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All floor tiles have to be slip resistant these days, so do make sure they are suitable for bathroom floor, the retailer will state this. But there are different rates of slip resistance - eg 'medium SR' or 'high SR'

Yes depending on how severe you are and whether patterns ever affect you, i'd definitely wanting to take several tiles home with me to look at them, 'en masse' in the room you want them in, while you are at your worst, eg with a migraine if you get them. You dont want to discover you cant cope...

just as an aside, and not to take over the thread, but if you live in a house built before around 1940, then the terracotta tiles may be laid either direct to substrate or on lime-crete rather than on concrete, which means it will be breatheable - if you put vinyl straight onto that you will get...

I was given something similar to use to get stockings on, but its muchwider than my leg so it was more difficult for me to get the stocking onto the device, than onto my leg! i didnt have the hand strength to stretch the thing that wide, it was very irritating/frustrating trying to hold it &...

I have glossy white tiles, which cause me no issue, but only on one side around the bath - so not whole room & not on the floor, and i have a regular pendant lightbulb in middle of room, with a paper lantern shade on it (so at no point can the bulb be seen unfiltered/un-diffused, so it cant...

Its absurd @ahimsa & it has been going on a good while. see the thread i started about it here Members only - Bizarre mask policy at dentist & vaccination centre | Science for ME (s4me.info) I have developed a tactic against the stupidity which avoids an argument that i got no energy for. I go...

yes i get the same. I hypothesise (in a very 'lay' manner), that the body also releases adrenaline when it is injured/physically in trouble. So if i inadvertently overdo it a lot - eg i get very 'into' doing something & dont realise how much i'm doing (eg on S4 or some other cognitive task) then...

Our experiences sound very similar Mithriel I dont call those 'immune symptoms' a flare, because they are not present at baseline when i well rested, they come post exertion. I have other symptoms that i get that sometimes flare up even when i well rested those i call a flare, although tbh i...

Its while since i read this thread, wasnt well enough to comment at the time & not up to reading it all again now but i wanted to say that for many yrs i been wishing researchers would look into what happens in the bodies of PwME when the sympathetic nervous system is activated, because for me...

It seems quite worrying to me. I worry that very few people with PEM as part of their ME, (except those at the very mildest end who are very easy to misdiagnose) will be able to sign up for this. I mean ok they might want to be sure to trigger PEM, but those who cant do the 25mins wont sign up...

Hi Mike & welcome :) I cant offer any kind of insight, but FWIW i also am often confused and disappointed about research that sounds good to me, but which when you get a more knowledgeable critique isnt nearly as exciting as it sounds! Its a bummer that the quality of the research is often so...

yes, i mean what are they doing anyway?

I do like the highlighting of social care/adaptations in the document. Although i wish it said 'Access to social care support & aids/adaptations'. Rather than simply social care, as in 20 yrs i only ever met one HCP who thought anyone with ME needed them!

Oh goodness yes, it worries me that DwME would be recommended i mean some of them are marvellous & the CPD module from Nina Muirhead is great i think, but yikes some of it, the bits Jonathan referred to, & especially the communications stuff banging on & on with their favourite term...

I like the examples of good practice in the document, but like @Nightsong i worry about who these 'experts' might be. It'l be likely disastrous if those who argued so vociferously against the GL changes were the ones given the task of implementing them!

completely agree

Just a thought... perhaps young people are more used to video culture, but while i would be happy to speak and give an audio recording, i would never want to release a video of me sharing personal things... not enough control as to what happens to it afterwards. I mean of course you know you...

Wouldnt it be marvellous if PEM was feeling 'ill at ease'!!!!!!!!!!!!!!!!

my bolding. Eww. Lets hope that's a tranlation issue, but 'directed at' in english is quite aggressive. Which seems in keeping with the point preceding it :(:emoji_angry:

I wonder if there is a link to something other than an unreadable photograph? That looks very useful. Also, whats with the cucumber hanging over that woman's head? :D