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Post to Reddit of the News in Briefs from May. https://www.reddit.com/r/cfs/comments/1d5kmma/news_in_brief_posts_for_may_2024_covering_mecfs/

Yes, https://www.decodeme.org.uk/data-access/

We have existing threads for general discussion of DecodeME, UK: DecodeME updates, was recruitment thread., and the first publication from the study, Typing myalgic encephalomyelitis by infection at onset: A DecodeME study, 2023, Bretherick et al What I want to highlight with this thread is...

I wondered if Scamvougeras had written about ME/CFS, and of course he has. He has co-published Understanding and Managing Somatoform Disorders - A Guide For Clinicians, which is available via Amazon, and has its own website...

From Conversion to FND: An Interview With Anton Scamvougeras "Anton Scamvougeras, MBChB, FRCPC, is a neuropsychiatrist in the UBC Neuropsychiatry Unit at the University of British Columbia in Vancouver, British Columbia. He directs the Adult UBC Tourette's Clinic and since the mid-1990s has had...

Full title: Probing Long-Term Impacts: Low-Dose Polystyrene Nanoplastics Exacerbate Mitochondrial Health and Evoke Secondary Glycolysis via Repeated and Single Dosing Abstract Nanoplastics (NPs) are omnipresent in the environment and contribute to human exposure. However, little is known...

The title is crap - non-epileptiform seizures triggered by "severe post-partum hypothyroidism" that responded to treatment for that hypothyroidism seem to be most definitely not psychogenic.

Abstract This study details the development of severe post-partum hypothyroidism exacerbating psychogenic non-epileptiform seizures (PNES) and culminating in myxedema coma. A 29-year-old female with a history of anxiety, attention-deficit/hyperactivity disorder (ADHD), and post-partum...

Background: In addition to the morbidity and mortality associated with acute infection, COVID-19 has been associated with persistent symptoms (>30 days), often referred to as Long COVID (LC). LC symptoms often cluster into phenotypes, resembling conditions such as fibromyalgia, postural...

In case it is useful. "A total of 14,789 (86.6%) participants met CCC and/or IOM/NAM criteria" Typing myalgic encephalomyelitis by infection at onset: A DecodeME study, 2023, Bretherick et al

All that is reported in the case report takes place less than one full year from the subject's confirmed Covid infection, so nothing to suggest that this person might not have recovered naturally without taking random drugs.

"In response to increasing requests for advocacy support from people with ME/CFS in hospital, including those more severely affected, The 25% ME Group, Action for M.E., Blue Ribbon for the Awareness of ME and the ME Association have co-produced a new resource. Supporting people with ME/CFS in...

Twitter thread from Dr Mark Faghy from Derby University starts here Selected quotes from thread "The third speaker spoke about clinical screening and determination of #LongCOVID, suggesting that treatment approaches should be compartmentalised to target symptom domains... here were some of...

DESCRIPTION The emergency phase of the federal COVID-19 response ended in May 2023, but concerns remain about health impacts from post-COVID conditions, or long COVID. According to CDC, in Spring 2023, 4.6% of US adults reported activity limitations from long COVID symptoms, suggesting that...

Blog previously posted here, Blog: The Science Bit by Brian Hughes

$65,450 raised, target reached!

Abstract We report the case of a 7-year-old boy who presented with post-viral myositis, rhabdomyolysis, and hepatitis, who was later readmitted due to a seizure-like activity and ultimately found to have episodes of recalcitrant polymorphic ventricular tachycardia secondary to simultaneous QT...

Also see People from ethnic minorities seeking help for Long Covid: a qualitative study 2024 Smyth, Chew-Graham et al

The irony of Chew-Graham publishing something that includes, "Empathy, validation of experiences, and fairness in recognition and support of healthcare needs are required to restore trust in healthcare." shouldn't be lost.

Background: People from ethnic minority groups are disproportionately affected by COVID-19, are less likely to access primary healthcare and report dissatisfaction with healthcare. Whilst the prevalence of Long Covid in ethnic minority groups is unclear, these groups are under-represented in...