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    Pulse Today ("the leading publication for GPs in the UK"): "Long Covid: Explaining the unexplainable?"

    Absolutely appalling remarks in the comments section. These are the people responsible for ending this crisis, and they’re publicly mocking it. Reprehensible.
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    Long COVID: defining the role of rheumatology in care and research (2022) Calabrese et Calabrese

    I am not on Twitter, but if Calabrese is, someone should ask him about the article which he authored that I posted earlier in the thread. It recycles the sick role seeking tropes. So by his previous logic, all he needs is some CBT. I hope someone mentions this and hold him to account.
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    Long COVID: defining the role of rheumatology in care and research (2022) Calabrese et Calabrese

    Nice to see Lenny Calabrese tossing his hat in the ring. The learned members of this forum will no doubt enjoy this gem from of his from several years back. I believe “learned helplessness” makes an appearance. https://www.ccjm.org/content/ccjom/66/6/343.full.pdf
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    Patient perspectives of recovery from [ME/CFS]: An interpretive description study, 2023, Hasan, Busse et al

    Sorry, could someone clarify. Is Busse a physician or a chiropractor? I was under the impression it was the latter. If the official Reddit account was representing him as a physician, and he isn’t, how is this not a major ethical breach?
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    COMET initiative: Core Outcome Set for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis

    Busse’s training appears to be as a chiropractor unless I’m missing something?
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    Long covid—an update for primary care, the BMJ, 2022, Trisha Greenhalgh

    This description of ACP may be the most discursive, meaningless combination of terms ever assembled. I'm certain these transformative practitioners wil get us moving far more efficiently and decisively in the Long Covid realm.
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    Letter to BMJ: "Medical gaslighting: to say that invoking psychological symptoms is equivalent to dismissal is reductionist", Michael Sharpe

    Does Sharpe ever wonder why nobody is consulting him regarding Long Covid? If he’s the paragon of knowledge for post viral illness, surely governments would be clamoring for his expertise. Instead, he’s feverishly penning these juvenile opinion pieces. A descent to irrelevancy
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    Pain in facial nerves

    This is my most harrowing and debilitating symptom. It destroys all quality of life and precludes so much activity. It’s haunting, and I lament for anyone who shares in this nightmare. Moreover, this symptom is low hanging fruit for FND cabal.
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    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    I agree regarding delivery. I always put Davis/Dafoe commentary in the following perspective. Above all, we are dealing with a desperate family. Parents who I suspect are approaching, if not already in, their 80s. A son severely impacted by illness who they may never see well. I don’t know that...
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    'Long Covid Research Initiative' and Polybio funded to research viral persistence and antiviral treatments

    Adam Gaffney is a serial commentator and physician/influencer who has painted Long Covid as a form of mass hysteria. He’s spoken favorably on the FND construct and penned a piece in which he was rather effusive toward Simon Wessely. His wife is a prominent journalist who holds similar views and...
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    Suzy Weiss Manifesto on “Spoonie” Culture

    https://www.commonsense.news/p/hurts-so-good This is merely an intellectually and morally bankrupt regurgitation of long-standing canards against us. However, predictably, it’s being heralded by the usual suspects across the Internet. My question is whether a piece like this actually converts...
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    Associations of Depression, Anxiety, Worry, Perceived Stress, and Loneliness Prior to Infection With Risk of Post–COVID-19 Conditions, 2022, Wang et a

    This is like injecting some otherworldly steroid into the veins of long Covid denIalists and paychologizers. The typical refrains will echo throughout the desolate wasteland that is social media. Ultimately, these pieces have a cumulative effect. They’ll reduce interest in genuine biomedical...
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    Somatic symptom disorder in patients with post-COVID-19 neurological symptoms: a preliminary report from the somatic study, 2022, Kachaner et al

    This is the same crew that brought us the belief in having Covid yields Long Covid debacle earlier. I hope this doesn’t garner a significant amount of media attention and promotion, but I fear it may. There is just no escaping this stuff. I also love how they bill this finding as somehow...
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    Long Covid in the media and social media 2022

    Just a casual observation. This article has sparked a litany of Long Covid denialists to rehash the most predictable tropes about post viral conditions. The magnitude is absurd and the speed at which the comments surfaced is remarkable. Whenever I feel the paradigm shift, I’m swiftly knocked...
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    Mind Body Intervention for COVID-19 Long Haul Syndrome

    I’ve tried reaching out to this guy on Twitter a multitude of times. I suggested he contact David Systrom and a plethora of other Boston researchers as this is where Donnino is located. From what I can tell, and I believe it’s been touched on elsewhere, Donnino suffered some low back pain and...
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    Role of Neuro-Immune Interaction in Chronic Pain Conditions; Functional Somatic Syndrome, Neurogenic Inflammation, & Peripheral Neuropathy, 2022,Meade

    This piece is utterly incoherent. It asserts, with unusual aplomb, that ME is a functional somatic syndrome. It prattles on about childhood trauma and prolonged stress along with the usual tropes. It then jettisons readers out of their seats by presenting on a host of biological anomalies found...
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    Long Covid in the media and social media 2022

    This could constitute a guileless comment on my part, but doesn’t rehabilitation generally connote the absence of any ongoing pathological process? You wouldn’t tell an athlete that a sports rehab program was appropriate if you continually shattered his or her leg each day. The rest of the...
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    United Kingdom: ME Association news

    Stating that ME is a medical condition is like saying “ME is real.” Anyone trumpeting those lines is clearly saying it’s psychogenic in a way intended to attract as little protest as possible. This seems so telegraphed, especially since there apparently were questions about RC opposition to...
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    Fear conditioning as a pathogenic mechanism in the postural tachycardia syndrome, Norcliffe-Kaufmann et al, 2022

    This drivel is, sadly, gaining immense traction. It’s so gut wrenching to see how gleefully pseudoscience is embraced by medical professionals. The simplicity is too seductive I suppose. Anyway, when patients inevitably fail to improve via CBT, we can just attribute it to a lack of motivation...
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    Long Covid in the media and social media 2022

    For American friends on the forum who may be less inclined to feel that the Carson/Stone axis is relevant to Long Covid care in the US, I’ve noticed that Carson and FND are becoming incredibly popular amongst the Adam Gaffney cohort. Gaffney has intimated FND represents a plausible explanation...
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