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Thanks! When the best you’ve got is an LP practitioner and Garner, you’re sadly wanting for scientific acumen. I hope this is quickly ignored

While my quality of life has improved mightily since abandoning Twitter, I do wish I could see how this is being promoted/responded to on the bird app. Does anyone have any insights to offer? Thanks!

Why are so many FND zealots on this author list? To my knowledge, they’ve contributed little to nothing in bolstering understanding of the disease. How familiar would they be with the evidence base and controversy? All strange

I saw this summit promoted on the blog “Health Rising,” which seems to be a favored news source for many patients. Disconcerting, though much of what I’ve seen on that medium constitutes the dissemination of charlatanry, in my estimation.

Ive never seen him respond to a patient. We can’t enhance his profile.

Is he still blocking replies to various tweets relevant to ME/CFS patients? I know he did so previously, but I am no longer on Twitter and can’t determine whether it continues.

He’s either shamefully ignorant or plain dishonest. BPS is the natural outgrowth of a desire to cut costs and increase pressure on those receiving state benefits. That an ostensible progressive would defend this is nonsensical. This is what happens when you’ve convinced yourself that you’re a...

Your years long crusade will harm patients even though this study I know nothing about doesn’t show that rehabilitative approaches will help patients. I’m a serious scientist and definitely not opportunistically inserting myself in this debate for clout.

If the structural issues exist, they’re obviously important, but not important enough to interfere with curative CBT/GET succeeding, as shown in multiple RCTs that don’t exist. This is the inevitable result of zero oversight. It’s not that clinicians read Stone and genuflect to his brilliance...

This goes back to their warped premise that it isn’t the symptoms, but the coping, that perpetuates disability. No matter the outcomes of these trials, they were right!

If I wrote a piece about some ethnic group, and a band of cretinous bigots were praising it, I would stop and think twice about what I’ve just contributed to. She seems to believe that anyone interpreting her work in such a fashion, hasn’t actually read it. Moreover, she thinks patients who...

I answered my own question. Responses are expectedly terrible. Everyone naturally regurgitating the tropes the author claims to detest. A lot of grifters in the “Covid was exaggerated/fake” space glomming onto it

That account is really awful. Nothing legitimizes oppressors more than someone who revels in the oppression. I don’t know who the person behind that pseudonym is, but he/she is doing inestimable damage. Really makes you despondent

Is this gaining any traction on social media? I know that other article sparked a firestorm, but it’s my hope that the fervor has somewhat quelled.

There is essentially one piece on ME/Long Covid being deemed a psychiatric problem, and slightly different iterations are authored over and over again. Quote Adam Gaffney, don’t mention that the Knoop study is open label/lacks an active control group/relies on subjective outcomes, blame...

It’s such a cynical rhetorical strategy. When will these people go away? They’ve been at it for 40 years. They have to be approaching retirement. The problem, is that they’ve trained supplicants to essentially mindlessly continue this crusade. The ones most prominent in this second generation...

Anyone who questions the validity of psychosomatic conditions is perpetuating stigma, and anyone with the temerity to dissect flaws in the research of psychosomatic clinicians is engaging in targeted harassment. In adopting this framework, we’ve effectively insulated an entire branch of inquiry...

Like many patients, I find myself unusually sensitive to sensory phenomena like light, touch, sound, etc. I also deal with extensive peripheral neuropathy in my face, eyes, hands, and feet. I have found a reduction in these symptoms associated with Pregabalin usage.

We chose this story because it was authentic, vivid, and replete with all the elements stories typically possess. We neglected other stories because they didn’t have the elements stories typically possess, despite being stories themselves. imagine publishing this and then propagating it...

FND: no neurobiological investigations with over 100 participants; limited longitudinal data; failure to incorporate adequate comparator groups like PTSD, Major Depressive Disorder, etc; no plausible explanations for how emotions/attention/agency issues produce the symptoms in question; no...