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  1. Andy

    Genetic variants associated with chronic fatigue syndrome predict population-level fatigue severity and actigraphic measurements, 2024, Liu et al.

    As far as I can tell this is a poster presentation, so further details aren't available?
  2. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 8th April. Facebook: https://www.facebook.com/sci4me/posts/pfbid02D2D4g8BoZhMbo6Rgfarv92Lhb2gNN4hjvz4ThCVkmgUbTtrPf4bgfA4VYSHshDXDl Mastodon: https://med-mastodon.com/@s4me/112269023884040663
  3. Andy

    Protocol Efficacy of patient education and duloxetine, alone and in combination, for patients with multisystem functional somatic disorder:... 2024 Jespersen+

    "Functional somatic disorders (FSD) are characterized by specific patterns of persistent physical symptoms with a complex etiology involving a multiform interplay between physiological, psychological, and sociocultural factors [1,2]. Patients with FSD are prevalent in all medical settings and...
  4. Andy

    Protocol Efficacy of patient education and duloxetine, alone and in combination, for patients with multisystem functional somatic disorder:... 2024 Jespersen+

    Full title: Efficacy of patient education and duloxetine, alone and in combination, for patients with multisystem functional somatic disorder: Study protocol for the EDULOX trial Fink is also an author. Abstract Background Multisystem functional somatic disorder is characterized by specific...
  5. Andy

    Protocol Personalized Management of Fatigue in Individuals With [ME/CFS] and [LC] Using a Smart Digital mHealth Solution:... 2024 Dorronzoro-Zubiete et al

    Full title: Personalized Management of Fatigue in Individuals With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Long COVID Using a Smart Digital mHealth Solution: Protocol for a Participatory Design Approach Abstract Background:Fatigue is the most common symptom in myalgic...
  6. Andy

    The disappearance of ME/CFS

    The arguments that giving someone a diagnosis of ME/CFS in addition to Long Covid is detrimental to the patient and research into Long Covid should be selective, and this argues for maintaining a separate diagnosis, have also been made by David Putrino.
  7. Andy

    Irritable Bowel Syndrome

    Over-exertion/PEM causes me a cycle of gut pain, constipation and diarrhoea (among other symptoms) and certain foods cause gut pain and diarrhoea. I've never been able to interest any GP in taking these things seriously, so have no diagnosis of IBS or otherwise.
  8. Andy

    Psychological flexibility in somatic symptom and related disorders: A case control study 2024 Selker et al

    Highlights Psychological flexibility in people with somatic symptom disorder (SDD) is low. Three out of four patients with SSD have low or very low psychological flexibility. Lower psychological flexibility is associated with lower mental health. Assess psychological flexibility in SSD in...
  9. Andy

    Functional Neurological Disorder (FND) - articles, social media and discussion

    Twitter thread by someone who was initially diagnosed with FND and Fibromyalgia, given Physical Therapy, meditation, yin yoga, and talk therapy, but subsequently received a diagnosis of May-Thurner syndrome (a condition whereby one blood vessel becomes compressed by another vessel against the...
  10. Andy

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Social media posts linking to the two letters sent by the committee. Facebook: https://www.facebook.com/sci4me/posts/pfbid0cUCd2zbtnYTLtLFB6YwCYk3YHh1cjgsNUByaos5WvvCfDFmXHszGDnU3hnX6GkFXl Mastodon: https://med-mastodon.com/@s4me/112252304846115728
  11. Andy

    Association of circulating biomarkers with illness severity measures differentiates ME/CFS and post-COVID-19 condition, 2023, Domingo, Castro-Marrero

    Now published, Full title: Association of circulating biomarkers with illness severity measures differentiates myalgic encephalomyelitis/chronic fatigue syndrome and post-COVID-19 condition: a prospective pilot cohort study Open access...
  12. Andy

    The Association of Emotion Regulation and Somatic Symptoms 2024 Petzke and Witthöft

    Abstract Objective People with functional somatic symptoms have difficulties in various stages of the emotion regulation (ER) process (1). As an adaptive and flexible use of ER strategies is a core tenet of emotional health, having difficulties in this area is often assumed to be the key...
  13. Andy

    A case series of post-infectious chikungunya myeloradiculoneuropathy 2024 Selvam et al

    Abstract Chikungunya fever is an arboviral illness caused by chikungunya virus (CHIKV) and transmitted by the bite of Aedes aegypti and Aedes albopictus. It is an RNA virus belonging to the genus Alphavirus and family Togaviridae. We present a case series of three patients with chikungunya...
  14. Andy

    Type I interferons induce an epigenetically distinct memory B cell subset in chronic viral infection 2024 Cooper et al

    Highlights scATAC-seq and scRNA-seq reveal expansion of an MBC subset in chronic LCMV infection A distinct chronic MBC subset is associated with increased IFN-I-associated ISG signature The chromatin landscape of MBCs is established during a critical window early in infection IFN-I dynamics...
  15. Andy

    Perceived misdiagnosis of psychiatric conditions in autistic adults 2024 Kentrou et al

    "Perceived misdiagnoses When entering the register, participants were asked if they had received any additional psychiatric diagnoses in the past, before receiving a diagnosis of autism (“Have you received any other (psychiatric) diagnose(s) in the past before receiving your diagnosis within...
  16. Andy

    Perceived misdiagnosis of psychiatric conditions in autistic adults 2024 Kentrou et al

    Summary Background Many autistic people, particularly women, do not receive an autism diagnosis until adulthood, delaying their access to timely support and clinical care. One possible explanation is that autistic traits may initially be misinterpreted as symptoms of other psychiatric...
  17. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Current total is 10,626 https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  18. Andy

    Editorial: A special issue of The BMJ, led by patients [welcomes proposals for patient led articles, deadline 30th April 2024]

    "we wish to ... identify the barriers that are holding us back from realising the full value of patient and public partnership in healthcare" Such as only giving 21 days notice of a deadline for proposals?
  19. Andy

    Editorial: A special issue of The BMJ, led by patients [welcomes proposals for patient led articles, deadline 30th April 2024]

    "A special issue To mark 10 years of commitment to patient partnership and over 20 years since our first patient theme issue, we will publish a special issue of The BMJ led by patients on 13 July 2024. We expect that most of the content will be written by patients or led by their views...
  20. Andy

    Review Recent advances in understanding the neurobiology of pediatric functional neurological disorder 2024 Kozlowska and Scher

    ABSTRACT Introduction Functional neurological disorder (FND) is a neuropsychiatric disorder that manifests in a broad array of functional motor, sensory, or cognitive symptoms, which arise from complex interactions between brain, mind, body, and context. Children with FND make up 10%–20% of...
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