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“Neurobabble” is an exceptional moniker for the predominant features of FND literature. I’m beyond disappointed that Mass General Hospital, where some terrific ME clinicians reside, has permitted FND to gain a foothold there.

They’re going to say the same things about us whether we actively protest this or not. I agree unequivocally regarding the offensive tactic. Same with Carson, Stone, and the FND crowd.

Diseases that disable millions reduced to “aches and pains.”

The BPS crowd always want to “destigmatize” their psychosomatic labels. However, they aren’t challenging their own assertions that patients are helpless, catastrophizers, neurotics, etc. They merely mean that others shouldn’t be hostile toward the neurotics. It’s a really problematic game, and...

The psychosomatics appear to be trending toward the ‘inability to handle stress’ hypothesis, if they’re not already fully immersed in it. I recall a paper by Fink in which he discusses a lack of resiliency as a potential unifying theme in his pet ‘bodily distress disorder.’ It strains credulity...

I am on it and haven’t gained weight. I also take a much, much higher dosage then you were prescribed.

Anecdata, recycled militant activist tropes, no discussion of how this research has been discredited. reprogramming the mind, and Garner. Really tough to cram all this in one article, but they did it.

“They spent $1 billion and found nothing. What more do campaigners want?” - the usual suspects

How do these informational pages still exist in the wake of so much contradictory evidence, particularly the existence of the updated NICE guidelines? Is it just the slow mechanisms of a massive bureaucracy? I’m not familiar with typical NHS administrative functions like this, as I’m not in the UK.

One of the links at the end of the website is to Jon Stone’s neurosymptoms website. I believe that website categorizes ME as a functional somatic syndrome and also favorably cites Recovery Norge. Would be worth writing NIH to ask whether they agree with this sentiment, and if not, why they’ve...

The actual evidence for functional illness presented in this article is nothing. They just take it as a given and then proceed to speak about nocebo effects. That some people might have functional symptoms is an assertion devoid of any evidentiary basis. It’s like writing an editorial that some...

With friends like these… One of the reasons BPS figures can convince others to dismiss us so readily, in my estimation, is through highlighting posts like this. It makes those looking into potential organicity, and by extension us, seem wholly devoid of repute.

I love how functional somatic syndromes is in quotation marks later in the article. It’s almost as if we take it as a given in the introduction, and then, as the evidence shows something contrary to BPS bluster, we put it in quotes. This is in their own study mind you. So under the most...

It seems the FND crowd salivates over any unexplained symptom. I agree that movement issues like tremor, seizure, gait, balance, etc are their primary target, but the cognitive complaints ME patients readily delineate are also within their grasp. No matter what they capture, it always seems to...

When you’re the ultimate arbiter of what’s abusive, then any commentary you don’t like can attract the label. Carson was trained by Sharpe, and it shows

Yes, I agree. To the extent the psychosomatics are strengthening their position empirically, that’s laughable. I do think they’ve refined their delivery, much as salespeople often do. When I first got sick, I was lambasted by the physicians I saw: anxious, depressed, concerned about being a...

And I hope you’re ultimately correct, as it will exponentially improve my well being! I participate in research studies, correspond with scientists, and involve myself in patient advocacy, not exactly the behavior of some misanthrope who has given up. Resources like this forum are terrific for...

I don’t know if this is the proper heading under which this posting should be made, but either way, I unequivocally believe that Long Covid has only strengthened psychosomatic medicine’s stranglehold on the scientific community. There will be a heightened resolve and fervor for these therapies...

I’m seeing some almost euphoric responses from minimizers. I’m fearful that this could be a death knell for Long Covid as far as urgency and earnestness are concerned. The pool of legitimate scientists interested will dwindle, and the only think that may increase is the amount of donations to...

I wonder when the this osteopathic medicine practice last appraised the literature on the disease? Have they ever? Would love to hear their rejoinder to PACE trial criticisms.