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Fair point! I just googled 'medical charity logo UK' and clicked on 'Images' and saw a whole load of (admittedly boring) logos where the medical condition isn't emphasised in the design. It could have been done.

I see your point, but what are our charities to do? AfME, the MEA, MERUK, IiME - they've all got the same problem. It costs a lot of money to change branding, and what if we suddenly discover something that leads to a genuinely pathology-based name? They'd all have to change again, along with...

Thanks!

Where did you see 72 hours?

I wish I could remember but it's nearly 40 years ago. I'd never heard of PEM and hadn't noticed it in myself (it took a family member pointing it out to make me realise my reactions to things were delayed). But I just remember feeling FAB. IIRC, I started feeling fab as soon as my nose started...

That's a fair point!

Another thing that your model will have to explain, @Jonathan Edwards! The weirdnesses are piling up.

That happened to me, in the first year or so of my ME/CFS. I caught a cold and I felt EPIC. And then it was gone.

Thanks! Wow, these things cost a bit. But I suppose that if they're getting a quarter of a million visits a year, it's worth a one-off investment to fix it up.

That's a lot of money! Do you mind if I ask where you saw that figure?

Important to know that a lot of people are advising anyone with 23andme data to log in and get it deleted, for fear of where it might end up. The BBC reported that some users were having problems (possibly due to high traffic on the site), so I went onto the site at 7am when I thought it would...

What about 'Can switch slowly'? Or 'Can also switch slowly?' Some people gradually go into remission, or even appear to recover, but it's gradual. Doesn't the theory therefore have to be able to explain both a rapid switch and a slow one?

I find that really surprising.

I wonder if it's based on three people! I can't see the data.

We talked about 'Rosetta stone' people a while back, whose ME/CFS switches on and off sometime, and whose biology could tell us a lot if we caught them at the switching point. I guess that's what we're talking about now and I don't know why I seem to have suddenly become resistant to the idea!

I agree, but with misdiagnosis so common, and this 'switching off' phenomenon so rare, can we be sure that the people showing it really have the symptom pattern that we would call ME/CFS? And if they did, what if, out of (imaginary number) 10 million PwME worldwide, only one showed this...

It might not look like such a good point in the morning!

But does it have to explain features that are so rare that it raises the question of whether that person is so unusual that it may be something else very rare about them that allows their ME/CFS to behave in that way, rather than it being a feature of the ME/CFS itself? (I'm trying to think of...

But is that a reasonable test? I'd have thought that that experience was extremely rare among PwME, but we have heard a few examples.

I think this 2023 preprint maybe tells you but I don't understand it. But look at that DNA go, in this video! As a 'naked' half of the strand goes through the nanopore, which has an electrical charge, each DNA letter (A, T, C or G) gives a different electrical signal of disruption of the field...