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The author of this piece is Natalie Shure, a journalist married to Adam Gaffney. Gaffney of course has been a prolific commentator on the Long Covid debate, pushing the narrative that psychosocial strain is likely responsible for a considerable number of complaints attributed to lasting effects...

I studied at an Ivy League institution and worked in dynamic, demanding professional spheres. The cognitive limitations accompanying this disease are not only disabling, but dehumanizing. On most days, I no longer recognize myself. I imagine that most patients feel the same, but are so impaired...

Speaking as one of his POTS with ME patients, I did not show mitochondrial dysfunction on iCPET

This Twitter account is unprecedented in its popularity, unsurprisingly, amongst BPS practitioners. Whenever I encounter it, my heart sinks. I’ve found that many in the FND orbit castigate ME clinicians, patients, etc for espousing their allegedly uninformed opinions on FND. This doesn’t stop...

How much influence do you all suppose Garner wields? In the US, he seems a relatively nondescript figure, but that could just be my misinterpretation or wishful thinking.

https://www.medrxiv.org/content/10.1101/2022.10.07.22280732v1 Donnino strikes with incredible ineptitude. No control group, open label, selection bias with participants, sample size of 23, and subjective, self reported outcomes. I’m sure further funding will emerge for this nonsense. What a...

Do people like Garner ever consider that post-viral fatigue is almost always self limiting, and therefore he maybe lucked out? Does he also consider that the patients highlighting flaws in psychological studies tried to exercise and push there way out of the illness? We didn’t all just...

I see Alan Carson and who I believe to be Alberto Espay listed as co-authors. Espay is a major player in the FND epistemic land grab, as is Carson, and I have no recollection of him ever being involved in ME before. Disconcerting to see these names anywhere near this condition. The traditional...

This is all so patently absurd. It would be like playing a game of FIFA (soccer based video game in case anyone didn’t know) and then thinking you could manage England to a World Cup victory. Also, you would have to condescendingly ask Harry Kane if he knows what a “header” is.

This is unbelievable hubris. I can’t fathom how someone like Wise believes we haven’t tried pushing through symptoms and just capitulated instead. The certitude with which he speaks is startling. I’m glad he’s been so persistent in entrenching his views. I hope people will see how these...

I hope that there are more credible rejoinders like this. Does anyone have a sense of the social media response to Wise’s missive? I’m guessing, based on decades of experience, that he will retreat into the militant activist trope

I’m shocked PACE isn’t skewered every time it’s referenced. It tells me that the author either didn’t bother scrutinizing the study or the allure of elite skepticism blinded him to its flaws.

Disappointing framing. Feral patient activists versus benevolent, learned physicians. Plenty of conditions lack singular bio markers and are still spared the psychosocial designation. Piece totally ignores the biological findings that do exist. How can one embrace the deconditioning narrative...

Reddit medicine is the most sinister, dystopian wasteland imaginable. It’s the Mordor of online message boards. The comments that garner the most up votes are beyond awful. They hate us, and essentially argue that we deserve the attitudes highlighted by the paper

I love how they also never unravel their complex interactions. Tell us how they interact. If you’ve elucidated the complexity, you should be able to do that. This is the result of an echo chamber so convinced of its own brilliance. Not only should we not question the logic undergirding the...

I also love the notion that we are dealing with a complex model. It’s false illness beliefs leading to people being out of shape. That’s the BPS framework for ME. It couldn’t be more reductive. Yet we are the rubes too unenlightened to see the magisterial work of our betters.

How can one possibly employ the term “increasing consensus,” when the IOM report, CDC, NIH, WHO, and recent NICE imbroglio would suggest the opposite? Will anyone with a shred of influence raise this obvious question? It’s just so disheartening to see this nonsense continually churned out. I...

Agree unequivocally. No plausible pathway to improvement is the main source of my despondency. When you look at the landscape and assess who is working on solving this condition, the view is rather desolate. The metabolic trap, the itaconoate shunt, neuroinflammation from Younger and...

I empathize with all of these sentiments, and I want you to know you have a supporter in me. It’s pivotal we recognize Gaffney as in intransigent ideologue, and view his musings through that prism. I’ve implored some researchers and physicians in our orbit to challenge his commentary, but I’m...

Gaffney is striving to become a Wessely like figure in the U.S. He essentially galavants about unchecked, pushing a deconditioning and hysteria paradigm. Really disappointing to see further amplification of his views. Dispiriting to say the least