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Just an aside on Lyrica. I take 450 mg/day, and it helps immensely with the pervasive sensory sensitivities accompanying my presentation. It also helps some with the peripheral neuropathy. Again, this is an N=1 case, and unlike a scuba diving denizen of the deep, I will not generalize. I just...

This is thoughtful analysis. I assume they know they’re in for a pummeling from the usual quarters. Ironclad findings in an established journal are necessary, and even then, they’ll have to prepare for the impending onslaught. I expect the most vehement, and petulant, opposition to come from...

I think the NIH carnival is more vexatious. They have the institutional prestige and innumerable resources necessary to muster some progress. Prusty’s pronouncements remind me of the many watershed “breakthroughs” over the decades. A lot of bluster, but not much clinical significance I’m afraid...

I’m sure this was all met with thunderous applause. Did any recycled tropes about feral militant activists make their way into the lecture?

It’s the insurance industry’s El Dorado. Sure you have a harrowing disease, but the symptoms are caused by a concomitant functional disorder. Thus, a little rehab and back to work you malingering reprobates!!

They didn’t find what they thought, which somehow confirms exactly what they thought. The Jonestown cultists were less myopic.

I’ve discussed Lenny Calabrese’s work elsewhere on the forum. I’ve always found it a rare amalgamation of arrogance, condescension, and charlatanry. Naturally, he’s treated as an expert opinion

Step 1: Decide that somebody’s persistent physical symptoms are the product of some psychological process. Step 2: Manufacture evidence for Step 1 by observing anodyne bodily sensations and deeming them an expression of the psychological processes you’ve already asserted exist; I.e. exactly...

I’ve noticed that David Perez is receiving deserved backlash for his sermonizing response to Walter Koroshetz’s tweet on ME awareness day. Undoubtedly, this will be categorized as an attack, or harassment of a magnanimous researcher. It’s hard not to see Carson and Perez’s statements as...

Of course Carson would never respond to these criticisms and instead issue unsubstantiated accusations of “harassment.” His initial comment is especially brazen in light of NICE guideline amendment and CDC withdrawal of these recs

Yes, he argued that the committee should have enlisted experts from “other” brain-mind-body disorders, which categorizes ME as a brain-mind-body disorder. Curious why Perez is getting involved in this effort. My guess is that he, like Carson, sees the biomedical approach to ME as threatening to...

These are some of the more benign comments I recall reading

I’ve read this thread. It’s absolutely ghastly. Some of the most abhorrent commentary I’ve encountered on anything. If this sounds hyperbolic, I would encourage you to read some.

It’s the easiest metric for evaluating whether any publication is worth the paper it was printed on.

I expect, based on what I’ve seen on social media, that we will see an article praising this soon. Jeff Wise, who wrote the NY Mag piece sycophantically echoing BPS propaganda, seemed dismayed by the dearth of coverage for the trial. Again, pure speculation, but I think it’s worth putting on...

Previously in this thread, I questioned the extent to which this would be publicized. Using Twitter as a barometer, which I realize is unrepresentative, it hasn’t gained significant traction yet. The typical purveyors of this ideology: Gaffney, Carson, etc are euphoric about the findings, but...

I haven’t read “From Fatigued to Fantastic,” but if there was a book outlining how to overcome the disease, I’m certain the erudite members of this forum would be analyzing it. Also, using the terminology “overcome” implies that those still ill just lack a certain gumption

Ben Ryan has been a hellacious supporter of the Gaffney and Shure perspective throughout the pandemic

They conflate ME with “tired all the time,” or fatigue as a symptom. I’m sure they encounter people with generally unhealthy lifestyles who benefit from this, and then they assume they’ve solved ME or CFS

I would typically imagine this would be relentlessly promoted by the usual suspects, but I’m unfamiliar with the prestige and influence of this research group. I wonder whether this will reverberate in the US for instance?