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    Identifying and Managing Suicidality in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Chu, Jason et al

    It’s often framed as an impulsive, irrational act that could have been allayed had a seasoned CBT practitioner intervened. However, I would suspect that in many instances, suicides in the ME community are the picture of rationality. Individuals facing homelessness with a debilitating disease...
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    Functional Neurological Disorders in Children – A Historical Perspective, 2022, Freedman

    Freedman, the author of this piece, is a prolific FND proponent on Twitter. I don’t recall ever seeing him wade into debates surrounding ME, but if he’s on this train, I wouldn’t be shocked if his views were discordant from many here.
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    Health Sense article: Why deny patients with chronic fatigue syndrome treatments that can help?, 2022, by Peter White

    The public criticism without adequate follow-up is like the pronouncement of a feudal lord. When you demedicalize a disease and portray its sufferers as malcontents, a response isn’t warranted. I feel the Long Covid community is finally seeing the writing on the fall as White, Chalder, etc...
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    Health Sense article: Why deny patients with chronic fatigue syndrome treatments that can help?, 2022, by Peter White

    It’s an exclusive club, and we aren’t in it. Broad generalizations are suitable for BPS luminaries, especially when conversing with members of the peasantry (us).
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    Using clinical patient characteristics to predict treatment outcome of cognitive behavior therapies for individuals with [MUS], 2022, Sarter et al

    If they are referring to disability benefits, people who receive these financial compensation packages often have to produce objective indicators of disease. Thus, people receiving these likely have an underlying condition that wouldn’t subside with CBT, no matter how assiduously it’s been...
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    Health Sense article: Why deny patients with chronic fatigue syndrome treatments that can help?, 2022, by Peter White

    I see that Health Sense requested that Carson contact them to outline the purported errors in Caroline’s piece. Notably, to my knowledge, they haven’t publicly (at least in the various Twitter threads) solicited the legions of commenters decimating White’s anemic arguments.
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    Health Sense article: Why deny patients with chronic fatigue syndrome treatments that can help?, 2022, by Peter White

    I submitted a post regarding this blather in a different thread, so the moderators may want to move it. but I find it astounding that White glosses over the conflict of interest issue by arguing that physicians wouldn’t want to provide ineffective treatments to patients. Of course they...
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    Health Sense article: Why deny patients with chronic fatigue syndrome treatments that can help?, 2022, by Peter White

    Merged from the PACE trial thread https://www.healthsense-uk.org/publications/newsletter/newsletter-118/273-118-white.html Peter White penned this anemic missive defending PACE and the provision of CBT/GET. Amidst a plethora of gems, he seems to argue that he and other BPS ideologues aren’t...
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    Joint patient and clinician priority setting to identify 10 key research questions regarding the long-term sequelae of COVID-19, 2022, Evans, Chalder

    She’s like a pompous conquistador attempting to civilize a coterie of mindless brutes deluded into believing that debilitating post-viral illness is a legitimate clinical entity. It’s beyond disheartening to see her name in conjunction with these efforts. Until medical professionals stand in...
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    Physicians with long Covid confront a medical establishment eager to classify their illness as psychological (2022) Tuller

    We should preemptively pen the BPS missives before they materialize, as I imagine we could almost mirror them verbatim. These pseudo-philosophical tirades about the folly of separating brain and mind have nothing to do with the BPS approach to post-infectious disease. And to call this reductive...
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    Eye movements may be key to chronic fatigue syndrome diagnosis

    Visual dysfunction and refractory ocular pain constitute my most disabling symptoms. Even more so than the pervasive exhaustion, visual maladies render daily existence abysmal. I hope these efforts provide some insights into underlying pathology. As the eyes are the windows to the soul, perhaps...
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    Physicians with long Covid confront a medical establishment eager to classify their illness as psychological (2022) Tuller

    Following the Guardian piece on gaslighting Long Covid sufferers, Gaffney penned an insolent little Twitter missive reminiscent of the typical BPS standard bearers. I’m curious as to whether he will respond to this composition. Either way, well done @dave30th! Let’s hope that physicians...
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    Long Covid in the media and social media 2022

    Any insights into the Svengali behind this ME informational session? I also find it somewhat paradoxical that clinicians would posture as experts regarding a condition that remains so enigmatic it hardly lends itself to any sort of expertise.
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    [FND]: Extending the diagnosis to other disorders, and proposing an alternate disease term—Attentionally-modifiable disorder, 2022, Mark

    I love the parallel track of FND nonsense accentuated by this paper. On one hand, the exhaustive efforts to render it a “rule in” diagnosis. On the other, let’s just attach the label to any symptoms in the most slapdash, cavalier fashion possible. In practice, I’m guessing the later is what...
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    Graded exercise therapy doesn’t restore the ability to work in ME/CFS. Rethinking of a Cochrane review, 2020, Vink & Vink-Niese

    Winarick, the blundering psychologist referenced throughout this thread reappeared today with some strident commentary about our patient community. Thanks to Tom Kindlon for flagging this on Twitter! One wonders what compels a healthcare provider to cavalierly toss this out about a...
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    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Walt Koroshetz is one of the least impressive and imperious figures in the American public health apparatus. I’ve witnessed him discuss ME with an almost childlike sense of bemusement. I feel differently about Avi Nath and some of his subordinates. I believe they’re more erudite and principled...
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    BPS attempts at psychologizing Long Covid

    This stops short of wholeheartedly endorsing PACE and the edifice undergirding it, but to those engrossed in this discourse, the rhetoric is all too familiar. For context, this is Adam Gaffney’s wife recycling the same hackneyed tropes used to denigrate and vilify ME patients for decades. The...
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    Generalised worry in patients with [CFS] following Cognitive Behavioural Therapy - a prospective cohort study in secondary care, 2022, Chalder et al

    When you’re beneath contempt, as we are in the eyes of the medical establishment, any attention bestowed upon us will appear benevolent. When we invariably illuminate the myriad flaws inherent in Chalder’s work, we’re branded ingrates. I’ve seen Med Twitter flush with citations of the...
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