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As per title. Have research studies that, in theory, are meant to be looking at PEM in pwME actually tried to measure PEM or have they only measured the response to the challenge (typically CPETs) that are intended to trigger PEM? Is there a difference between this response and PEM and, if there...

Abstract Objective To assess the burden of illness of people with fibromyalgia (FM) and their spouses compared with selected match populations in Denmark. Methods Population-based, cohort case-control study using data from Danish registries from 1994 to 2021. Individuals with an FM diagnosis...

Full title: Effects of a randomized-controlled and online-supported physical activity intervention on exercise capacity, fatigue and health related quality of life in patients with post-COVID-19 syndrome. Background The Post-COVID-19 syndrome (PCS), which can occur after acute respiratory...

Afraid I can't answer those questions - I just saw a number of patient advocates whose opinions/judgement I trust sharing this on social media so thought I would boost awareness of it a little by posting here.

[All Google translated.] We adults and children with post-COVID and our loved ones note that: GPs and specialists cannot adequately help us with complex multi-system complaints because they are not aware of the available knowledge and appropriate treatment processes are therefore not...

Pseudoscience exacerbates the burden of disease Victims of ME deserve better than dopey Dragons and ear seeds https://thecritic.co.uk/pseudoscience-exacerbates-the-burden-of-disease/

#MEAction UK And Scotland Update Prevalence Figures Based On New Data "Both the UK and Scotland branches of #MEAction will start using updated figures for the prevalence of ME, based on a recent US survey." "The Center for Disease Control (CDC) has published results of a survey which provides...

A very quick look at the HRCS Online website seems to suggest that to be included requires submitting data to them for inclusion, so that would probably be why so few charities are included - they are either not aware of this or have enough to do already.

https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review Currently on 10, 091 The ME Association kindly shared on Twitter.

In case it is of use, I have recorded my progress through this so far. I think that many pwME will be excluded due to relative complexity of the platform. To submit comments, or "ideas" as the site calls them, you will need to create an account. Create an account. Click on Log in (top right...

Also see, Long Covid – Into the Third Year, 2023, Timothy Meagher

Tim Meagher is Vice President and Medical Director Munich Re, Canada (Life) https://www.munichre.com/us-life/en/company/management/subject-matter-experts/Tim-Meagher-bio.html "Munich Re is a leading global provider of reinsurance, primary insurance and insurance-related risk solutions."

"Are Me/cfs and Long COVID the Same? Increasingly, comparisons are being drawn between ME/CFS and Long COVID.7,8 The emergence of debilitating fatigue as a prominent symptom of Long COVID, and its persistence beyond 6 months (a defining feature of ME/CFS) has triggered this comparison...

[Published in the Journal of Insurance Medicine] Long COVID is now a recognized complication of acute COVID-19 infection. As the COVID-19 pandemic moves into its third year, the prevalence of Long COVID continues to increase. Many individuals report symptoms lasting longer than a year, and a...

Good question. A quick Google found this paper that looked at a cohort in the US, which says, "Of the 19 constituent codes, we find 5 that meet our Bonferroni corrected significance threshold (see Supplementary Table 1). The only significant sub-code to D89 was D89.9 (immunodeficiency...

Of course, "the ICD-10 code that best reflects ME/CFS symptoms" may not be, and probably isn't, the actual code used for every patient.

Full title: A Critical Appraisal of the Whack-a-Mole and Swivel Chair Signs in the Diagnosis of Functional Movement Disorders Abstract Background The demonstration of positive signs during neurological examination is a cornerstone of the diagnosis of functional movement disorders, however, the...

[In worms] Highlights Hypoxia rescue and hyperoxia sensitivity of complex I mutants are conserved in C. elegans Hypoxia rescue is independent of HIF activation or attenuation of ROS toxicity NDUFA6/nuo-3(G60D) mimics acute hypoxia in restoring complex I forward activity Residues in the CoQ...

[In mice] Abstract Oxidative phosphorylation (OXPHOS) consumes oxygen to produce ATP. However, the mechanism that balances OXPHOS activity and intracellular oxygen availability remains elusive. Here, we report that mitochondrial protein lactylation is induced by intracellular hypoxia to...

For what it is worth, the full version of the editorial is now available, and the paper they actual reference from Dotan et al is this one, On the reliability and validity of central fatigue determination, 2021, Dotan et al Abstract Physical performance fatigue can be ascribed to both...