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This is a study making use of samples collected by DecodeME, where participants agreed that samples could be shared with other researchers. Summary - REQ001 Human herpesvirus 6A (HHV-6A) and 6B (HHV-6B) are two, closely related viruses that infect humans. We often refer to them collectively...

$27,533 raised, 42% of total, 15 days left. https://crowdfund.berkeley.edu/project/42302

My take is that all the other symptoms are bad enough, but what adds additional disability is PEM. I either overexert myself in trying to overcome, however temporarily, the restrictions put on me by the other symptoms and trigger PEM and have my low functioning level forcibly reduced, or I limit...

‘I’m fighting for the right to live’: Liz Carr on acting, friendship and her campaign against assisted dying "Surely, though, assisted dying is about personal choice? Even if legislation were brought in and included “unbearable suffering”, which might make someone with Carr’s condition...

Poor maternity tolerated as normal, inquiry says An inquiry into traumatic childbirths has called for an overhaul of the UK's maternity and postnatal care after finding poor care is "all-too-frequently tolerated as normal". The Birth Trauma Inquiry heard harrowing evidence from more than 1,300...

Highlights A conservative strategy favoring accuracy was adopted during a cognitive task that induced mental fatigue Mental fatigue during a cognitive task leads to a decrease in sympathetic activity with increasing time-on task Mental fatigue induced by a 30-min effortful cognitive task...

Published papers thread for w/c 6th May Facebook: https://www.facebook.com/sci4me/posts/pfbid02KjLi9AcdFHEbipxuNiTWppaUf6ikJ6K3VbZ9tQHbiuiSzvgUtrbqrqx44KKt3ptWl Mastodon: https://med-mastodon.com/@s4me/112432670820840047

Abstract Background Psychological interventions are a promising area for fatigue management in patients with inflammatory bowel disease (IBD). However, most interventions trialled to date have been pilots with limited direct input from patients about the type of intervention they want. Thus...

[Note: All auto-translated from original German by Google] Objective: This scoping review aims to provide an overview of previously published treatment strategies that are multimodal and not purely drug-based and are suitable for home- or bed-bound ME/CFS patients. The focus is therefore on the...

News in Brief post for w/c 6th May. Facebook: https://www.facebook.com/sci4me/posts/pfbid03HAwBD7fqPzSx4LFdhD9Cx9fVjwhus7kAGiFeX6zcuqGV4QC9VbEcFVjh3diwRMyl Mastodon: https://med-mastodon.com/@s4me/112427355290032390

Revealed: people with cancer, arthritis and amputees among 40% denied UK disability benefits "The government is rejecting more than 40% of applications for disability benefit from people with multiple sclerosis (MS), cerebral palsy and arthritis – and one in four applications from amputees, the...

Abstract Background It is generally accepted that endothelial cells (ECs), primarily rely on glycolysis for ATP production, despite having functional mitochondria. However, it is also known that ECs are heterogeneous, and their phenotypic features depend on the vascular bed. Emerging evidence...

His relative or this, UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group and Living with ME Working Group) and consultation?

My, effort limited, reaction to Nath's continued whinging is probably best not said. I didn't hold out much hope for the intramural study before they published; I've now lost all hope that NIH intend dealing with ME/CFS in any serious way.

Link to study thread, UK: Investigating the presence of Micro Clots and other blood factors in people with ME/CFS, Sheffield, Caroline Dalton

I believe the stated reason was that it would hinder the chances of it being published in a more notable journal than would happen if they published a preprint.

Blog from @Simon M about this work with a focus on the non-clot aspects. Researchers hunting for ‘something in the blood’ of people with ME "Several small and quite different ME/CFS studies have come up with the same tantalising finding – and now a team of two very talented resarchers, one a...

"When will we get a sterilizing Covid vaccine?" Most likely well before Cochrane take any positive action on their review of exercise for CFS....

Yes, but it is distinct from, for example, the MRC or NIHR who more commonly fund (the currently inadequate levels of) ME/CFS research.

Published papers thread for w/c 29th April. Facebook: https://www.facebook.com/sci4me/posts/pfbid0hCSc3tVQTve3KJyuUwRwKMiFDkFSKSeBLeHdRz13ZMbEKmm4Q8mQ4Dk5969udDBVl Mastodon: https://med-mastodon.com/@s4me/112393118917887840