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I havent followed the thread too ill so apologies if this is already said. But i think its a potential nightmare IN THE EXTREME to try to get anyone interested in a drama at this stage - until we have uncontrovertible proof that ME/CFS is organic. I think its highly, highly likely that you will...

thaks @Andy

havent the energy to listen to it but am interested to know what the covid conspiracy theory was that arose from the Mikovits events... if anyone knows briefly what that is?

How can that be an adequate control group! :rolleyes:

Good luck to him/them

I remember thinking 'sounds like NHS/Benefits people about ME', when i heard about the PO situation too.

Sorry you went through all that @MeSci (trauma>addiction>treated so badly by the PO) you done amazing. Sorry too to hear about your local sub PM. Terrible just terrible to not believed & not to live to see this which i am sure would have helped him feel vindicated. OR at least be an 'i told you...

I was aware of the post office scandal a lot of yrs ago, must have read something about all the wrongful convictions. What i've been thinking this wk, is how they got away with the terrible miscarriage of justice ruining so many people's lives, for so many years, until suddenly there's a tv...

oh :banghead: You cannot possibly even have a 'mouse model' of ME. PEM is not 'healthy mouse/human having done much more exercise than they're used to'. You cant possibly give a healthy organism 'enough' exhaustion to trigger PEM. PEM is not PEF...

agreed

Just catching up with this thread and not at my best so can only get to page 6 - apologies i know i very behind in the discussion & things have likely moved on but just wanted to make these points now while i think of them I gree. In addition, being driven in a car, even without the sensory...

I absolutely loved Afterlife his comedy about a suicidal guy on Netflix. Wasnt at all offended by the character in it who says they has ME, with the emphasis on 'says'. Its obvious, or at least it was to me (& i am very easily offended by anything approaching ridicule of PwME), that it was about...

Havent the energy to read the article, and i of course agree with the fact that the psychosomatic paradigm has harmed us. But, are the 2 quoted statements actually correct? Have we got robust evidence of organic abnormalities, & do the 'majority' of researchers classify it as organic?

this was precisely my thought too, almost word for word

Ahh.... thanks for correcting me, i have edited my post accordingly

poor woman. as if normal lab findings didnt also happen in LC Fool. Seems she's read about 3 accounts of LC, i've seen loads of people say they cant cook or do other ADLs & dont feel safe to drive. vision disturbance is really common in ME. It really pisses me off that these thickos who know...

when oh when will the seemingly never ending torrent of effluent about fear avoidance cease. How much more can we take, really, i mean how long must we endure it, they pour it out, and then just keep making more, and more and more it feels exponential. Our heads are bleeding from banging our...

The way he talks you'd think that 'viral persistence'/over active immune system were relatively new ideas. People have been waffling on about it for decades

Yes and look at all the studies listed below it from the 80s... havent read them but... be interesting to get a sense of their quality. @Andy have you read the study? i havent the energy right now but just wondering whether the controls were sedentary or active. If the controls were active...

yes pretty sure it was done by Peter Behan. Or at least with his involvement. I think Dr S talks about it in his book, also it might be referred to at the intro of the muscle research section of the MEA purple book, but i cant be sure. Dont know where my copy is & no spare energy to look for it