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  1. Andy

    Work participation, social roles, and empowerment of Q-fever fatigue syndrome patients ≥10 years after infection 2024 Brus et al

    Abstract Objective To determine work participation, social roles, and empowerment of QFS patients ≥10-year after infection. Methods QFS patients ≥10-year after acute infection, who were of working age, participated in a cross-sectional survey study. Work participation, fulfilment of social...
  2. Andy

    Office of National Statistics: Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: Updates

    "8.Data sources and quality Our Winter Coronavirus (COVID-19) Infection Survey Quality and Methodology Information article provides further information around the survey design, how we process data and how data are analysed." More at...
  3. Andy

    Presence of endometriosis and chronic overlapping pain conditions negatively impacts the pain experience in women... 2024 Bartley et al

    Full title: Presence of endometriosis and chronic overlapping pain conditions negatively impacts the pain experience in women with chronic pelvic-abdominal pain: A cross-sectional survey. Abstract Background: Evidence of overlap between endometriosis and chronic pain conditions is emerging...
  4. Andy

    Practical Recommendations for Exercise Training in Patients with Long COVID with or without Post-exertional Malaise, 2024, Gloeckl, Scheibenbogen+

    Yep, I've gone from being able to work full time and socialise, albeit while feeling awful, to being mostly housebound and applying strict limits to what I do in order to hopefully avoid getting any worse.
  5. Andy

    Trial Report Functional Limitations and Exercise Intolerance in Patients With Post-COVID Condition A Randomized Crossover Clinical Trial, 2024, Tryfonos et al

    I believe this is an editorial based on this study, Functional Limitations and Exercise Intolerance in Patients With Post-COVID Condition A Randomized Crossover Clinical Trial, 2024, Tryfonos et al
  6. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    DecodeME launches data access process 29 April 2024 With your help, DecodeME has built the world’s largest data set on ME/CFS. 86% of DecodeME participants consented to sharing their de-identified data with other researchers and 95% of participants consented to being recontacted for new...
  7. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 22nd April. Facebook: https://www.facebook.com/sci4me/posts/pfbid02p5VQzrziuEH5YQWnYX8KLTc2DVtoCJGMGkWLeRBM9wQbNY1FmLgmNMhQWsBbUKxEl Mastodon: https://med-mastodon.com/@s4me/112353846450530689
  8. Andy

    International: Science for ME social media posts

    News in Brief post for w/c 22nd April. Facebook: https://www.facebook.com/sci4me/posts/pfbid04pprdNEpv3pmCDdGUsMHMbVtSBKDfjF4N1hSQjp8wZrKCnqJetHmrdQYkX3bfUHtl Mastodon: https://med-mastodon.com/@s4me/112348736393761030
  9. Andy

    UK: People with ongoing Long Covid symptoms unable to donate blood (as of July 2023)

    Yep, I assume that our false illness beliefs are potentially infectious..... https://my.blood.co.uk/your-account/eligibility/health/article/?id=00830p31&title=CFS+%3A+Fatigue
  10. Andy

    The Last Straw: How Stress Can Unmask Parkinson’s Disease 2024 van der Heide et al

    Abstract We discuss two people with Parkinson’s disease (PD), in whom tremor manifested directly following a severely stressful event. Both were initially misdiagnosed with a functional neurological disorder. These stories highlight that stress can trigger the onset of clinical manifestations...
  11. Andy

    Office of National Statistics: Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: Updates

    Updated estimates of Long Covid in England and Scotland show that it remains a serious issue "The UK Office for National Statistics (ONS) has released its latest estimates of how many people in England and Scotland are living with Long Covid using the recent Winter Infection Survey. These are...
  12. Andy

    How stigma unfolds for patients with Functional Neurological Disorder 2024 McLoughlin, Carson, Stone et al

    Highlights Patients with Functional Neurological Disorder experience stigma from many sources. Work, family and online interactions contribute to stigma. FND is often perceived as something unknown, fuelling experiences of being “othered”. Self-stigma and anticipated stigma are common...
  13. Andy

    Development of an expert system for the classification of myalgic encephalomyelitis/chronic fatigue syndrome 2024 Yagin et al

    I don't see if they explain how what criteria they use to select participants.
  14. Andy

    Development of an expert system for the classification of myalgic encephalomyelitis/chronic fatigue syndrome 2024 Yagin et al

    Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a severe condition with an uncertain origin and a dismal prognosis. There is presently no precise diagnostic test for ME/CFS, and the diagnosis is determined primarily by the presence of certain symptoms. The current study...
  15. Andy

    Australia: RACGP: GET for CFS

    Trial By Error: Australian GP Group Recommends “Incremental Physical Activity” for “CFS/ME” Patients https://virology.ws/2024/04/25/trial-by-error-australian-gp-group-recommends-incremental-physical-activity-for-cfs-me-patients/
  16. Andy

    Office of National Statistics: Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: Updates

    Self-reported coronavirus (COVID-19) infections and associated symptoms, England and Scotland: November 2023 to March 2024 Main points An estimated 3.3% (2 million) of people living in private households in England and Scotland were experiencing self-reported long COVID (symptoms continuing...
  17. Andy

    Hepatitis B virus and hepatitis C virus affect mitochondrial function through different metabolic pathways, ... 2024 Selvamani et al

    Full title: Hepatitis B virus and hepatitis C virus affect mitochondrial function through different metabolic pathways, explaining virus-specific clinical features of chronic hepatitis Abstract Background Hepatitis C virus (HCV) and hepatitis B virus (HBV) cause chronic hepatitis with...
  18. Andy

    Differentiating non-epileptic seizures from epileptic seizures in Glut1 deficiency syndrome 2024 Ito et al

    Abstract Aim To investigate the clinical characteristics of non-epileptic seizures due to transient brain dysfunction caused by energy deficiency after prolonged fasting or exercise in individuals with glucose transporter type 1 deficiency syndrome (Glut1DS), and then elucidate further the...
  19. Andy

    Review Post-infectious ibs following Clostridioides difficile infection; role of microbiota and implications for treatment 2024 Taghaddos et al

    Abstract Up to 25% of patients recovering from antibiotic-treated Clostridioides difficile infection (CDI) develop functional symptoms reminiscent of Post-Infectious Irritable Bowel Syndrome (PI-IBS). For patients with persistent symptoms following infection, a clinical dilemma arises as to...
  20. Andy

    Review Effectiveness of Exercise Interventions on Body Composition, Exercise Capacity, Fatigue, and QoL in Patients with Liver Cirrhosis:... 2024 Hsieh et al

    So without a significant impact on quality of life, exercise doesn't seem to be an effective medicine for this patient group.
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