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To answer J's question, I'm not aware of any formal literature. I just know it's urgent work. It's clear from recent cases that the NHS doesn't know what to do with these patients, but surely we can't allow a situation where nobody is willing to take charge of the care of gravely ill young...

I broadly agree with that. The effects of PEM in mild/moderate ME include clumsiness and tremor, and sometimes movements resembling drunk people who kind of fling their limbs instead of controlling them smoothly, but it's not the same as non-functioning muscle. I have weakness in my legs caused...

In my experience at least, that is exactly what PEM feels like.

Just performative government again, I think. Unenforceable in practice and not even confirmed as policy, but put out anyway to give the impression of action.

This is a selvedge in the sense used when describing fabrics. It's not a hem or a finishing technique, it's something woven in from the start*. *Might also apply to Cochrane.

I've only done a series of sessions in a shared hyperbaric chamber, so always with two or three other people. It was an interesting and quite enjoyable experience, but it was also really noisy and a bit knackering. For me the net result was in the negative, i.e. the exertion involved exceeded...

It is interesting, isn't it? As well as repeating the study with a larger cohort, it would also be good to look at whether full-blown maximal CPET is necessary to reproduce the effect, or whether it can be demonstrated with something safer for PWME. Perhaps, but a within-the-bounds-of-normal...

Indeed. Or, I guess, of those who know the exact day on which they transitioned from being a fit and well person with a common viral infection to a chronically ill person. What struck me about the title was the word "could". Is it not already a worryingly widespread post-pandemic disease?

Weirdly, it doesn't ask me to register or pay. My IP address is in the UK, though, not in Germany, perhaps that's the reason.

It's my diagnosis too, but I refuse to use it for the same reason.

Oh, what a pain! It really is hard to to keep bits of you dry, as I know from having plaster casts. The best thing my former housemate came up with was (don't laugh) a well-inflated child's swimming armband fastened under her ankle. It meant her foot would float, but without her putting any...

Thanks, I hadn't even realised that. Hopefully they will, especially if these results have contributed worthwhile new evidence. Obviously it's quite hard for most of us to evaluate it, without an understanding of how a phenomenon like this might vary anyway between healthy patients and...

For me, one of the interesting things about the study is that measuring flow-mediated dilation using ultrasound doesn't look enormously challenging or expensive to carry out. If the professionals think these results are genuinely interesting, it might be within the scope of an ME charity to fund...

As I understand it, immunoadsorption is a way of removing specific types of molecule from the blood. I'm not sure which conditions it's most used in or what the evidence is of its effectiveness, though.

The only relationship I've managed to uncover between PEM and active heart rate shows up when I'm in the "PEM gap". This is where I've incurred some significant PEM but it isn't yet obvious, meaning I can make the mistake of doing activity I'm not really fit for. My heart rate doesn't increase...

I look forward to him being the last human on Twitter, sitting there shouting helplessly into the void.

I wonder, though, if decisions on requiring those numbers might partly be influenced by the fact that you can get them because the conditions are so common? And that they put at risk the lives and wellbeing of such large swathes of the population that it's easier to prioritise big funding pots...

To me emotion exertion often means something a bit different, though it would be hard to communicate quickly in two or three words, so it would always be open to misinterpretation in a short article. The type that I struggle most with is the mix of emotional and social energy needed to engage...

But but but where are most of these gaps in the labour force? Health care, social care, delivery drivers, hospitality, warehouse workers, and in the growing season, agriculture. All involve demanding physical work, in environments where employees tend to be pushed hard for every moment of their...

That's really good news, @josepdelafuente, and should be a huge help. Just having someone on your side is immensely reassuring, even if in the event they don't have to do a great deal. I hope it goes well!