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  1. Andy

    A disease-associated gene desert directs macrophage inflammation through ETS2 [in IBD] 2024 Stankey et al

    Simple answer is I don't know if we will or won't. I suspect that as we are looking across the whole genome, some of our results will come from what are currently considered to be non-coding regions, but I have asked the question of the team, and will come back with an informed answer.
  2. Andy

    The MEpedia Primer for Journalists

    https://www.s4me.info/threads/blog-the-science-bit-by-brian-hughes.17272/
  3. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Thanks to Solve for promoting the petition on social media. Facebook: https://www.facebook.com/SolveMECFSInitiative/posts/pfbid0Te37stELrfYaGZUyFK2XqNwrmpLxrJSBR7DzSHC63PoBoFdEnUV7B3pGkE28d4szl
  4. Andy

    European ME Coalition ME/CFS Pledge for the 2024 European elections

    Those who have signed the pledge can be found here, https://europeanmecoalition.com/the-me-cfs-pledge-for-the-european-elections/#list-of-signees
  5. Andy

    A disease-associated gene desert directs macrophage inflammation through ETS2 [in IBD] 2024 Stankey et al

    Articles: Bowel disease breakthrough as researchers make ‘holy grail’ discovery https://www.theguardian.com/society/article/2024/jun/05/bowel-disease-hope-researchers-find-biological-pathway Major cause of inflammatory bowel disease found https://www.bbc.co.uk/news/articles/c1wwdd6v2wjo
  6. Andy

    A disease-associated gene desert directs macrophage inflammation through ETS2 [in IBD] 2024 Stankey et al

    Abstract Increasing rates of autoimmune and inflammatory disease present a burgeoning threat to human health1. This is compounded by the limited efficacy of available treatments1 and high failure rates during drug development2, highlighting an urgent need to better understand disease...
  7. Andy

    Integrated care model for patients with functional somatic symptom disorder ..., 2024, Röhricht

    Now published, Integrated care model for patients with functional somatic symptom disorder – a co-produced stakeholder exploration with recommendations for best practice, open access, https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-024-11130-9
  8. Andy

    A systematic mapping review of clinical guidelines for the management of fatigue in long-term physical health conditions, 2024, Mulligan et al

    "Guidelines were excluded if they related to LTCs resulting from accident or injury, rather than disease, mental health conditions or developmental disorders. Guidelines relating to cancer were excluded because a systematic review of clinical guidelines for the management of cancer-related...
  9. Andy

    A systematic mapping review of clinical guidelines for the management of fatigue in long-term physical health conditions, 2024, Mulligan et al

    Abstract Purpose Despite a high prevalence of fatigue and its importance to patients, many people with long-term conditions do not receive fatigue management as part of their treatment. This review is aimed to identify clinical guidance for the management of fatigue in long-term physical health...
  10. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Now at 11,080 signatures. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  11. Andy

    Review Systematic review of fatigue severity in ME/CFS patients: insights from randomized controlled trials 2024 Park et al

    Can't speak to the prevalence of ME/CFS in South Korea. Publications about ME/CFS from there crop up fairly often but nothing compared to those from the researchers based in the EU, UK and USA. Two of the authors of this paper are listed as being affiliated with the "Research Center for CFS/ME...
  12. Andy

    Review Systematic review of fatigue severity in ME/CFS patients: insights from randomized controlled trials 2024 Park et al

    Also ignores the issue that most trials will not include the most severely affected.
  13. Andy

    Qualitative study of the acceptability and feasibility of acceptance and commitment therapy for adolescents with [CFS], 2021, Crawley et al

    Correction for ‘qualitative study of the acceptability and feasibility of acceptance and commitment therapy for adolescents with chronic fatigue syndrome’ This article has been corrected since it was published online. A new funder information “Wellcome funder grant number 204813/Z/16/Z” has...
  14. Andy

    Review Systematic review of fatigue severity in ME/CFS patients: insights from randomized controlled trials 2024 Park et al

    Abstract Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating illness medically unexplained, affecting approximately 1% of the global population. Due to the subjective complaint, assessing the exact severity of fatigue is a clinical challenge, thus, this...
  15. Andy

    United Kingdom 2024: Online workshops on ME/CFS Research

    Perhaps it is meant to keep Tyson in line and stop her further abusing members of the patient community?
  16. Andy

    European ME Coalition ME/CFS Pledge for the 2024 European elections

    From Twitter, "The list of supporters keeps on growing. 32 candidates and/or MEPs have signed the ME/CFS pledge thus far."
  17. Andy

    European ME Coalition ME/CFS Pledge for the 2024 European elections

    "The ME/CFS pledge for the European elections We, at the European ME Coalition (EMEC) call upon candidates in the European elections to commit to supporting individuals suffering from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) by endorsing our pledge. Those who have signed the...
  18. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 27th May. Facebook: https://www.facebook.com/sci4me/posts/pfbid02jLxS5Qf3SM7EMduJBsA97ZHAb2xkVgCjnNMtBZrFbNQAG7nZZ2BBe529HBwV44kFl Mastodon: https://med-mastodon.com/@s4me/112552523465386176
  19. Andy

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Which we now know is BS, given all the effort preference garbage rolled out by Walitt. He hasn't earned my respect and trust, in fact he has further reduced mine. I thought this was independent of the intramural study?
  20. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 27th May. Facebook: https://www.facebook.com/sci4me/posts/pfbid02McEY7LiYfHnTyydhZTbuGVkDPEjnkyTDrzewtjZMULr8ErA6KeJaZBN8MwUEsMNsl Mastodon: https://med-mastodon.com/@s4me/112546387287165949
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