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Obviously some of us here on the forum question how accurately these questions from the DSQ actually represent PEM. "2.5.1 Post-exertional malaise In the DSQ-PEM, respondents rated five items over the previous 6 months on frequency (never, sometimes, about half the time, most of the time...

"Additionally, the questionnaire included the validated DePaul Symptom Questionnaire Post-Exertional Malaise (DSQ-PEM) (22) and four items from the DePaul Symptom Questionnaire-2 (DSQ-2) regarding OI (23, 24), and experienced symptoms (44 pre-listed) with severity scores (range 1–10)." So a...

Now published. Background: Exercise-based treatments can worsen/exacerbate symptoms in people who were SARS-CoV-2 positive and living with post-COVID-19 condition (PL-PCC) and who have post-exertional malaise (PEM) or orthostatic intolerance (OI). Nevertheless, PEM and OI are not routinely...

With the help of someone and a bit of investigation, it certainly looks like the MEA doesn't offer a current list of their funded research on their website. They announce news of funding awards in the News section of their website, such as The ME Association and ME Research UK announce funding...

Abstract Myalgic Encephalomyelitis / Chronic Fatigue Syndrome is a debilitating, multisystem disease of unknown mechanism, with a currently ongoing search for its endocrine mediators. Circulating microRNAs (miRNA) are a promising candidate for such a mediator and have been reported as...

No, sorry, it isn't. Obviously though we will compare our genetic findings with that of other studies, and noting any reasonable connections if there are any.

"Conflicts of Interest: The authors declare no conflicts of interest. Dr Mantle is medical adviser to Pharma Nord (UK) Ltd." I hope nobody will be surprised to learn that Pharma Nord "develops, manufactures and markets dietary supplements, herbal remedies and medical drugs." including ...... CoQ10.

December News in Brief post to Reddit. https://www.reddit.com/r/cfs/comments/18vtwj3/news_in_brief_posts_for_december_2023_covering/

Published papers thread for w/c 25th Dec. Facebook: https://www.facebook.com/sci4me/posts/pfbid0kYDes2TnukUDfnPFxRodbRYoZBfg2gjViiyKMvwYCoy7jdSpf6Ypq9zb7KyqH9ZAl Mastodon: https://med-mastodon.com/@s4me/111680099935746517

Abstract Since 1969, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has been classified as a neurological disease in the International Classification of Diseases by the World Health Organization. Although numerous studies over time have uncovered organic abnormalities in patients...

News in Brief posts for w/c 25th Dec. Facebook: https://www.facebook.com/sci4me/posts/pfbid02CMpKpyW9oe5Zf5zrCUv5g6wCAr2WgmYH8PhjVQbCHq6C9tpqcWdrF6zT62gC7tFFl Mastodon: https://med-mastodon.com/@s4me/111674426720727646

Trial By Error: Disastrous Results for Professor Crawley’s Pediatric Online CBT Trial Pediatrician Esther Crawley, Bristol University’s mathematically and factually challenged grant magnet, has released what seem to be the first outcome results from her much-hyped but fatally flawed FITNET-NHS...

Thanks for compiling this list Kalliope. Many of those links, for example the last three above, seem to point to the Apple site though - is that the same for anybody else?

Thanks. For the purposes of this thread then it doesn't count as not funded by a UK source.

Do we know who is funding the main part of the study? I can see that from the patient participation information sheet that part of it, that involves Audrey Ryback, is funded by AfME.

Public Funding Via https://gtr.ukri.org/ DecodeME https://gtr.ukri.org/projects?ref=MC_PC_20005 Forum thread - https://www.s4me.info/threads/decodeme-uk-me-cfs-dna-study-underway.15604/#post-268677 Back to Normal: A study of recovery narratives...

ME Research UK Source - https://www.meresearch.org.uk/research/current-projects/ Current projects Dr Doug Barrett, The impact of ME/CFS on visual sensory processing and selective attention (PhD) Prof. Jo Nijs, Links between mitochondrial function and the autonomic nervous system in...

ME Association Source - https://meassociation.org.uk/research/research-projects/ - [I'm not sure how up to date this list is, but it seems to be all that is available] 1. Dr Nicola Clague-Baker, University of Leicester The ME Association is excited to announce a new research study that will...

Invest in ME Source - http://www.investinme.org/ce-projoverview.shtml A role for a leaky gut and the intestinal microbiota in the pathophysiology in ME, Simon Carding et al, Quadram Institute “This project will determine if alterations in intestinal barrier function and/or microbiota exist...

Action for ME Source - https://www.actionforme.org.uk/research-and-campaigns/our-research-work/our-projects-and-phds/ The first Clare Francis Research fellowship was awarded to Audrey Ryback. Audrey will be affiliated to the Genetics Centre of Excellence at the University of Edinburgh, with...