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Or always appears to be too busy :(

I'm not necessarily talking about this study, I really can't bring myself to read it and I've nothing to hand to use as a sick bowl.

I don't understand the whole research world, so could someone who knows more than me tell me how they justify doing virtually the same study over and over (and over) again? How do they justify the research funds, how do they get given the funding? There must be literally 100's or thousands of...

Can you imagine any other scientific study including patients with a different disease? Study MS and throw in some RA patients, study cancer and throw in some with dibetes to make the numbers up? This is horrifying and was not even declared. It really shows the utter contempt with which they...

:cry::cry: Yes, it really is criminal and shows how dangerous medic's misconception of ME can be. :mad:

A very nice comparison between Hilter and BPS school, couldn't have put it better myself! :laugh: Yes, I know you didn't mean it like that, just let me have my bit of fun ;)

How will we ever get studies to test these drugs when nobody wants to fund them? I get a bit sick of that line 'there's no clinical evidence' of course there isn't, research studies cost a lot of money and nobody cares enough about ME to do them! The research that does take place seems to only...

I share many of your symptoms @Nathalie Wright the muscle twitching began early into the illness and now often occurs during PEM. I have skin rashes for no particular reason and also sensitivity to things like biological washing powder, in fact a great deal of washing powders and fabric...

I'm another one who doesn't expect to be still alive by the time any treatments are discovered. It has been soul destroying waiting for decade after decade as any progress made by researchers back in the 80's regressed into 100's of psych studies. Is there any chance Holgate may step down...

FUCK! That's all I want to say.

Will this mean Fester Crawley stops doing research?

Welcome to S4ME @Docsimsim so glad you've joined us :)

I wish she'd come to the UK and do the same.

I've always thought this, ME awareness days should not just be all fluffy and solely for fund-raising. The most powerful thing I've seen is the names and details of the dead on placards at Millions Missing demos. The public needs to see this, though it is obviously very distressing for the...

Totally agree, the stories need to be much more hard hitting like this, including the reality of severe ME, the deaths and the numbers of suicides due to the immense suffering and lack of medical care and hope for the future. Their stories must be told, we owe it to them.