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  1. Luther Blissett

    Wessely gets touchy feely

    There is a very good book explaining the process and formation of 'Professionals' called 'Disciplined Minds'. Conformity in academia is a big part of the process. The desire to question everything and want to understand is gradually shaped in desired directions and 'comfortable' areas. The...
  2. Luther Blissett

    The presence of co-morbid mental health problems in a cohort of adolescents with CFS (2017) Chalder et al.

    Very important. I recently read a comment piece about how, in adolescent boys, the scales are more accurate for these kind of questionnaires if a parent filled in the form, than if the adolescent did. (Can't find the comment or paper!) This would make a big difference in the studies that...
  3. Luther Blissett

    The presence of co-morbid mental health problems in a cohort of adolescents with CFS (2017) Chalder et al.

    There is also a question as to the accuracy of diagnosis of mental health problems in adolescents (and adults) with regard to gender bias. Different genders as a group have different ways of showing problems with thinking, feeling, and behaving. Is there a mention of the adolescents in this...
  4. Luther Blissett

    3 Nov | Ron Davis speaking on ME/CFS at Stanford-EBML Personalised Health Conference

    Twitter link for people without full Javascript functionality: https://twitter.com/StanfordGenome/status/926549178829783045
  5. Luther Blissett

    The Most Popular Terms for Medically Unexplained Symptoms: The Views of CFS Patients, 2015, Picariello et al

    As a lot of these snippets enraged me I have one simple suggestion to improve the paper considerably. Find every instance of 'felt' and replace with 'experienced' or similar synonym.
  6. Luther Blissett

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    In an effort to be helpful to some users, the twitter address for the tweet from Jen Brea is: https://twitter.com/jenbrea/status/926120437523783682 The tweet says:
  7. Luther Blissett

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Might I suggest to anyone wanting to comment on the talk, Ask about the technology of magic circles and shouting STOP. Ask why this was not disclosed in the talk. Don't bombard with papers and links. Ask if they would agree with their child keeping 'secrets' with a stranger. You can't shame...
  8. Luther Blissett

    Tymes Trust - No reported harassment of staff at Bristol University

    Yes, despite a massive operation containing thousands of people being blacklisted, one person was convicted, and only then because he didn't cover his tracks. The law says you can't keep a 'list', as if it only happens if written down, and saved for an investigation to find. It's not illegal...
  9. Luther Blissett

    Tymes Trust - No reported harassment of staff at Bristol University

    In my experience, the 'lists' are either kept by the police, or industry, with overlap and co-ordination between. The police lists are used to monitor, infiltrate and spy on groups or individuals. An ACPO (Association of Chief Police Officers) spokesman said this in 2009: The industry lists...
  10. Luther Blissett

    Tymes Trust - No reported harassment of staff at Bristol University

    I'm not asking you personally to do a request if you feel uncomfortable doing so, just someone prominent who everyone agrees should not be on a 'list'. Why would the police disclose a list of names to a journalist? Why would they not? (even if it broke rules or law) Mutual backscratching, we...
  11. Luther Blissett

    Tymes Trust - No reported harassment of staff at Bristol University

    What would be helpful in this respect is for a prominent named person to submit a Subject Access Request to the relevant police department who deal with Domestic Extremism. (I think it is the Met, but am not up to date) You can be on the database as a 'domestic extremist' without breaking any...
  12. Luther Blissett

    BMJ best practise

    I suppose if you take the view that a decent Therapist would explain about Pacing to a patient, you could see that as improving functional ability, in that it lessens the risks of crashes. In the context of the paper it fits, it's just that we are not used to it being used in this context?
  13. Luther Blissett

    Better Science through Better Data 25th October 2017 - Esther Crawley!

    Before I got sidetracked, what I really wanted to say was that extrapolating a few characteristics from individuals and applying them to a whole group is a classic form of bigotry, and might be a good avenue to pursue towards willing listeners, especially when challenging claims like this on...
  14. Luther Blissett

    Better Science through Better Data 25th October 2017 - Esther Crawley!

    Just a heads up that each printed piece of paper has a secret binary code embedded in it with dots. This enables forensic examination of documents, and tells the who, where, when etc of the document. This sounds like crazy paranoid talk, but it is in fact true. Not that I suspect you're going...
  15. Luther Blissett

    Useful gadgets that make life easier for MEcfs patients and carers

    One of the little things that I've been very happy with is an OXO Good Grip Magnetic Can Opener. It locks into place, so you don't need to keep squeezing the handles while operating, the knob is big and easy to grip, it cuts the top off leaving the rounded edges, so less sharp bits, the...
  16. Luther Blissett

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    If the pattern persists of claiming to speak for us, then when the forum is up and running, a petition saying we do not recognize her speaking for us would be a good way to publicly challenge her.
  17. Luther Blissett

    Better Science through Better Data 25th October 2017 - Esther Crawley!

    Another institution joins in with bullshit laundering. Do any of them holding these 'talks' ever vet who they are hosting? Not even a 2 min google search? @Trish gets my intrepid adventurer of the day award :D
  18. Luther Blissett

    ME Sufferers Being Shamefully Let Down By Professionals (Morning Star)

    The authors can be found at the DPAC website, https://dpac.uk.net/ . They have long been on 'our' side along with Black Triangle. If you're not sure you like them, picture militants chasing Iain Duncan Smith around. You like them now don't you?
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