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It might be difficult to unpick even if the right questions had been asked in population studies, especially with cohorts that included older women. They were even less likely to get an endometriosis diagnosis than women are now, and it's quite hard enough. All of the older women in my family...

Yes, with banking I often have to use two-factor authentication as well, but that's mainly because I don't use banking apps. Most of the 3rd party stuff on my phone is for use only when I don't have access to a laptop: wildlife surveys, maps and GPS, parking, taxis, etc. None of them need a...

As @Wonko says, you don't need to remember the smartphone's number to use apps. You give the organisation the number of whatever phone you want to use for calls, and whichever email address you prefer. (If you ever lost the number of the smartphone there is a way to find it out, and you don't...

Some apps do require a number, but it doesn't have to be the number of that device—just enter the number of the phone that you use for calls. I can't remember what it was now, but I once had to install an app temporarily for work where I didn't feel I should have to disclose my phone number, so...

@JemPD, can you use the apps on a smartphone okay? It's really the texting that's the problem? If so, maybe having both types of phone is the least worst option. You could stick a cheap pay-as-you-go SIM in a smartphone so that it will work, set the phone up with your home wifi password, enable...

I guess they probably would. Those diseases can also affect every social aspect of people's lives (career, education, family, recreation, etc), but also in the more limited sense of social: relationships, friendships, hobbies, sport, informal learning, arts and crafts, volunteering, practising a...

They are, I had a full colonoscopy without sedation for the same reason: I don't want to have to have a friend with me for 24 hours afterwards, because it would be completely exhausting for me and a right pain in the backside for the friend, who'd have to give up a day's work. As you say, the...

I'd forgotten about this—yes, it's another phenomenon. For me it's different to the more routine loss of time due to being in standby mode during rest, because that's not speeded up in the same way as it is in severe PEM.

I lose time too, but it's always featureless time. I might be unaware of whether I've made toilet visits, but I don't fail to recall things that require more physical or cognitive effort. If it's this loss of 'empty' time, I just call it going into standby mode. I suspect it's not uncommon in...

I was advised I'd need a couple of hours to recover, and that they'd prefer to keep me on the ward for some time after I'd come round to make sure there were no reactions. They said it would be three hours or so, so pretty similar. I was worried about how the combination of sedative drugs and...

That was my first thought, but might it be something that could easily be overlooked? If the ferritin levels were higher than normal but not high enough to suggest iron overload, and patients had none of the symptoms classically associated with iron metabolism or storage issues, it wouldn't even...

People often seem to direct this question to the ME Association. I think they even had a list of ME-friendly GPs at one point that members had recommended, although of course they didn't make it public, they just responded to queries about doctors in particular areas of the country. It might be...

If your friends and contacts use WhatsApp, @JemPD, maybe just download that onto your computer once you have your smartphone? It doesn't work independently, it needs to be linked to a phone, but once it's set up you don't need to use the phone keyboard for texts at all. There may be other...

Just after Christmas I nagged someone to contact his MP about a welfare issue—he hadn't done so because he assumed, as a Conservative, they'd be unsympathetic. They turned out to be really helpful, and got it sorted quite quickly. The cynic in me wondered whether they too were worried about...

It's been absolutely devastating for wildlife, I only hope it doesn't jump to humans in a form that's easily transmissible.

We clearly need ChatGPT in our advocacy team! :laugh: Be fun to send the result to one of the Cochrane email addresses, if you have the energy.

...and I missed it!

Already got my good ear cocked for sound of professorial head being banged against wall! :laugh:

Yes, it pretty much IS most of mine, since symptom levels are to a large extent determined by how much PEM hangover there is. Symptoms never go away, but then again, nor does PEM. It's hard to decide whether to call it cause or effect, as simply being alive will result in PEM-triggering energy...

Interesting—though I guess that will include existing claimants whose circumstances change. Which probably means more like 2030 in real life. At least one, and potentially two, governments away.