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There is an evidentiary double standard in psychosomatic land though. Those suggesting these post-infectious conditions are driven by organic pathological processes are required to produce consistent, replicated, and objective anomalies that could explain clinical presentations. Psychosomatics...

I expect the PACE crowd to articulate the same defenses as always regarding these physiological abnormalities. They’ll assert that they’re likely downstream consequences of prolonged inactivity; they haven’t been sufficiently replicated; differences are too negligible to explain clinical...

The evidentiary double standard is astounding. Those proffering biomedical explanations are expected to outline consistent pathological findings, but the BPS crowd just strings together unfalsifiable nonsense. How do you empirically measure any of this? You’re just generating meaningless...

I thought I had remembered some patient organization, perhaps ME Action, boast about the Mayo Clinic’s interest in updating its knowledge of ME. Apparently, there would be some partnership with ME Action in facilitating this. If that relationship still exists, this publication might be worth...

Using the terminology “chronic fatigue” seems so disingenuous. Can anybody attest to Chalder’s reputation amongst physicians and academics? It seems she’s highly regarded, and it’s utterly bewildering why.

I took LDN for several months and witnessed absolutely no benefits. It was prescribed early in my illness nightmare, and I felt the propensity to assuage symptoms was overhyped. It was demoralizing when it yielded no benefits, but I know how that disenchantment was rooted in the unrealistic...

Studies like this tell them what they want to hear: All those frequent flyer patients you disdain are just nuts! And not only are they nuts, they all have the same problem. Good news, that problem isn’t yours to solve.

I find him sinister, and it disheartens me to see such little pushback from the Boston clinicians working in this space. There is an OMF branch at Harvard, and earnest clinicians producing noteworthy literature. If patients rebut his nonsense, it will just play into the militant activist...

Shure and Gaffney are engaging in incredibly condescending and outright repellant responses to calls for retraction. I felt that this tweet was especially gross. I also see that Gaffney posted an article where Sharpe discusses the harassment he faces from feral activists

This individual’s profile indicates he is a physician. Unsurprisingly, very few coming to correct this commonly held prejudice. I hope that changes!

What does Garner get, aside from publicity, with his continued bloviating in this space? Do patients who have recovered from other conditions devote their lives to discussing it? I would think someone would want to move as far away from that traumatic period as possible.

That isn’t graphite on the ground, and those “radiation burns” are functional. A nice course of CBT will help that mutated cat get back to meowing in no time

Where is the mounting scientific evidence of functional causation? Is it based on rule in signs? Where is the evidence that any rule in signs mean a condition is functional? Can someone explain how Carson became an august voice in the Long Covid space? It’s unnerving

At what point does this hypothesis, which is essentially a variation on general BPS theorizing, need to produce concrete evidence? It seems to always be in a provisional state, while simultaneously being widely acclaimed as sacrosanct. I wouldn’t believe medicine was this primitive if it weren’t...

I hope the Open Medicine Foundation, which has a recognized foothold at Mass General, systematically eviscerates these arguments. It’s an august institution, and it would be shameful if Perez appeared to be the representative voice emanating from there. As I believe I intimated earlier, I don’t...

The novel interventions for those who don’t respond to GET or CBT will be drivel like ACT. Also, there is a terrific team of clinicians and researchers from Mass General Hospital working in this space. If the David Perez who signed on to White’s defensive manifesto is the Perez who runs the...

Does anyone feel they can offer speculation about the probability of NICE convening a new panel and conducting another review? I know it’s difficult with only these brief snippets, but I still felt inclined to ask

I always see this argument and want to launch myself into the sun. Who is being denied treatments? Anyone who wants to can embark on an exercise regimen and enlist the help of a therapist. Are people being restrained from using recumbent bikes? Are militant activists hiring private investigators...

Just to make sure I’m not delirious and imagining this, Shure is arguing that reports of harm post GET aren’t enough to make causal claims, but people like Garner, who her article features, can make casual claims that GET revitalized them? It makes sense if you don’t think about it.

I truly hope a concerted effort to counter this reporting is made. It recycles the same tropes about false mind/body dichotomies, intolerance to mental illness, PACE being a work of genius, etc. It never ends, and figures like Shure and Gaffney earn accolades at our expense. A perverse system