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Thanks to those who continued to patiently explain things after I logged off last night.

I've no doubt that Alastiar's experience, gleaned as it is from highly constrained 15 minute consultations with a selected subset of patients, is way more valuable than the collective experience of us patients here on S4ME. We are way too "vociferous". If you want to understand the lived...

I love that use of the term "pre-disposing illness". Just to leave no doubt he thinks that your psychological freak-out about exercise is only tenuously connected to that illness.

I must go now, @petrichor, thanks for the discussion. If there's anything else you'd like to add in the discussion or if you have any questions about CBT, psychotherapy or behavioural interventions or anything else in my line of work, just tag me.

Its not easy to pick it all apart, I know. The whole thing is further complicated by the doublespeak people use in the area. Researchers will say certain things that conceal what they really think, to make their treatments more palatable to patients and therapists. Have another think about your...

F****adoodledoo!

A lot of sociology around this area is much more assumption free. They don't make any stand on what the truth is around causation, they just describe the social phenomena surrounding patienthood - invalidation, the search for meaning, seeking permission to occupy the sick role, etc.

:rofl::rofl::rofl::rofl:!!! LOVE it when people support their statements by mentioning some other person who believes as they do. "Alien abductions occur frequently (Ted Smith from down the road, Travis Walton, Elvis Presley)."

Yea, wot @Esther12 said. Pacing and GET are mutually exclusive approaches, based on entirely different illness models. Pacing involves discovering and working within your limits. GET involves stretching those limits. Any programme that encourages people to gradually increase their exercise is...

Now, look at the text you've just quoted. What is it saying? That in addition to the CBT I described above, they also encouraged people to improve their sleep hygiene by prohibiting daytime naps, etc. What do you think about that? What assumptions is that approach based on and do you agree with...

Arghhh!!!! :mad::mad::mad::mad: You must have been ready to explode!

That's was a really useful post in increasing my understanding, @Jonathan Edwards. I guess that's what was running through mu mind about dual diagnosis of autoimmune disease+CFS. The fatigue is probably linked to the autoimmune disease. But in @TrixieStix's case, there really do seem to be...

Interesting find. I'm hoping the slightly different spelling means its not the same person: I suppose if it is, then she changed her mind. That's encouraging.

Actually, the study itself (link here) provides some contradictory information about their approach, and I would recommend extreme caution in interpreting it. Pacing was actually used as a precursor to GET, which was the primary intervention hypothesised to have treatment benefits. The pacing...

One for those who enjoy being wound up by this stuff. The main example they discuss is fibro, not ME, but that's unlikely to reduce your outrage. It is interesting that this sociologist is unquestioningly buying into the assumption that those with contested illness are not really ill at all...

In what way, @Invisible Woman? Can you give me some real life scenarios that have stumped you when you've had PEM?

I wonder why the CBTs are thinking so catastrophically about menopause's effect on the workplace. Lots of overly negative thoughts there. Perhaps they've been ruminating about how awful things could get in the worst case scenario. Fortunately, you have CBT to help you deal with those!

!!!!!!

Good suggestions, @Peter Trewhitt. I'm not sure about visual processing, spatial memory or short-term verbal memory - are these major features of ME related cognitive impairment? (I need to ask people because I don't get much brain fog myself). Up to now, I've been keen on the idea that ME...

I've been watching Future Man, and I just learned you can shove cocaine up there too. Maybe coffee is a gateway drug...