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One thing i would love to know, is whether any of these chairs/scooters are drivable by someone standing/walking with you... like a bicycle would be. I ask because ive never investigated getting one despite hating the fact that i have to be pushed everywhere in the manual chair & i'd love the...

great @Trish perhaps this study has already been thoroughly critiqued & the crit is the subject of this complaint Members only - Reddit post: "Nothing about us without us" advocacy group making research more difficult. How to handle? | Science for ME (s4me.info) It just research such as this...

I hope you will write to them @Trish you have written very eloquently there. I wish Jonathan were overseeing these projects, if we could clone you thatd be marvellous :D

I take major issue with participants not having to have a formal diagnosis! So everyone who thinks they feel 'tired all the time' & therefore believes themselves to have CFS but actually maybe have depression, and those who fart a lot & decide they have IBS, or those who decide they have fibro...

I am very sensitive to smells too, and have bought and used those sheets without een washing first, on more than one occasion if i remember correctly. So witha good long wash i think they would be fine, for sure they have no ongoing smell like other things have done in my experience. And i can...

Well its taken 17 days but i finally feel back to my normal. The intense flu like feeling with chills & major body aches & horrid headache, plus drowsy sleepy crushing fatigue appeared at 24hrs ish, lasted till 72 hrs (only difference between it & PEM is that jab side effects give no cognitive...

yes actually i bought couple of sheets from there not long ago i will look which ones, they were very smooth & soft ETA: White 300 TC easy care cotton with tencel

Just a note that jersey sheets i find much too hot.

I need sheets to be uber smooth, i find even high count cotton too rough, especially when not ironed, & silk feels too 'weird'. i use these, very cool & smooth. They only do plain though Comfortably Cool Duvet Cover | M&S (marksandspencer.com)

Noticed you posting & wondering how are you feeling @Jonathan Edwards ? ... been thinking about you after reading omicron on another thread hope you ok?

Thanks @Snow Leopard would it be accurate to say it is scientifically impossible for a PCR test to give a positive result for any other virus than the one it is testing for? And, if so, wondering how i can prove that is not merely my opinion?

Now 8 days since pfizer booster & i feel bl'dy awful. I started day 2 with 'flu like' - to be expected. But it hasnt gone away yet. Not panicking, just very fed up. At least i hope it's still the jab effects... if its now PEM, after the minute amount of activity i been doing... that would...

Just had a disagreement with someone who believes that the PCR test gets covid confused with flu & that a lot of the positive reuslts are for flu but reported as covid. Citing this as evidence Lab Alert: Changes to CDC RT-PCR for SARS-CoV-2 Testing - ie that the CDC are stopping using it. But i...

Sound sensitivity. In my experience there are few places louder than a hospital ward. Hi @Jjess welcome to S4 I'm sorry i cant help with your question but i hope you manage to find what you need

Is that a spoof? he is gonna get some seriously gross photos if he not careful! in addition.... I would love to 'enjoy' my wild & precious life, you patronising ***! but all i can do is endure it, and your BPS cronies are a big part of the reason why.

sounds like a youtube ad. dangerous nonsense

Gp training... ugh God forbid

such a hard decision, i feel for you & the others here in similar predicament. the worst of it is having no useful medical involvement, knowledge, support, as usual we get bugger all :emoji_unamused:

I'd be so happy if any one of those photos was used instead of the usual awful pics they use. well done sasha & simon & everyone who contibuted i hope charities will runwith this

well i had pfizer thought i was goin get away with it, but yikes 26hrs on same, the aching all over + nausea are gettin intense, no fever yet hope it desnt come.