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Sounds good :) @Andy just wondering if we have any indication how the “spit kit” returns are going? Last I heard there were about 4K still out there unreturned? Wondering how we can help encourage people?

Well done for raising that! But if I were you, considering your location (kings) I’d be inclined to be suspicious about why they asking about MEA membership... :cautious: And to quietly untick that box... what do they want to know for anyway, do they ask people with MS if they members of the MS...

Typical 'alternative' health practitioner's approach. If you feel better while taking the supplements = it must be the supplements that are responsible, because correlation equals causation If you feel nothing while on them = its still working, because they know it works. If you feel dreadful...

eh? 'yet to be considered'? its all that seems to get considered!

but dont worry about that pesky neural degeneration, because CBT will sort it out

Me too! Great news :)

Oh no

brilliant it'd be great if she'd join us here

i assume iys this UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023 | Science for ME (s4me.info)

Thanks @Kitty Also from that news article my bolding

I hope people will email their comments on this thread to the MEA who are asking for feedback. OTherwise the MEA are likely to tell BACME 'oh yes its better than before, lovely thank you'

Moved posts Someone i know just posted this on fb is this any good as a video ? is the info accurate i am too ill to watch it. anyway am posting here as it mentions ME/CFS & the scientist Sabine Hossenfelder has been on the forum before i think although i cant find it i think it was in a...

They can - i asked on the B&W forum a while back (moderated by people who know) and they confirmed they can see the other awards and have access to the assessment reports.

ugh.. i feel for you. Hoping & praying it goes well for you. Should you want to you can ring them to find out when the next schedued review is due - as i shared in my post earlier, it doesnt mean they will def do it then, but it helped me to know when it wasnt due/planned at least

We are all making ourselves sicker trying to read up & understand it all, & the added terror & distress. Its so very wrong.

yeah :( so it looks like there is no assurance of the 'currently' & 'today' comments being accurate in a literal way doesnt it? IT looks like i have no choice but to spend all my strength & more on prepping for a reassessment that may not even happen:cry: One wonders how they make these...

did they give you the figures for ESA or was that not what you were interested in? I'm on legacy ESA

Benefits and Work News item regarding restarting reassessments as of september 2023 More WCA reviews to be carried out, DWP warns (benefitsandwork.co.uk)

Not a comment on her or the content of the article, just posting for information Welsh doctor, 64, who recommended patients use livestock dewormer to treat Covid and other 'potentially harmful' substances is banned for an extra year | Daily Mail Online