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Abstract Objectives It has been hypothesised that functional somatic disorders (FSD) could be initiated by sympathetic predominance in the autonomic nervous system as measured by low heart rate variability (HRV). Earlier studies on the association between HRV and FSD are small case–control...

Are they wanting illnesses that have been 'proven' to be triggers through research, or are patient reported triggers acceptable?

Can exercise help treat long Covid? New study finds patients improve with self-paced approach https://www.statnews.com/2024/02/07/can-exercise-help-treat-long-covid-new-study-finds-patients-improve-with-self-paced-approach/

It is a deliberate choice.

The South West might well be the influence of Crawley and crew, especially for the Bristol and Bath area.

"Full adherence to the REGAIN intervention was defined as attendance at the initial one-to-one session along with completion of four or more of six support sessions and five or more of eight exercise sessions. Partial adherence was defined as attendance at the initial one-to-one session and...

BMJ Editorial, https://www.bmj.com/content/384/bmj.q20

Abstract Background Long-term stress causing altered hypothalamic–pituitary–adrenal (HPA) axis dynamics with cortisol dysfunction may be involved in the pathophysiology of functional somatic disorders (FSD), but studies on adolescents with multi-system FSD are lacking. Therefore, we...

A nice bump up to 10,246 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

Abstract After the SARS-CoV-2 pandemic we face a new global epidemic: the Post-COVID Syndrome. This novel condition has fluctuating progression and a wide range of symptoms, such as fatigue, headaches, muscle pain or breathlessness. Although its pathophysiology is not clear, a multiorganic...

Published papers thread for w/c 29th Jan. Facebook: https://www.facebook.com/sci4me/posts/pfbid032fBj2tuwiFjfYk3ETaTPRgQ64cEEHzNfDTtmpAuuQFohG5gKie8C8zhfCL4En17Wl Mastodon: https://med-mastodon.com/@s4me/111878106731558766

To which they responded "Our website is currently under construction. There you will find more information and a registration form for the conference. In the meantime, you can contact us at mail@unitetofight2024.world" I will wait to see what information they present to the public.

I have just asked "Hi there. Do you have a website, or other source of information, with details on who is organising this, when and where it will be, how much will be needed, etc?"

A couple of more tweets from them. "Have an idea that needs the spotlight? Here's your chance! Recommend a topic for a public session! How ? Post your own tweet, mention your topic, and use #UniteToFight2024. The most mentioned topic takes the stage! at our global conference Let's shape...

Rather than good day/bad day testing, we need good week/bad week testing, and ideally even longer. Without this kind of longitudinal testing, it would be impossible to be sure whether the participant was at their normal baseline before any specific challenge. And, based on the concept that pwME...

Looking at their Twitter account, it lists a link to a Paypal account, https://www.paypal.com/paypalme/UniteToFight, which gives the opportunity to send money to someone called Marco Wetzel, but doesn't offer any further information.

Seems more than a bit odd that there is no available information as to who is behind this, especially as they seem to be expecting to fund it all via crowdfunding, which essentially will mean the patient community. I look forward to learning more.

Our DNA can help to decipher some of the most pressing health challenges we face.  Most diseases start in childhood, but most health research is carried out in adults. D-CYPHR wants to change this by supporting health research for ages 0 – 15, pioneering new treatments and creating better care...

News in Brief posts for w/c 29th Jan. Facebook: https://www.facebook.com/sci4me/posts/pfbid02rASvQkjyJTZtYTKnpnWkeGF3ag5mWciMPxxqbvmFe2cFXSG6hz1jk5FCYRacMxPql Mastodon: https://med-mastodon.com/@s4me/111872796216358639

Any kind of measurement of the participants in the time following the challenge that is presumed to trigger PEM. It might be by simply recording activity levels in some way (diary form, activity trackers, etc) or be more involved with any form of biological testing (blood test, brain scans, gut...