Search results

News in Brief posts for w/c 20th May. Facebook: https://www.facebook.com/sci4me/posts/pfbid02kXD2YVL5SCNdQpLuvQwqc3dem4fhZ3f2a1zoPqijPspfowwFsRg2Pv6mTDZu76w6l Mastodon: https://med-mastodon.com/@s4me/112506967908292801

Trial By Error: BBC Takes on Lightning Process and Highlights Perspectives of the So-Called “Anti-Recovery Activists” With the advent of Long Covid, LP practitioners began to claim that they could cure this emerging condition as well. Just like the claims about ME/CFS, this one is not supported...

Experience: ‘I woke up with a Welsh accent’ "I kept my Kent accent through my adult life. Then in 2022, I developed functional neurological disorder (FND), a condition that disrupts how the brain communicates with the body. It caused mobility issues and seizures, but I would also sometimes...

Abstract The diagnosis and treatment of long COVID patients is challenging. Our aim is to share lessons learned using a multidisciplinary approach within the Veterans Affairs system. Our long COVID clinic is based in primary care but has imbedded rehabilitations specialists, nutrition. whole...

Full title: Psychological Therapy for Functional Neurological Disorder: Examining Impact on Dissociation, Psychological Distress and General Functioning ABSTRACT Functional neurological disorder (FND) represents a broad group of motor and sensory clinical symptoms which cannot be explained by...

Abstract Functional visual loss is a subtype of functional neurological disorder (FND) and is a common cause of visual impairment seen in both general and neuro-ophthalmological practice. Ophthalmologists can generally diagnose functional visual loss reasonably confidently but often find it...

Following the announcement of the UK's General Election yesterday, AfME have posted an update, which includes, "From Friday [24th May], Carol Monaghan, Chair of the APPG and the Inquiry Panel, will no longer be an MP as will be the case for the other Panel members; APPGs also cease to exist...

Currently 10,906 signatures, https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

This, Unequal access to diagnosis of myalgic encephalomyelitis in England, 2024, Ponting and Samms, might be of use.

David Strain was appointed medical advisor to AfME in July 2021, United Kingdom: Action for ME (AfME) news

"Work to develop three E-learning modules has been overseen by Dr David Strain (Medical Adviser to Action for M.E.) and Essi Niitymaki (TEL Education Content Senior Project Manager, NHS England). Also involved were a group of clinicians with an interest in ME/CFS, charity representatives...

APPG on ME - Severe ME Inquiry The All-Party Parliamentary Group on ME (APPG) has launched its inquiry into Severe ME. Action for M.E., the ME Association, and the 25% M.E. Group will be working closely to support the APPG throughout the inquiry’s duration. The purpose of the inquiry is to...

One trial has resulted in three papers. As well as this main paper, there is: Which factors predict outcome from specialist physiotherapy for functional motor disorder?... 2025, Nielsen, Stone, Carson, Edwards et al Cost Utility of Specialist Physiotherapy for Functional Motor Disorder...

Inquiry to begin into DWP’s treatment of ill and disabled people on benefits "The treatment of chronically ill and disabled people by welfare officials, including benefits decisions subsequently linked to the deaths of vulnerable claimants, is to be formally investigated by Britain’s human...

Personally, given that this is an event organised by a UK organisation, I would have preferred to see this topic covered by the 25% ME Group, who are both based in the UK and specifically focus on this group of patients. adn this could have been covered by, perhaps, someone from ME Research UK...

The claim By Ron about patients having MS has previously been discussed here, if it helps, Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

Abstract We introduce here a general model of Functional Neurological Disorders based on the following hypothesis: a Functional Neurological Disorder could correspond to a consciously initiated voluntary top-down process causing involuntary lasting consequences that are consciously experienced...

Published papers thread for w/c 13th May. Facebook: https://www.facebook.com/sci4me/posts/pfbid0j51EPaDCNnTnDQj8zJm3sTk8aNYiK3W1kAbgNVxbYY7Ua9eZSrKPWbGutjiU7F8yl Mastodon: https://med-mastodon.com/@s4me/112472430880784636

Ignoring the jumbled confusing use of ME, CFS and ME/CFS in the abstract. "Consenting individuals completed the following three questionnaires: 1) Symptoms Assessment Questionnaire (SAQ) for diagnosis confirmation, which is a symptom specific questionnaire for ME/CFS diagnosis aid [25]; 2)...

Not directly about FII or ME/CFS but demonstrates the 'wider landscape' around these sort of issues. Schools in England send police to homes of absent pupils with threats to jail their parents Some schools in England are sending police to the homes of children who are persistently absent, or...