxiety! Feeling nervous before taking a test.... i never met anyone who didnt. I mean i know some people dont, but surely the majority of people, regardless of age, feel nervous before an exam/test. Pop by a driving test centre &...
  6. JemPD

    Mattress toppers that don't make you too hot?

    Glad others are doing similar! lol my plumber thinks i'm a nut job i think, & yes the boiler service goes into more rooms than you expect doesnt it, i was horrifed whe he started traipsing round! but he's a kind bloke so he humours me :D
  7. JemPD

    Do adolescents w/CFS/ME & co-morbid anxiety &/or depressive symptoms think differently to those who do not have co-morbid psychopathology?,2020,Loades

    Every depressed person i know (which admittedly is only 4) plus myself at times, when they are very low, tends to feel less optimistic & about things in general, but i was under the impression, that this was *because they/I am in a bout of depression. Not the other way around. Put more plainly...
  8. JemPD

    Mattress toppers that don't make you too hot?

    Yeah its a bummer @Sasha . I am also still shielding apart from my carers, who all wear N95 masks & overalls. But...Just in case its helpful.... I have been forced to have workmen/delivery men into my house, including upstairs, a total of THIRTEEN times this year, including to deliver a new...
  9. JemPD

    Mattress toppers that don't make you too hot?

    @Sasha, of course you may like it, but given the thread topic i thought i should mention that i have found feather/down toppers very hot in the past - you could try the effect of a topper by sleeping on top of a couple of feather duvets, it's roughly the same experience. In summer i found them...
  10. JemPD

    Mattress toppers that don't make you too hot?

    ahhh. I have 2 woll ones, one atop the other to give sufficinet cushioning. i guess if it were a latex or memory foam type you wouldnt necessarily need it because the weight of it would be enough to hold it in place
  11. JemPD

    Do adolescents w/CFS/ME & co-morbid anxiety &/or depressive symptoms think differently to those who do not have co-morbid psychopathology?,2020,Loades

    1) So they need a study to tell them that people who have depression are inclined to think more negatively? I'm not going to read it because i have heard it all before & better things to spend my energy on. But I cant believe for a second that they did this study to explore anything or test...
  12. JemPD

    Mattress toppers that don't make you too hot?

    What a marvellous idea but doesnt that make it baggy? how do you tuck in under around the elastic corner straps which hold the topper on to the mattress?
  13. JemPD

    Mattress toppers that don't make you too hot?

    You can get different depths of fitted sheet - eg from MArks & spencer - My mattress is very thick plus about 5cm of toppers & the Extra Deep Fitted sheet size fits it fine. for example Comfortably Cool Extra Deep Fitted Sheet | M&S (marksandspencer.com) fits depth of up to 15 inches There is...
  14. JemPD

    Compression Garments

    I bought the compression tights, but i cant tolerate the intense sensory input of the squeezing on the whole leg & hip/tummy area. They're not very tight & i am not feeling at all well today, so i will try again on a better day, but it just feels like sensory overload at the moment, no benefit...
  15. JemPD

    Mattress toppers that don't make you too hot?

    Thanks for that Mij, i found a company that offers a money back guarantee Latex Sense Ultimate Talalay Latex Topper - Natural Talalay Latex Toppers - Latex Sense so i might try it. Also a silk duvet Mulberry Silk Duvets | Jasmine Silk that seem to have a money back guarantee. As you say very...
  16. JemPD

    Mattress toppers that don't make you too hot?

    Thats interesting Mij, do you 'sink into' the foam like with memory foam? I cant use memory foam because you have to kind of lift yourself out of the hole in order to turn over, which i do a lot i am a very fidgetty sleeper. I once got stuck & couldnt turn over while in a bad PEM state i was so...
  17. JemPD

    Mattress toppers that don't make you too hot?

    @Sasha I'm assuming you've checked to confirm it is actually the topper thats causing the issue? ie that it doesnt happen when you're on a different sleep surface? If so i recommend wool topper from the Woolroom. Wait till they have a sale on, they have them every few wks. (edit, the one Andy...
  18. JemPD

    Migraine treatments

    Wow Airy's picture is exactly like my migraine aura! That spreading out from a spot in the centre into a crescent.... eventually over about 30mins it opens up & then gets so wide it eventually disappears... which is when the vomiting starts.
  19. JemPD

    Esther Crawley

    Shudder
  20. JemPD

    United Kingdom: ME Association governance issues

    What a succinct summary of how we are completely stitched up. Would you mind if i printed that off & used it personally @TiredSam ? Its just a good aide memoire of the situation - was trying to explain to new carer recently & got lost in the details. No prob if you not comfortable with that of...
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